From Regional Patient Advocate Maria Ferron
Mauritania: Our new HAE International Poster has been sent for translation to the only contact we currently have in the country. This poster can be quite helpful to localize possible HAE patients as we are not in contact with any yet.
Spain: HAE Spain (AEDAF) had their annual – this time virtual – meeting on 19 September with around 50 attendees. The first part of the two-hour meeting was dedicated to the General Assembly, and in the second hour, we had Dr. Gozalez Quevedo (Sevilla), Dr. Caballero (Madrid) and Dr. Lleonart (Barcelona) as speakers. Among other things, they presented on the repercussion of COVID-19 on HAE patients as well as new treatments.
Portugal: HAE Portugal (ADAH) requested to have their website hosted under the HAE International umbrella. ADAH has also asked to join HAEi Connect – they are currently working on it, and it should be fully running in the following weeks.
Algeria: I am happy to announce that the Algerian patient group has managed to get the final approval from the local administration to become an official association. HAE Algeria is currently in active communication with the Ministry of Health. HAEi Connect is now running in Algeria – and the patient group is working on creating a brochure, an Emergency Card and maybe a patient diary.
Libya: I have been working on possible ways to get access to HAE modern therapies for Libyan patients while national contact Ahmed Ali Abudahair has been investigating how to create an association in the country.
