From Regional Patient Advocate Maria Ferron

The ACARE Center initiative has been presented to all the countries in the region, and it has been well received. We already have ACARE Centers set up in the United Kingdom, France, Spain, and Portugal and I am expecting that more will be settled by the end of the year.

Both Ireland and Libya are collecting information to set up a formal HAE association in these countries.

HAE Portugal (ADAH) is now in both Facebook and Instagram – you can stay tuned at facebook.com/associacao.adah and instagram.com/hae_portugal. The Portuguese organization has requested to have its website hosted under the HAE International umbrella – we will start working on this during the next months. Also, I have set up a call with HAE Portugal to establish an action plan for the coming months.

HAE Spain (AEDAF) will have their annual virtual meeting on 19 September 2020 after having to cancel the one scheduled for April due to COVID-19.

Both HAE Morocco and HAE Ireland now have a website hosted by HAE International – have a look at haemorocco.haei.org and haeireland.haei.org.

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