It has been a pleasure starting as the Regional Patient Advocate for the Nordics and Germany, Austria and Switzerland. It is fantastic to meet – mostly online – with many of the member organizations’ representatives as there are so many things to talk about. And not least for me to learn from these amazing people.
We have had some very nice and tangible successes. The emergency card has now been translated to German, covering Germany, Austria and Switzerland. Also, it has been translated to the national languages in Finland, Sweden, Norway and Denmark. Once the world will open more up again, and we can start to travel, this will undoubtedly be beneficial to HAE patients and their families. Also, the HAE Companion app holds these new translations to make it even easier to bring along the emergency cards on your trips.
The Finnish website is in the middle of the migration to the HAEi hosted environment. In Austria, the first steps have been taken to this as well.
The regional meetings in Norway, Sweden and Denmark are currently being planned as online meetings instead of physical ones.
And like last time, a callout: if you are a patient, caregiver or physician treating HAE patients in Iceland, the Faroe Islands or Greenland and would like to get in touch, please do not hesitate to reach out to me. It would be great to connect with you.
