From Regional Patient Advocate Javier Santana:

It was exciting to see the patients in Panama getting involved in Rare Disease Day activities. Members of HAE Panama generated HAE awareness and educated the public by participating in media interviews to discuss the disease and joined in on special rare disease events along with 11 other rare disease groups. Events included sharing video testimonials for social media, joining in a human chain in front of key local buildings, and helping to coordinate the lighting of government buildings in rare disease day colors.

I am continuing to provide support to the member organizations and HAE patients in Guatemala, Panama, El Salvador, and the Dominican Republic through HAE international programs and services, and by helping to identify and refer more HAE patients.