In the second half of March, HAEA Puerto Rico held its Patient Summit 2019 in San Juan. The main speakers were Professor Sandra Christiansen from the US HAEA Angioedema Center at UCSD, Director Bruce Zuraw from the US HAEA Angioedema Center at UCSD, MD Rafael Zaragoza who is President of the Puerto Rican Association of Allergy Physicians, MD Cristina Ramos from Puerto Rico, the US Allergy & Asthma Specialist William Lumry, and Anthony J. Castaldo, President of the US HAEA.

During the event, the doctors talked about advances in HAE treatments, new studies presented by the physicians, and about a new Puerto Rican study on HAE patients, Post Traumatic Stress Disorder, and the impact of Hurricane Maria in Puerto Rico.

HAE patients in Puerto Rico currently have access to Cinryze, Firazyr, Kalbitor, and Ruconest. Tahkzyro is expected to enter the market in late spring 2019 – and discussions with CSL Behring regarding the possibility of Haegarda entering Puerto Rico is going on at the moment.