From Regional Patient Advocate Natasa Anglejeska:
In Slovenia, there have been some barriers preventing a patient organization specifically for HAE being registered. As a result, the patient representative Teja Iskra is in contact with rare diseases societies and is hoping to have HAE officially supported by one of these organizations. Teja Iskra was also invited to speak at the rare disease society’s 4th National Conference on Rare Disease Day 2018 in February, which is a great step in raising awareness of HAE.
