From Regional Patient Advocate Fernanda De Oliveira Martins
Very recently, we welcomed Bolivia to our global HAE family as two Bolivian patients are working on establishing a patient group. A group has already been created on Facebook >> please make sure to visit and like the page. Furthermore, HAEi is in the process of creating a website for Bolivia. The patients in Bolivia have the support of two specialized physicians.
On 14 May, I joined with the Member Organization leaders for a video conference to align the activities the countries were organizing for hae day :-) 2022. We agreed to use the same template in the region for patients to include their pictures and share them on social media.
To further raise awareness of HAE, I have promoted the amazing activities being done in my region >> have a look at our Instagram.
