From Regional Patient Advocate Fernanda de Oliveira Martins

I organized a conference call for member organization leaders on 10 September 2020. Present were representatives from Argentina, Brazil, Chile, Ecuador, Mexico, Peru, Uruguay, and Venezuela.

I have requested updated information on the number of patients, medication status etc., and at this point, I have received updates from Brazil, Peru, Venezuela, and Paraguay. The idea is to make Instagram posts based on the information received – please see www.instagram.com/haei_south_am._and_mexico.

HAE Colombia is the next organization to have its website hosted under the HAE International umbrella – please see https://colombia.haei.org.

HAE Peru has been involved in the publication of a Clinical Practice Guide: Screening, Diagnosis and Management of Acute Episodes and Prophylaxis of HAE. I have shared the guide – published by the Peruvian Society of Allergy, Asthma and Immunology – with HAE contacts in the region since it has excellent information and can help countries in developing its own guide on HAE.

Furthermore, I have used the Instagram account created for my region to share information (in Spanish and Portuguese) on HAE Advocacy Academy, events for patients, Global Perspectives, and useful information for patients.

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