News from South Asia, Germany, Austria, Switzerland, and Israel
From Regional Patient Advocate Fanny Schappler
2024 Highlights
I’m excited to have joined HAEi for the last quarter of 2024 and have witnessed tremendous growth in South Asia in the last few months;
- The Nepalese HAE patient group was officially created in October 2024
- The Indian patient group held its first in-person patient and caregiver meeting in Hyderabad in November 2024, after managing successfully to secure a grant from a pharmaceutical sponsor
- Bangladesh held an online educational webinar for doctors with over 30 attendees.
The DACH countries were also actively preparing their annual assembly meeting or modernizing their websites. This is a testimony of the hard work of each of the Member Organization (MO) leaders, connecting the dots, advocating for their community, and ensuring this is done in partnership with physicians to maximize impact.
Hopes for 2025
In 2025, I hope to see the Sri Lankan HAE patient group formally coming together. In addition, I hope to see more patients joining our MOs in each country and to see the impact of their unity when they act as one group in each country to advocate for the needs of their community. As this infamous African proverb says: “If you want to go fast, go alone. If you want to go far, go together.”