From Regional Patient Advocate Patricia Karani
hae day :-) 2020 in Kenya was a day to raise awareness amongst the general public, and we got a lot of support from friends and family who chose to participate in our 5k global walk. We also had friends raise awareness through cycling as they remembered all HAE patients and their caregivers and the physicians who take care of HAE patients. We are confident that through more awareness campaigns, we will be able to identify more patients and improve quality of life for these patients. We eventually made an online video that has caught the attention of other well-wishers who wish to be part of the HAE awareness campaign in Kenya.
Doctors in Sudan were invited to join the virtual 2020 HAE Global Conference through an announcement made through the Sudanese Society of Clinical Immunology, all in an effort to raise more awareness amongst them.