In Ghana, we have been able to start discussions on HAE with the Immunology Society of Ghana (ISG). We have also been able to liaise with Rare Disease Ghana for purposes of raising awareness amongst the general public.
We have established new doctor contacts in Tanzania. We are in the process of holding further discussions as regards HAE awareness and how we can improve HAE knowledge amongst the health care professionals and the general public.
In Kenya, we are now working on spreading HAE awareness around the different major referral hospitals through doctor webinars. I have presented on HAE and started ongoing conversations with the National Council of Persons Living with Disability (NCPWD) as a way of ensuring that HAE being a debilitating condition is included in being supported as a disability. I have also presented on HAE as a speaker at the Africa Health Agenda International Conference (AHAIC) hosted in Kenya by AMREF and officially opened by the President of the Republic of Kenya as regards driving momentum to achieve Universal Health Coverage (UHC) in Africa. Rare diseases were given a platform to discuss their challenges and call for inclusivity in the UHC campaign for Africa.
Furthermore, in Lesotho, we have established an awareness campaign through the Rare Disease Lesotho group who have shared HAE awareness materials on their platforms, which has elicited a good public response.
In South Africa, we have introduced the Brady Club activity book for the youngsters. This is a wonderful publication that assists kids to better understand HAE and how to manage themselves better. It also provides an opportunity to engage in fun activities and games for youngsters.
