From Regional Patient Advocate Patricia Karani
I am involved in an exciting HAE International pilot project in Rwanda with a dedicated doctor to locate patients with HAE who have been misdiagnosed.
I have established contact with a doctor in Harare, Zimbabwe, who has an interest in HAE.
During February, awareness campaigns were held in Kenya. A story was published in a free newspaper which reaches over 600,000 Kenyans daily. Dr. Priya Bowry held a one-hour training program presenting on the differences between angioedema and HAE. During the training program, I presented a patient’s perspective and gave my story on my HAE journey to diagnosis. We also discussed how best to work with doctors to reduce the burden of disease. Furthermore, HAE Kenya joined with Rare Disorders Kenya to celebrate Rare Disease Day.
