From President Gökben Yurdakul, HAE Turkey
In response to the challenges posed by the COVID-19 pandemic, HAE Turkey took action to provide support for patients and their families. We held information meetings with doctors in a region where adult and pediatric patients were the focus, sharing their struggles and working together to develop solutions. They also organized an online meeting with patients to provide psychological support for those affected by HAE.
In addition to providing patient support, HAE Turkey participated in the 1st HAE Physician Symposium in Turkey. We explained the organization’s purpose and activities to the doctors and expressed our desire to work in partnership with them to support patient orientation. This collaboration allowed us to expand our reach and work with more doctors in different regions.
On 16 May, a significant day for HAE, we visited the Ministry of Health, the Social Insurance Institution, and the Grand National Assembly of Turkey. We met with officials face-to-face to share our demands and opinions, and as a result, some of the problems we were experiencing in medicine and treatment have begun to be resolved. This has encouraged us to continue our efforts and work even harder to address the challenges facing HAE patients in Turkey.
HAE Turkey also attended the 2022 HAE Global Leadership Workshop in Frankfurt, Germany, and shared the good news we heard and saw there with our members. Additionally, we have participated in a congress focusing on internal medicine. In Turkey, most patients first visit internal medicine doctors, so we believe that reminding these doctors about HAE can help improve diagnosis and treatment.
HAE Turkey is committed to solving all the problems experienced by our patients. We hope to continue our efforts to provide support and improve outcomes for those affected by HAE.
We wish all the HAE family a Merry Christmas and an amazing New Year!
