HAEi Advocacy Academy
Advocacy is the power to deliver positive change.
HAEi Advocacy Academy courses support people with HAE in everyday life and help our Member Organizations be successful advocates.
HAEi Advocacy Academy online courses are free to access. They are delivered in small manageable chunks and can be accessed at any time, from anywhere in the world. You can learn new skills in your own time and at your own speed.
If you are beginning to think about advocacy and do not have any experience so far, please do not worry. We offer a range of courses to help you. We also offer courses to help with everyday life with HAE. You can meet HAE advocates and those making a difference for people with HAE every day!
Open-access courses available to all
Click on the image to find out more about each course. More courses will be developed and added, so check back regularly to see what’s new.
HAE Advocacy Workshop: Understand it
If you are just beginning to think about advocacy and want to learn more about how to plan and carry out an advocacy project, this is where you start.
This is the first course in the HAE Advocacy Workshop series where you will find the right tools to help you understand and choose your issue.
Are you ready?! >> Register for your FREE account and let’s get started!
HAE Advocacy Workshop: Plan it
This is the second course in the HAE Advocacy Workshop series. Now that you have chosen an issue you feel passionate about, you are ready to begin with the next step.
In this course you will find the right tools to help you plan your advocacy campaign.
Are you ready?! >> Register for your FREE account and let’s get started!
HAE Advocacy Workshop: Do it
This is the third and last course of the HAE Advocacy Workshop course series. In the other two courses you have chosen an issue you feel passionate about, and made a plan on how you want to carry out your advocacy efforts. This course is where you will find the right tools to help you present your idea and make your message clear.
Are you ready?! >> Register for your FREE account and let’s get started!
HAEi Resources Summary
In this course, you can find information and relevant links about all HAEi resources available for our global HAE family.
Are you ready?! >> Register for your FREE account and let’s get started!
HAE TrackR
n this course, you can learn more about the newest member of the HAEi app family and the functionalities and benefits of using HAE TrackR. HAE TrackR is an easy-to-use electronic diary designed to record your HAE attacks, treatments, and the impact HAE has on your life and the life of your loved ones.
Are you ready?! >> Register for your FREE account and let’s get started!
HAE Management Plan
This course gives you background information on why it is essential to have an HAE Management Plan and what the plan should cover. You can also read Natasa’s story about developing an HAE Management Plan for her son.
Are you ready?! >> Register for your FREE account and let’s get started!
HAE Resources for Kids
In this course, we will share information about different resources available for kids living with HAE. We’ve collected resources, especially for children that HAEi’s Member Organizations have created. These resources aim to help children better understand, manage and cope with HAE.
Are you ready?! >> Register for your FREE account and let’s get started!
HAEi Youngsters' Community
In this course, we will provide a brief look at the history of the Youngsters’ Community and an overview of the different activities and projects for the Youngsters’ Community.
Are you ready?! >> Register for your FREE account and let’s get started!
IT Security
This course will tell you more about IT security, why it is an essential part of our lives, and how you can be more secure online.
Are you ready?! >> Register for your FREE account and let’s get started!
HAE Youngsters Toolkit: School & Parents
A look at different stages of life as someone is growing up with HAE. In this course, we discuss challenges in school lives and how to manage and overcome them, the role of parent(s) in helping school life be a bit easier, and more.
Are you ready?! >> Register for your FREE account and let’s get started!
HAE Youngsters Toolkit: Teens 12-16
A look at different stages of life as someone is growing up with HAE. In this course, we discuss dealing with HAE through puberty, the importance of the youngster’s community, balancing social lives, and more.
Are you ready?! >> Register for your FREE account and let’s get started!
HAE Youngsters Toolkit: Young adults 16-25
A look at different stages of life as someone is growing up with HAE. In this course, we discuss being a young adult with HAE, sexual health and wellbeing, and more.
Are you ready?! >> Register for your FREE account and let’s get started!
Member Organizations Exclusive Access Courses
Our goal is for HAEi Advocacy Academy to be a comprehensive online learning platform for the global HAE Community. More courses will be developed and added, so check back regularly to see what’s new. Click on the image of a course to know more about it.
Health research and clinical trials
In this course, you will find background information about health research, why participating in clinical trials is essential, and what to expect. The course also includes questions you might want to ask and a list of terms and their definitions to help you navigate research and clinical trial information.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
HAEi Resources Summary
In this course, you can find information and relevant links about all HAEi resources available for our Member Organizations.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
HAE TrackR
In this course, you can learn more about the newest member of the HAEi app family and the functionalities and benefits of using HAE TrackR. HAE TrackR is an easy-to-use electronic diary designed to record your HAE attacks, treatments, and the impact HAE has on your life and the life of your loved ones.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Regional Patient Advocate (RPA) Program
This course provides an overview of HAEi’s Regional Patient Advocate program. Who they are and how they can help the Member Organizations in their region.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
HAEi Connect
This course will provide you with more information about HAEi Connect and how you can use it to help your organization.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
HAEi Connect – 'How To' Tutorials
In this course, you will find information and tutorials about the different functions available in HAEi Connect.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
HAEi Hosted Websites
This course will provide you with more information about HAEi’s hosted website options and how you could use them.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
HAE Resources for Kids
In this course, we will share information about different resources available for kids living with HAE. We’ve collected resources, especially for children that HAEi’s Member Organizations have created. These resources aim to help children better understand, manage and cope with HAE.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
HAEi Youngsters' Community
In this course, we will provide a brief look at the history of the Youngsters’ Community and an overview of the different activities and projects for the Youngsters’ Community.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
HAE Management Plan
This course gives you background information on why it is essential to have an HAE Management Plan and what the plan should cover. You can also read Natasa’s story about developing an HAE Management Plan for her son.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Working with Pharmaceutical Companies
This course will provide you with information on how to establish and maintain relationships with pharmaceutical companies. This course will also guide you on how to work with them.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
IT Security
This course will tell you more about IT security, why it is an essential part of our lives, and how you can be more secure online.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Working with the media
This course will help guide you through the story elements you have to offer a journalist, how to approach a journalist about your story, and how to prepare someone for an interview.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account that gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Building Your Organization – Part1: Getting Started
In our Building Your Organization course series, you will learn about the different stages a Member Organization progresses through and how HAEi can support you along the way. In this Getting Started course, you will learn more about the importance of patient advocacy organizations, how to find people and make connections, and why you should become a registered HAE patient organization.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Building Your Organization – Part 2: Fundraising Basics
This course will provide you with information on how to secure funding to support the work of your Member Organization.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Building Your Organization – Part 3: Registering Your Organization
This course provides information on how to register your organization. The process for doing this will vary from country to country. For this course, we use the example of UK regulations and provide principles to follow and things to consider.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Building Your Organization – Part 4: Finding Members and Volunteers
This course will provide you with ideas to help you grow your membership and establish as complete a community of people living with HAE in your country as possible. We will also provide you with ideas that can help secure additional volunteer support to deliver the aims of your organization.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Building Your Organization – Part 5: Fundraising Strategy
This course provides information to help you approach fundraising in a more structured and formal way. In fundraising, a strategy allows for a larger scale and rigor in securing revenue.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
Building Your Organization – Part 6: Other Ways HAEi Can Help
This is the last course currently available in our Building Your Organization series. We summarize the courses available in this series and share other ways HAEi can help you when building your organization.
If you would like to get access to the Member Organizations Exclusive Access Courses, you should contact your Member Organization lead.
To access these courses, you need an access code. You use this code to create a free account which gives you access to both exclusive and open-access courses.
Are you ready?! >> Register for your FREE account and let’s get started!
Already created an account using an access code >> Login here
