Javier Santana
Regional Patient Advocate Central America and Caribbean
Javier started at HAEi in 2017 as a representative of the Latin American region. He was part of the growth process of the group of patients in Puerto Rico where he helped in the development of events to identify more patients and educate about HAE. As a communications strategist with more than 20 years of experience working with governments and the private sector, Javier has assisted in the creation of new patient groups in the region he represents right now, Central America and Caribbean, and in the process of guiding patient groups on the development of initiatives that can motivate governments to work and look for alternatives in favor of patients. For many years he has also assisted in the development of productions for the HAEi and HAEA Summits.

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