Regional Patient Advocate South Eastern Europe
Natasa is the dedicated mother of a boy with HAE. She holds a PhD in Education and most of her professional engagement is in the area of education. She started her advocacy activities for HAE when her son was diagnosed back in 2008, with a focus on raising public awareness for HAE and educating patients and medical staff for HAE in the South Eastern European countries, thus making a difference to the quality of life of patients. Natasa is also voluntarily engaged in assisting rare disease patients in Macedonia in their fight for improved access to medicines and quality of life through amendments on legal regulations.