Hereditary angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people.
HAE is a genetic disorder. If one parent has HAE, there is a 50 percent likelihood that his or her child will have it, too. Therefore, it is very important to have other family members tested if you get diagnosed with HAE.
To lead a global network of Member Organizations and provide specially designed tools, resources, educational programs, and hands-on assistance to empower awareness, accelerate diagnosis, and champion access to life-saving HAE therapies.
To unite and strengthen the HAE global community, achieve a world free of barriers where effective treatments are accessible everywhere, and provide a higher quality of life for people with HAE.
To fulfill the highest priority needs of our Member Organizations with an extraordinary level of dedication, effectiveness, and accountability, guided by compassion, kindness, and inclusivity.
Read inspirational articles featuring HAE patients, detailed information from our Member Organizations, interviews with HAE experts and guests at our workshops and conferences, and the latest news from the industry.
Research and treatments
