Update from HAEi’s Executive Vice President Global Advocacy and Chief Diversity Officer, Fiona Wardman

I am continually inspired by the dedication and effort shown by our community, from the tireless work of individual Member Organizations to the incredible team at HAEi. The unwavering commitment to improving the lives of those affected by HAE, both locally and globally, is truly commendable.

The recent success of the 2024 HAEi Regional Conference Americas in Panama was a testament to this dedication. I extend my heartfelt thanks to all who attended and contributed to making the conference a resounding success. Each HAEi conference is uniquely tailored to its region, providing targeted information and capturing the essence of the community. I eagerly anticipate the next series of conferences.

The 2024 HAEi Global Leadership Workshop, scheduled for later this year, promises to surpass the achievements of 2022. We are listening to feedback from our community and designing a workshop offering more networking opportunities, information sharing, and learning experiences. It will be a valuable opportunity to hear from the incredible advocates within the HAEi network. Alongside the ACARE Global Angioedema Forum 2024, this event is not to be missed. See you in Copenhagen!

Reflecting on my previous update, in which I emphasized the importance of improving the lives of those with HAE, I am pleased to report that our teams are intensifying their efforts in targeted local and global awareness programs, education, and events.

HAEi remains dedicated to expanding its reach, locating more patients, and supporting new Member Organizations. This ongoing effort is yielding positive results. Thanks to collaborative efforts involving individuals, Member Organizations, and pharmaceutical companies, patients in many countries are gaining improved access to and reimbursement for modern therapies.

Our commitment to improving the quality of life for all people with HAE is unwavering. HAEi continues to improve its resources and tools, making them available in more languages and tailored to the specific needs of our patients. We constantly seek new ways to support our Member Organizations and those they serve.

Together, we are making significant strides in the fight against HAE, and I am confident that our collective efforts will continue to drive positive change for our community.