{"id":50353,"date":"2022-08-09T10:43:14","date_gmt":"2022-08-09T08:43:14","guid":{"rendered":"https:\/\/haei.org\/?p=50353"},"modified":"2023-07-12T15:46:33","modified_gmt":"2023-07-12T13:46:33","slug":"news-from-italy-0722","status":"publish","type":"post","link":"https:\/\/haei.org\/news-from-italy-0722\/","title":{"rendered":"News from Italy"},"content":{"rendered":"

From A.A.E.E. (HAE Italy)<\/i><\/p>\n

Joint General Assembly and Annual Meeting:<\/b> On 14 May 2022, HAE Italy (A.A.E.E.) and ITACA (Italian Network for Hereditary and Acquired Angioedema) held a General Assembly and Annual Meeting at the NH Hotel in Padua. For the first time, doctors and patients had a joint assembly that permitted them to better exchange information, news, and requests, all this possible thanks to the strong interaction between the two parties.<\/p>\n

\"\"<\/a>For A.A.E.E. members, the event was an excellent opportunity to celebrate the 40th anniversary of the Association. Actually, it was to be celebrated in 2020 but had to be postponed because of the pandemic. More than 150 people were present, and another 20 were online, which was a great success. We must thank HAEi Regional Patient Advocate Maria Ferron, who joined our meeting and presented the activities of HAEi \u2013 and we congratulate her for her good Italian.<\/p>\n

The first part of the Assembly was an introduction by A.A.E.E. President Pietro Mantovano and ITACA President Mauro Cancian. This was followed by doctors\u2019 reports from Andrea Zanichelli (Angioedema National Registry), Francesco Arcoleo (Available therapies and ongoing studies), Massimo Triggiani (Quality of Life), and Mauro Cancian (Angioedema in Italy and in the world).<\/span><\/p>\n

\"\"<\/a><\/p>\n

The question time that followed the doctors\u2019 reports resulted in a widespread exchange of experiences between the attending patients, members of the Association, and doctors. This section was very well appreciated by patients for the good relationship with the scientific panel. By sharing doubts and questions, patients, regional patient advocates, and doctors could open new doors for improvement and shared solutions.<\/p>\n

One of the topics of greatest interest was the National Patient Registry. Already developed a few years ago by Prof. Cicardi and currently under reconstruction and updating by ITACA, it is based on a new data culture to provide higher data quality and easier user access.<\/p>\n

The second part of the Assembly was run by Pietro Mantovano, who presented the Association with an overview since its foundation in 1980 and how it improved over the years thanks to our unforgettable Prof. Marco Cicardi, without whom nothing would have been done. The A.A.E.E. President presented the different activities carried out and supported by the Association, such as support for ITACA.<\/p>\n

The associative budget with the related expense and entrance notes were unanimously approved. For 2022-23, a scholarship in honor of Prof. Cicardi has been announced to be allocated to a professional\/specialist dealing with angioedema in Italy.<\/p>\n

The secretaries Carlotta Cicardi and Martina Perera contributed with realized activities supported by the Committee Board:<\/p>\n