Tips to Take Control of HAE

Move your mouse over the categories below to view tips from the youngsters.

SPORTS

SPORTS

  • gloves at the gym
  • cool water on hands
  • stop if your hands are red
  • hydrate
  • stay cool
  • talk to your coach

travel

TRAVEL

  • compression tights
  • keep meds in your carry on
  • preplan
  • wear loose clothes
  • carry a note from your doctor
  • check the weather

school

School

  • tell teachers and school principal
  • advocate in school
  • get help to not get behind
  • class buddy to help you
  • train school nurse to treat
  • give school your meds

medicine

meds

  • prepare for your in infusion, e.g. precut tape for after infusion
  • use ice before injecting to numb
  • use a stress ball to pump veins
  • have someone with you during shots and a distraction
  • place a pillow under your arm while infusing
  • hot shower before meds or hot water bottle to help show your veins

everyday

everyday

  • wear wedges or platforms instead of heels
  • avoid wrist pressure while typing
  • take breaks
  • keep calm
  • support your siblings, friends, and family with HAE
  • do what you love