Tips to Take Control of HAE
Move your mouse over the categories below to view tips from the youngsters.
SPORTS
SPORTS
- gloves at the gym
- cool water on hands
- stop if your hands are red
- hydrate
- stay cool
- talk to your coach
travel
TRAVEL
- compression tights
- keep meds in your carry on
- preplan
- wear loose clothes
- carry a note from your doctor
- check the weather
school
School
- tell teachers and school principal
- advocate in school
- get help to not get behind
- class buddy to help you
- train school nurse to treat
- give school your meds
medicine
meds
- prepare for your in infusion, e.g. precut tape for after infusion
- use ice before injecting to numb
- use a stress ball to pump veins
- have someone with you during shots and a distraction
- place a pillow under your arm while infusing
- hot shower before meds or hot water bottle to help show your veins
everyday
everyday
- wear wedges or platforms instead of heels
- avoid wrist pressure while typing
- take breaks
- keep calm
- support your siblings, friends, and family with HAE
- do what you love