Hello, HAE Youngsters!

The 2017 HAEi Youngster’s Summer Camp in Frankfurt, Germany was the first of its kind – and weren’t they just the wildest of days?!

75 participants represented more than 20 countries and turned this into the global event we’d hoped for.

Have a look at some of the highlights from the event
– and please consider taking part in the 2018 HAE Global Conference.

Remember: The future belongs to you!

Warm HAEi regards,

Anthony J. Castaldo  /  Henrik Balle Boysen

Youngsters from all over the world

Youngster\'s Summer Camp 2017

The camp in numbers

Minutes of fun


Rates the experience at the camp as either ‘Excellent’ or ‘Good’ — 95%
Would recommend attending an HAEi Youngster’s Summer Camp to other youngsters with HAE — 100%
Is going to do something differently as a result of the camp — 46%

A unique, necessary, deeply enriching experience for young people and their families.

It was one of my best experiences in my life, I enjoyed every moment!. If I had the chance to do it again, I would do it without thinking.

The first summer camp was a success! It was a unique experience that I will never forget. I hope I can share all the teachings that have been passed on to other young people and doctors.

Thanks HAEi for this amazing experience! I’ll never be the same after these awesome days!

HAEi family is everywhere around the world, we are not alone. Youngsters can be part of this community too and they are the most important of it because they are the future of our organization.

It was a wonderful event that really brought the kids together. The bonds they made in just a short time were amazing. I actually said to my son yesterday that being one of a few in a room without HAE made me feel abnormal and he agreed that he felt so comfortable among so many others he could relate to. Thank you for putting this together and inviting us.

Knowing people who really understand us is as important as having the right medication. It’s not that easy to explain to everyone around us what it is to live with this disease, and knowing that someone besides us really knows makes us feel really relaxed and comfortable. Hope to see everyone again really soon and that doctors continue showing the passion about investigating this disease as Inma and Markus showed to us. Thank you very much again for giving us the opportunity to know you and know each other.

Thank you so much for all the hard work you put into this camp! I learned so much and formed great friendships from all over the world. Everyone felt like family as soon as we walked through the door and I’m so sad it’s over but can’t wait to meet up with my HAE family again!

The camp videos

Almost 10 minutes of impressions from the HAEi Youngster’s Summer Camp 2017

The official trailer for the “Special Blood” feature film on hereditary angioedema

Impressions from the youngsters’ track of the HAE Global Conference 2016

Some of the camp pictures

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Are you ready for more youngster’s stuff?
Then sign up for the 2018 HAE Global Conference in Vienna, Austria.
Among many other things, there’ll be a youngster’s track.