Welcome
to the HAEi Youngsters’ Community
Whether you are newly diagnosed, starting school, university, moving abroad, or starting a new job, this is the place for you. On this website, you can find resources and tools that can help you learn more about HAE. Whether you want to build awareness about HAE in your community, become an HAE advocate, or simply need a way to explain what HAE is at school – we have you covered!
Our goal is to learn, stay connected, grow our global community, share our experiences and have fun together!
Join us and together we can make memories to last us a lifetime!
The Youngsters Advisory Group