Complete overview of all our member countries

This page lists all the HAEi member countries alphabetically and by regions. Click on a flag below and you will be taken to the specific country for more information.

If some of the information is incorrect or you identify missing content, please don’t hesitate to contact us at gro.ieah@ofni.

HAEi member organizations Placeholder
HAEi member organizations

A truly global organization

HAEi is a global network organization dedicated to raising awareness of C1 inhibitor deficiencies around the world.

We serve as an umbrella organization for national HAE patient representations around the globe. On the world map above, the blue color represents countries with an HAE patient group or a formal HAE organization while the orange color represents countries on their way to becoming HAE International members.

Currently, you will find national patient groups or formal HAE member organizations in these 95 countries:

Select region
  • All
  • Africa
  • Australia/Oceania
  • Central America and Caribbean
  • Central Asia
  • East & Southeast Asia
  • Europe
  • Middle East
  • North America
  • South America
  • South Asia

The flags above represent the countries with a national HAE organization. However, presently we know of HAE points on contact – mostly HAE knowledgeable physicians and hospitals – in a number of other countries around the globe. Please click to learn more:

  • Andorra
  • Benin
  • Ethiopia
  • Kosovo
    Places: Hospital | Hospital | Physician | Physician
  • Liechtenstein
    Available medication: Firazyr, Cinryze
  • Luxembourg
    Available medication: Ruconest, Berinert, Firazyr, Cinryze, Cetor
    Places: Hospital | Hospital
  • Malta
    Available medication: Ruconest
  • Mauritania
    Places: Physician
  • Namibia
  • Nigeria
  • Rwanda
    Places: Hospital | Physician | Physician
  • Senegal
  • Sri Lanka
  • Sudan
    Places: Hospital | Physician | Physician
  • Swaziland
  • Tanzania
  • Uganda
  • Yemen
  • Zambia
  • Zimbabwe

Is your country missing?

If you are living in a country that is currently not on the list, please contact us at gro.ieah@ofni.

We will help you get organized!

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language