A TRULY GLOBAL ORGANIZATION
Complete overview of all our member countries
This page lists all the HAEi member countries alphabetically and by regions. Click on a flag below and you will be taken to the specific country for more information.
If some of the information is incorrect or you identify missing content, please don’t hesitate to contact us at gro.ieah@ofni.
HAEi member organizations
HAEi member organizations
A truly global organization
HAEi is a global network organization dedicated to raising awareness of C1 inhibitor deficiencies around the world.
We serve as an umbrella organization for national HAE patient representations around the globe. On the world map above, the blue color represents countries with an HAE patient group or a formal HAE organization while the orange color represents countries on their way to becoming HAE International members.
Currently, you will find national patient groups or formal HAE member organizations in these 93 countries:
- All
- Africa
- Australia/Oceania
- Central America and Caribbean
- Central Asia
- East & Southeast Asia
- Europe
- Middle East
- North America
- South America
- South Asia
The flags above represent the countries with a national HAE organization. However, presently we know of HAE points on contact – mostly HAE knowledgeable physicians and hospitals – in a number of other countries around the globe. Please click to learn more:
- Andorra: Treatment
- Benin: Treatment
- Bolivia: Physician
- Ethiopia: Treatment
- Ghana: Treatment
- Kosovo: Treatment – Hospital – Hospital – Physician – Physician
- Lesotho: Treatment
- Liechtenstein: Treatment
- Luxembourg: Treatment
- Malta: Treatment
- Mauritania: Treatment – Physician – Regional website
- Namibia: Treatment
- Nigeria: Treatment
- Oman: Treatment – ACARE Center – Hospital – Physician – Regional website
- Rwanda: Treatment – Hospital – Physician – Physician
- Senegal: Treatment
- Sudan: Treatment – Hospital – Physician – Physician
- Sri Lanka: Treatment – Regional website
- Swaziland: Treatment
- Tanzania: Treatment
- Uganda: Treatment
- Yemen: Treatment
- Zambia: Treatment
- Zimbabwe: Treatment
Is your country missing?
We will help you get organized!
HAE related topics that might interest you
Global Access Program
Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
Regional Patient Advocates
Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized
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