A TRULY GLOBAL ORGANIZATION

Complete overview of all our member countries

This page lists all the HAEi member countries alphabetically and by regions. Click on a flag below and you will be taken to the specific country for more information.

If some of the information is incorrect or you identify missing content, please don’t hesitate to contact us at gro.ieah@ofni.

Regions Placeholder
Regions

A truly global organization

HAEi is a global network organization dedicated to raising awareness of C1 inhibitor deficiencies worldwide. We serve as an umbrella organization for national HAE patient representations around the globe. Currently, you will find national patient groups or formal HAE member organizations in these 99 countries:

Select region

The flags above represent the countries with a national HAE organization or patient group recognized by HAEi. However, presently we know of HAE points of contact – mostly HAE-knowledgeable physicians and hospitals – in a number of other countries around the globe. Please click to learn more:

  • Andorra
  • Benin
  • Chad
  • Eswatini
  • Ethiopia
  • Liechtenstein
    Available medication: Firazyr, Cinryze
  • Luxembourg
    Available medication: Ruconest, Berinert, Firazyr, Cinryze, Cetor, Orladeyo
    Places: Hospital | Hospital
  • Malta
    Available medication: Ruconest
  • Mauritania
    Places: Physician
  • Namibia
  • Nepal
    Available medication: Danazol, Tranexamic Acid
    Places: Physician
  • Nigeria
  • Rwanda
    Places: Hospital | Physician | Physician
  • Senegal
  • Sri Lanka
  • Sudan
    Available medication: Danazol, Fresh Frozen Plasma, Tranexamic Acid
    Places: Hospital | Physician | Physician
  • Tanzania
  • Trinidad & Tobago
  • Uganda
  • Vietnam
    Places: Hospital
  • Yemen
  • Zambia

Is your country missing?

If you are living in a country that is currently not on the list, please contact us at gro.ieah@ofni.

We will help you get organized!

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

Stay tuned – sign up for our newsletter

BE THE FIRST TO KNOW ABOUT HAE NEWS, TREATMENTS, EVENTS AND RELATED TOPICS

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life