A TRULY GLOBAL ORGANIZATION
Complete overview of all our member countries
This page lists all the HAEi member countries alphabetically and by regions. Click on a flag below and you will be taken to the specific country for more information.
If some of the information is incorrect or you identify missing content, please don’t hesitate to contact us at gro.ieah@ofni.
HAEi member organizations
HAEi member organizations
A truly global organization
HAEi is a global network organization dedicated to raising awareness of C1 inhibitor deficiencies around the world.
We serve as an umbrella organization for national HAE patient representations around the globe. On the world map above, the blue color represents countries with an HAE patient group or a formal HAE organization while the orange color represents countries on their way to becoming HAE International members.
Currently, you will find national patient groups or formal HAE member organizations in these 95 countries:
- All
- Africa
- Australia/Oceania
- Central America and Caribbean
- Central Asia
- East & Southeast Asia
- Europe
- Middle East
- North America
- South America
- South Asia
The flags above represent the countries with a national HAE organization. However, presently we know of HAE points on contact – mostly HAE knowledgeable physicians and hospitals – in a number of other countries around the globe. Please click to learn more:
- Andorra
- Benin
- Ethiopia
-
Kosovo
Places: Hospital | Hospital | Physician | Physician | Physician -
Liechtenstein
Available medication: Firazyr, Cinryze -
Luxembourg
Available medication: Ruconest, Berinert, Firazyr, Cinryze, Cetor
Places: Hospital | Hospital -
Malta
Available medication: Ruconest -
Mauritania
Places: Physician - Namibia
- Nigeria
-
Rwanda
Places: Hospital | Physician | Physician - Senegal
- Sri Lanka
-
Sudan
Available medication: Danazol, Fresh Frozen Plasma, Tranexamic Acid
Places: Hospital | Physician | Physician - Swaziland
- Tanzania
- Uganda
- Yemen
- Zambia
-
Zimbabwe
Available medication: Fresh Frozen Plasma
Places: Physician
Is your country missing?
We will help you get organized!
HAE related topics that might interest you
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Advocacy Academy
Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
HAE Companion app
Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians
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