A TRULY GLOBAL ORGANIZATION

Complete overview of all our member countries

This page lists all the HAEi member countries alphabetically and by regions. Click on a flag below and you will be taken to the specific country for more information.

If some of the information is incorrect or you identify missing content, please don’t hesitate to contact us at gro.ieah@ofni.

HAEi member organizations Placeholder
HAEi member organizations

A truly global organization

HAEi is a global network organization dedicated to raising awareness of C1 inhibitor deficiencies around the world.

We serve as an umbrella organization for national HAE patient representations around the globe. On the world map above, the blue color represents countries with an HAE patient group or a formal HAE organization while the orange color represents countries on their way to becoming HAE International members.

Currently, you will find national patient groups or formal HAE member organizations in these 95 countries:

Select region
  • All
  • Africa
  • Australia/Oceania
  • Central America and Caribbean
  • Central Asia
  • East & Southeast Asia
  • Europe
  • Middle East
  • North America
  • South America
  • South Asia

The flags above represent the countries with a national HAE organization. However, presently we know of HAE points on contact – mostly HAE knowledgeable physicians and hospitals – in a number of other countries around the globe. Please click to learn more:

  • Andorra
  • Benin
  • Ethiopia
  • Kosovo
    Places: Hospital | Hospital | Physician | Physician | Physician
  • Liechtenstein
    Available medication: Firazyr, Cinryze
  • Luxembourg
    Available medication: Ruconest, Berinert, Firazyr, Cinryze, Cetor
    Places: Hospital | Hospital
  • Malta
    Available medication: Ruconest
  • Mauritania
    Places: Physician
  • Namibia
  • Nigeria
  • Rwanda
    Places: Hospital | Physician | Physician
  • Senegal
  • Sri Lanka
  • Sudan
    Available medication: Danazol, Fresh Frozen Plasma, Tranexamic Acid
    Places: Hospital | Physician | Physician
  • Swaziland
  • Tanzania
  • Uganda
  • Yemen
  • Zambia
  • Zimbabwe
    Available medication: Fresh Frozen Plasma
    Places: Physician

Is your country missing?

If you are living in a country that is currently not on the list, please contact us at gro.ieah@ofni.

We will help you get organized!

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

Stay tuned – sign up for our newsletter

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life