MAGAZINES
Global Perspectives
June 2020
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- Emergency Card now in 34 Languages
- The 2020 HAE Global Conference goes Virtual
- Great HAE Global Walk Despite Pandemic
- True Partnership can Bring the Best to Patient Care
- Updates from the HAEi Youngsters’ Community
- Patient Story: Rosa María’s Concern Turned into Active Involvement
- News from Member Organizations Around the Globe
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Global Perspectives
April 2020
Among the topics in this issue of Global Perspectives you will find:
- Important Information About COVID-19 and HAE
- Cancellation of the 2020 HAE Global Conference – information and FAQ
- News from the HAEi Regional Patient Advocates
- Global Walk: Walking Apart – but Still Together
- Patient Story of Noah Davis-Logan: No HAE Patient Deserves to be Unmedicated
- 2020 HAEi Regional Workshop Maghreb – North Africa
- 2020 HAEi Middle East and Gulf Region Workshop
- News from Member Organizations Around the Globe
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Global Perspectives
December 2019
Among the topics in this issue of Global Perspectives you will find:
- A new global network of specialized treatment centers becomes a reality
- News from the HAEi Regional Patient Advocates
- Getting ready for the 2020 HAE Global Conference
- 2019 HAEi Regional Workshop South Eastern Europe
- 2019 HAEi Regional Workshop Central Eastern Europe
- News from member organizations around the globe
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Global Perspectives
October 2019
Among the topics in this issue of Global Perspectives you will find:
- 2020 HAE Global Conference – “Creating the Path for Better Health”
- Highlights from the 2019 US HAEA National Patient Summit
- 2019 Global HAE youth advocacy workshop in Atlanta: Understand it, plan it and do it
- Emergency Card now in 28 languages
- Marco Cicardi in memoriam
- Fundraising in North Macedonia
- News from member organizations around the globe
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Global Perspectives
July 2019
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- Life-saving medication to South African HAE patients
- Another success on the road to Santiago
- 11th C1-INH Deficiency & Angioedema Workshop including summaries of presentations
- New record in raising awareness step by step
- News from around the world
- Still more countries on HAEi Connect
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Global Perspectives
April 2019
Among the topics in this issue of Global Perspectives you will find:
- HAEi Fulfills the General Assembly Mandate
- HAEi now has a Chief Regional Patient Advocate + new Regional Patient Advocates
- HAEi/AEDAF Camino Walk 2019
- HAEi brings hope to India
- Inspiring stories from HAEi Youngsters’ Community
- Dr. Moldovan in Memoriam
- Patient Story: Dejan Angeleski
- Still more countries have HAEi Connect
- News from around the globe
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Global Perspectives
December 2018
Among the topics in this issue of Global Perspectives you will find:
- HAEi South Eastern Europe Workshop 2018
- HAEi Central Eastern Europe Conference and Workshop 2018
- HAEi/AEDAF Camino Walk 2019
- 2019 HAE Youngsters’ Advocacy Workshop
- 2020 HAE Global Conference
- News from our Regional Patient Advocates
- Still more countries have HAEi Connect
- News from around the globe
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Global Perspectives
September 2018
Among the topics in this issue of Global Perspectives you will find:
- An article on the additions to our Regional Patient Advocates
- A patient story from Yujin Yamamoto (Japan)
- Four pages from our HAEi Youngsters
- An update regarding the HAE Emergency Card
- News from the national organizations
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Global Perspectives
July 2018
Some of the topics in this issue of the Global Perspectives are:
- Highlights from the 2018 HAE Global Conference in Vienna
- A website and a magazine is all in a day’s work – HAEi Youngsters
- What patients and family need to know about HAE
- Record-breaking HAE Global Walk 2018
- Working on a unified voice for HAE patients in South Korea
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Youngsters’ Voice
May 2018
Youngsters’ Voice is a magazine created by the HAEi Youngsters community to keep you up to date with all its activities. This first issue was created on a workshop during the 2018 HAE Global Conference in Vienna and some of the topics are:
- Welcome to the first ever edition of Youngsters’ Voice
- Vox Pop about HAE
- HAE Life Hacks
- Vienna Selfie Scavenger Hunt
- Being in a Relationship with HAE
- Cool Infographic about HAE
- Interviews about HAE (in Spanish)
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Global Perspectives
March 2018
Some of the headlines in this issue of Global Perspectives reads:
- Potentially 28,000 HAE patients in China
- Two decades with AEDAF in Spain
- Revision and update of WAO/EAACI Guidelines
- News from around the globe
- Join the Community for HEAi Youngsters
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Global Perspectives
December 2017
Some of the headlines in this issue of Global Perspectives reads:
- HAEi South Easterne Europe Workshop 2017
- HAEi Central and Eastern Europe Workshop 2017
- First HAE Doctors and Patients Meeting in South Africa
- HAE Scandinavia Conference 2017
- Pharming and HAEi partners with Inceptua for Global Access Program
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Global Perspectives
September 2017
Some of the headlines in this issue of Global Perspectives reads:
- A unique and deeply enriching experience: 2017 HAEi Youngster’s Summer Camp
- We are never going back to the dark days – from the US HAEA National Patient Summit 2017
- Welcome to the Brady Club International
- A patient story from Dana Shapiro (United States/United Kingdom)
- HAEi Global Access Program Update
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Global Perspectives
June 2017
Some of the headlines in this issue of Global Perspectives reads:
- More than 70 youngsters will meet in Germany at the 2017 HAEi Youngster’s Summer Camp
- New HAEi Regional Patient Advocate for Africa
- Thousands helped raise HAE awareness Step by Step
- Highlights from the 10th C1-INH Workshop in Budapest, Hungary
- Patient story from Patricia Karani (Kenya)
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Global Perspectives
March 2017
Some of the headlines in this issue of Global Perspectives reads:
- New HAEi Regional Patient Advocate for Latin America
- HAEi/AEDAF Camino Walk 2017
- The Hilfenhaus Award to Professor Farkas
- Patient story from Raquel Martins (Brazil)
- 2017 HAEi Youngsters’ Summer Camp
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Global Perspectives
December 2016
Some of the headlines in this issue of Global Perspectives reads:
- News from the Regional Patient Advocates
- 2016 HAEi Central and Eastern European Region Meeting
- Patient story from Viktar Lebedz (Belarus)
- Specially designed HAEi tourniquet
- A very successful conference: The 2016 HAE Global Conference in Madrid, Spain
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“Global Perspectives” December 2017
Download "Global Perspectives" the HAEi Magazine - December 2017 here: Global Perspectives - December 2017
“Global Perspectives” September 2017
Download "Global Perspectives" the HAEi Magazine - September 2017 here: Global Perspectives - September 2017
“Global Perspectives” June 2017
Download "Global Perspectives" the HAEi Magazine - June 2017 here: Global Perspectives - June 2017
“Global Perspectives” March 2017
Download "Global Perspectives" the HAEi Magazine - March 2017 here: Global Perspectives - March 2017
HAEi Newsletter September 2016
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HAEi Newsletter June 2016
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HAEi Newsletter April 2016
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HAEi Newsletter February 2016
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HAEi Newsletter December 2015
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HAEi Newsletter November 2015
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HAEi Newsletter October 2015
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HAEi Newsletter September 2015
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HAEi Newsletter July 2015
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HAEi Newsletter May 2015
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HAEi Newsletter January 2015
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HAE related topics that might interest you
Global Access Program
Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
Regional Patient Advocates
Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized
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