MAGAZINES

Global Perspectives
June 2021

Among the topics in this issue of Global Perspectives you will find:

  • HAE TrackR – an easy-to-use electronic diary developed by HAEi for our fellow patients – is now live!
  • Record-breaking celebration for 10th hae day :-)
  • What do you want to achieve by 2030? Input from HAEi’s member organizations around the world
  • Exciting news from the HAEi Youngsters’ Community: Meet the HAEi Youngsters Advisory Group and Kick-start of the HAEi Youngsters’ blog
  • Rapid development in Thailand
  • HAEi virtual regional conferences
  • Patient story: I was searching for answers that may not have had a question
  • News from the HAEi Regional Patient Advocates
  • News from Member Organizations Around the Globe

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Global Perspectives
March 2021

Among the topics in this issue of Global Perspectives you will find:

  • 10 years anniversary of hae day :-)
  • HAEi launces new app – HAE TrackR
  • Regional advisory groups define their top 5 challenges
  • Exciting news from the HAEi Youngsters’ Community
  • Launch of the third virtual regional workshop
  • Patient story: Once I was diagnosed with HAE, I felt very relieved that I had answers – and treatment
  • ACARE in action
  • News from the HAEi Regional Patient Advocates
  • News from Member Organizations Around the Globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
December 2020

Among the topics in this issue of Global Perspectives you will find:

  • The 2020 HAEi Virtual Regional Workshop South Eastern Europe
  • Presentation of our new app – HAE Companion
  • Still more ACARE Centers
  • Exiting news from the HAEi Youngsters’ Community
  • The HAEi Advocacy Academy – now live and available globally
  • Patient story: Proper treatment would be a blessing for the children of Costa Rica
  • Two decades of remarkable HAEi development
  • News from the HAEi Regional Patient Advocates
  • News from Member Organizations Around the Globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
September 2020

Among the topics in this issue of Global Perspectives you will find:

  • News from the HAEi Regional Patient Advocates
  • Global Network of Accredited Angioedema Care Centers Grows Rapidly
  • HAEi Academy – Your First Step to Successful Advocacy
  • José Egidio Fabiani in Memoriam
  • New App Will be Your Loyal Companion
  • News from Member Organizations Around the Globe
  • Supplement section with summeries of the 17 presentations from the Scientific Track of the 2020 HAE Virtual Global Conference

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
June 2020

Among the topics in this issue of Global Perspectives you will find:

  • News from the HAEi Regional Patient Advocates
  • Emergency Card now in 34 Languages
  • The 2020 HAE Global Conference goes Virtual
  • Great HAE Global Walk Despite Pandemic
  • True Partnership can Bring the Best to Patient Care
  • Updates from the HAEi Youngsters’ Community
  • Patient Story: Rosa María’s Concern Turned into Active Involvement
  • News from Member Organizations Around the Globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
April 2020

Among the topics in this issue of Global Perspectives you will find:

  • Important Information About COVID-19 and HAE
  • Cancellation of the 2020 HAE Global Conference – information and FAQ
  • News from the HAEi Regional Patient Advocates
  • Global Walk: Walking Apart – but Still Together
  • Patient Story of Noah Davis-Logan: No HAE Patient Deserves to be Unmedicated
  • 2020 HAEi Regional Workshop Maghreb – North Africa
  • 2020 HAEi Middle East and Gulf Region Workshop
  • News from Member Organizations Around the Globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
December 2019

Among the topics in this issue of Global Perspectives you will find:

  • A new global network of specialized treatment centers becomes a reality
  • News from the HAEi Regional Patient Advocates
  • Getting ready for the 2020 HAE Global Conference
  • 2019 HAEi Regional Workshop South Eastern Europe
  • 2019 HAEi Regional Workshop Central Eastern Europe
  • News from member organizations around the globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
October 2019

Among the topics in this issue of Global Perspectives you will find:

  • 2020 HAE Global Conference – “Creating the Path for Better Health”
  • Highlights from the 2019 US HAEA National Patient Summit
  • 2019 Global HAE youth advocacy workshop in Atlanta: Understand it, plan it and do it
  • Emergency Card now in 28 languages
  • Marco Cicardi in memoriam
  • Fundraising in North Macedonia
  • News from member organizations around the globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
July 2019

Among the topics in this issue of Global Perspectives you will find:

  • News from the HAEi Regional Patient Advocates
  • Life-saving medication to South African HAE patients
  • Another success on the road to Santiago
  • 11th C1-INH Deficiency & Angioedema Workshop including summaries of  presentations
  • New record in raising awareness step by step
  • News from around the world
  • Still more countries on HAEi Connect

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
April 2019

Among the topics in this issue of Global Perspectives you will find:

  • HAEi Fulfills the General Assembly Mandate
  • HAEi now has a Chief Regional Patient Advocate + new Regional Patient Advocates
  • HAEi/AEDAF Camino Walk 2019
  • HAEi brings hope to India
  • Inspiring stories from HAEi Youngsters’ Community
  • Dr. Moldovan in Memoriam
  • Patient Story: Dejan Angeleski
  • Still more countries have HAEi Connect
  • News from around the globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
December 2018

Among the topics in this issue of Global Perspectives you will find:

  • HAEi South Eastern Europe Workshop 2018
  • HAEi Central Eastern Europe Conference and Workshop 2018
  • HAEi/AEDAF Camino Walk 2019
  • 2019 HAE Youngsters’ Advocacy Workshop
  • 2020 HAE Global Conference
  • News from our Regional Patient Advocates
  • Still more countries have HAEi Connect
  • News from around the globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
September 2018

Among the topics in this issue of Global Perspectives you will find:

  • An article on the additions to our Regional Patient Advocates
  • A patient story from Yujin Yamamoto (Japan)
  • Four pages from our HAEi Youngsters
  • An update regarding the HAE Emergency Card
  • News from the national organizations

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Global Perspectives
July 2018

Some of the topics in this issue of the Global Perspectives are:

  • Highlights from the 2018 HAE Global Conference in Vienna
  • A website and a magazine is all in a day’s work – HAEi Youngsters
  • What patients and family need to know about HAE
  • Record-breaking HAE Global Walk 2018
  • Working on a unified voice for HAE patients in South Korea

Get your copy of the magazine (and feel free to share it with anyone you think would find it useful)

Youngsters’ Voice
May 2018

Youngsters’ Voice is a magazine created by the HAEi Youngsters community to keep you up to date with all its activities. This first issue was created on a workshop during the 2018 HAE Global Conference in Vienna and some of the topics are:

  • Welcome to the first ever edition of Youngsters’ Voice
  • Vox Pop about HAE
  • HAE Life Hacks
  • Vienna Selfie Scavenger Hunt
  • Being in a Relationship with HAE
  • Cool Infographic about HAE
  • Interviews about HAE (in Spanish)

Get your copy of the magazine (and feel free to share it with anyone you think would find it useful)

Global Perspectives
March 2018

Some of the headlines in this issue of Global Perspectives reads:

  • Potentially 28,000 HAE patients in China
  • Two decades with AEDAF in Spain
  • Revision and update of WAO/EAACI Guidelines
  • News from around the globe
  • Join the Community for HEAi Youngsters

Get your copy of the magazine (and feel free to share it with anyone you think would find it useful)

Global Perspectives
December 2017

Some of the headlines in this issue of Global Perspectives reads:

  • HAEi South Easterne Europe Workshop 2017
  • HAEi Central and Eastern Europe Workshop 2017
  • First HAE Doctors and Patients Meeting in South Africa
  • HAE Scandinavia Conference 2017
  • Pharming and HAEi partners with Inceptua for Global Access Program

Get your copy of the magazine (and feel free to share it with anyone you think would find it useful)

Global Perspectives
September 2017

Some of the headlines in this issue of Global Perspectives reads:

  • A unique and deeply enriching experience: 2017 HAEi Youngster’s Summer Camp
  • We are never going back to the dark days – from the US HAEA National Patient Summit 2017
  • Welcome to the Brady Club International
  • A patient story from Dana Shapiro (United States/United Kingdom)
  • HAEi Global Access Program Update

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Global Perspectives
June 2017

Some of the headlines in this issue of Global Perspectives reads:

  • More than 70 youngsters will meet in Germany at the 2017 HAEi Youngster’s Summer Camp
  • New HAEi Regional Patient Advocate for Africa
  • Thousands helped raise HAE awareness Step by Step
  • Highlights from the 10th C1-INH Workshop in Budapest, Hungary
  • Patient story from Patricia Karani (Kenya)

Get your copy of the magazine (and feel free to share it with anyone you think would find it useful)

Global Perspectives
March 2017

Some of the headlines in this issue of Global Perspectives reads:

  • New HAEi Regional Patient Advocate for Latin America
  • HAEi/AEDAF Camino Walk 2017
  • The Hilfenhaus Award to Professor Farkas
  • Patient story from Raquel Martins (Brazil)
  • 2017 HAEi Youngsters’ Summer Camp

Get your copy of the magazine (and feel free to share it with anyone you think would find it useful)

Global Perspectives
December 2016

Some of the headlines in this issue of Global Perspectives reads:

  • News from the Regional Patient Advocates
  • 2016 HAEi Central and Eastern European Region Meeting
  • Patient story from Viktar Lebedz (Belarus)
  • Specially designed HAEi tourniquet
  • A very successful conference: The 2016 HAE Global Conference in Madrid, Spain

Get your copy of the magazine (and feel free to share it with anyone you think would find it useful)

Global Perspectives #1 2020 out now

The first 2020 issue of the HAE International magazine Global Perspectives – your ultimate source of HAE information globally – is now out. This time you will, among many other items, find articles on [...]

Global Perspectives #3/2019 out now

The third 2019 issue of the HAE International magazine Global Perspectives is out now. This time you can among many other things read about: The 2020 HAE Global Conference – “Creating the Path for Better Health” Highlights from the [...]

“Global Perspectives” #2/2019 out now

Dear HAE friends, Welcome to the second 2019 issue of the HAEi magazine Global Perspectives. This time you will, among many other items, find information on: News from the HAEi Regional Patient Advocates Life-saving medication [...]

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Global Access Program

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Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language