Global Perspective Magazines2019-07-17T17:36:29+02:00

MAGAZINES

Global Perspectives
July 2019

Among the topics in this issue of Global Perspectives you will find:

  • News from the HAEi Regional Patient Advocates
  • Life-saving medication to South African HAE patients
  • Another success on the road to Santiago
  • 11th C1-INH Deficiency & Angioedema Workshop including summaries of  presentations
  • New record in raising awareness step by step
  • News from around the world
  • Still more countries on HAEi Connect

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Global Perspectives
April 2019

Among the topics in this issue of Global Perspectives you will find:

  • HAEi Fulfills the General Assembly Mandate
  • HAEi now has a Chief Regional Patient Advocate + new Regional Patient Advocates
  • HAEi/AEDAF Camino Walk 2019
  • HAEi brings hope to India
  • Inspiring stories from HAEi Youngsters’ Community
  • Dr. Moldovan in Memoriam
  • Patient Story: Dejan Angeleski
  • Still more countries have HAEi Connect
  • News from around the globe

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Global Perspectives
December 2018

Among the topics in this issue of Global Perspectives you will find:

  • HAEi South Eastern Europe Workshop 2018
  • HAEi Central Eastern Europe Conference and Workshop 2018
  • HAEi/AEDAF Camino Walk 2019
  • 2019 HAE Youngsters’ Advocacy Workshop
  • 2020 HAE Global Conference
  • News from our Regional Patient Advocates
  • Still more countries have HAEi Connect
  • News from around the globe

Get your copy of the magazine and feel free to share it with anyone you think would find it useful.

Global Perspectives
September 2018

Among the topics in this issue of Global Perspectives you will find:

  • An article on the additions to our Regional Patient Advocates
  • A patient story from Yujin Yamamoto (Japan)
  • Four pages from our HAEi Youngsters
  • An update regarding the HAE Emergency Card
  • News from the national organizations

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Global Perspectives
July 2018

Some of the topics in this issue of the Global Perspectives are:

  • Highlights from the 2018 HAE Global Conference in Vienna
  • A website and a magazine is all in a day’s work – HAEi Youngsters
  • What patients and family need to know about HAE
  • Record-breaking HAE Global Walk 2018
  • Working on a unified voice for HAE patients in South Korea

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Youngsters’ Voice
May 2018

Youngsters’ Voice is a magazine created by the HAEi Youngsters community to keep you up to date with all its activities. This first issue was created on a workshop during the 2018 HAE Global Conference in Vienna and some of the topics are:

  • Welcome to the first ever edition of Youngsters’ Voice
  • Vox Pop about HAE
  • HAE Life Hacks
  • Vienna Selfie Scavenger Hunt
  • Being in a Relationship with HAE
  • Cool Infographic about HAE
  • Interviews about HAE (in Spanish)

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Global Perspectives
March 2018

Some of the headlines in this issue of Global Perspectives reads:

  • Potentially 28,000 HAE patients in China
  • Two decades with AEDAF in Spain
  • Revision and update of WAO/EAACI Guidelines
  • News from around the globe
  • Join the Community for HEAi Youngsters

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Global Perspectives
December 2017

Some of the headlines in this issue of Global Perspectives reads:

  • HAEi South Easterne Europe Workshop 2017
  • HAEi Central and Eastern Europe Workshop 2017
  • First HAE Doctors and Patients Meeting in South Africa
  • HAE Scandinavia Conference 2017
  • Pharming and HAEi partners with Inceptua for Global Access Program

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Global Perspectives
September 2017

Some of the headlines in this issue of Global Perspectives reads:

  • A unique and deeply enriching experience: 2017 HAEi Youngster’s Summer Camp
  • We are never going back to the dark days – from the US HAEA National Patient Summit 2017
  • Welcome to the Brady Club International
  • A patient story from Dana Shapiro (United States/United Kingdom)
  • HAEi Global Access Program Update

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Global Perspectives
June 2017

Some of the headlines in this issue of Global Perspectives reads:

  • More than 70 youngsters will meet in Germany at the 2017 HAEi Youngster’s Summer Camp
  • New HAEi Regional Patient Advocate for Africa
  • Thousands helped raise HAE awareness Step by Step
  • Highlights from the 10th C1-INH Workshop in Budapest, Hungary
  • Patient story from Patricia Karani (Kenya)

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Global Perspectives
March 2017

Some of the headlines in this issue of Global Perspectives reads:

  • New HAEi Regional Patient Advocate for Latin America
  • HAEi/AEDAF Camino Walk 2017
  • The Hilfenhaus Award to Professor Farkas
  • Patient story from Raquel Martins (Brazil)
  • 2017 HAEi Youngsters’ Summer Camp

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Global Perspectives
December 2016

Some of the headlines in this issue of Global Perspectives reads:

  • News from the Regional Patient Advocates
  • 2016 HAEi Central and Eastern European Region Meeting
  • Patient story from Viktar Lebedz (Belarus)
  • Specially designed HAEi tourniquet
  • A very successful conference: The 2016 HAE Global Conference in Madrid, Spain

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HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language