MAGAZINES
Global Perspectives
June 2023
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- News from Member Organizations Around the World
- TAKE ACTION. 2023 HAEi Regional Conference APAC
- Enhancing HAEi’s Ability to Grow and Succeed Now and in the Future
- TAKE ACTION. Welcome to the 2023 HAEi Regional Conference EMEA
- 13th C1-INH Deficiency and Angioedema Workshop
- Thank You for Being #active4HAE and Celebrating Our Community
- News from the HAEi Youngsters’ Community
- First HAEi LEAP Class: An Inspiring Advocacy Journey Begins
- Climbing Kilimanjaro with a Rare Disease
- Top 5 Tips for Travelling with a Rare Disease
- and much, much more …
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Global Perspectives
December 2022
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- News for Member Organizations Around the World
- TAKE ACTION. Welcome to the 2023 HAEi Regional Conference APAC
- Successful 2022 HAEi Global Leadership Workshop
- Celebrating 2022 with High Expectations for the New Year
- One Small Step … One Giant LEAP!
- Let’s Hang Out at the HAEi Youngsters’ Hangout!
- HAEi Goes Regional
- ACARE Network Grows to 75 Centers
- hae day :-) 2023 is Around the Corner
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Global Perspectives
October 2022
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- News from HAEi Member Organizations Around the World
- The 2022 HAEi Global Leadership Workshop: Accelerating the Global HAE Movement
- HAEi Goes Regional
- News from the HAEi Youngsters’ Community
◦ Introducing the New HAEi Youngsters’ Community Logo
◦ HAEi Youngsters: Let’s Hang Out!
◦ One Small Step … One Giant LEAP! New Program for Youngsters - New HAEi Resource: Understanding HAE
- ACARE Center Network Serves More People with HAE
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Global Perspectives
June 2022
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- News for Member Organizations Around the World
- ‘TOGETHER AGAIN’ for the 2022 HAEi Global Leadership Workshop
- The HAEi Designed Virtual Center Concept is Now a Reality
- Thank You for Stepping Up for the Global HAE Movement for hae day :-)
- Hacking Your Mood: Staying Motivated and Happy
- Meet HAEi Youngster Isabel
- HAEi Youngsters’ Community website
- HAE Friends Around the World
- HAEi Advocacy Academy Supporting Successful Advocates
- Patient Story: Not just to Survive but to Live
- HAEi ACARE Centers: A Growing Network to Serve People with HAE
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Global Perspectives
March 2022
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- HAE Treatments on the Horizon
- Announcing the 2022 HAEi Global Leadership Workshop
- hae day :-) 2022 – stepping up for the global HAE movement
- The Youngsters are here with Open Arms
- Help for HAE Brothers and Sisters in Ukraine
- Powerful Free Resources for Member Countries
- Successful HAEi Virtual Regional Workshops
- Patient story: The Things we got are not Guaranteed
- ACARE Network Continues to Grow in Numbers
- News From Member Organizations Around the Globe
- New International Guideline for HAE Management
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Global Perspectives
December 2021
Among the topics in this issue of Global Perspectives you will find:
- HAE Scandinavia’s 2021 Scandinavian Conference and 20th anniversary
- HAEi-sponsored research focuses on data to support advocacy for modern therapy and improved quality of life
- HAEi Advocacy Academy: A training resource designed around the needs identified by our Regional Advisory Groups
- HAE TrackR is available in 17 languages
- News from the HAEi Regional Patient Advocates
- News from HAEi member organizations around the globe
Get your copy of the magazine and feel free to share it with anyone you think would find it useful.
Global Perspectives
September 2021
Among the topics in this issue of Global Perspectives you will find:
- The first HAEi Virtual Regional Workshop for the Middle East, North Africa and Sub Sahara Africa
- New HAEi Advocacy Academy courses now available for the HAEi community
- HAE TrackR available in 13 languages and counting
- HAEi Youngsters connected by HAE – united as a family
- Five back-to-school tips for the new school year
- Patient story from Panama
- News from the HAEi Regional Patient Advocates
- News from Member Organizations Around the Globe
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Global Perspectives
June 2021
Among the topics in this issue of Global Perspectives you will find:
- HAE TrackR – an easy-to-use electronic diary developed by HAEi for our fellow patients – is now live!
- Record-breaking celebration for 10th hae day :-)
- What do you want to achieve by 2030? Input from HAEi’s member organizations around the world
- Exciting news from the HAEi Youngsters’ Community: Meet the HAEi Youngsters Advisory Group and Kick-start of the HAEi Youngsters’ blog
- Rapid development in Thailand
- HAEi virtual regional conferences
- Patient story: I was searching for answers that may not have had a question
- News from the HAEi Regional Patient Advocates
- News from Member Organizations Around the Globe
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Global Perspectives
March 2021
Among the topics in this issue of Global Perspectives you will find:
- 10 years anniversary of hae day :-)
- HAEi launces new app – HAE TrackR
- Regional advisory groups define their top 5 challenges
- Exciting news from the HAEi Youngsters’ Community
- Launch of the third virtual regional workshop
- Patient story: Once I was diagnosed with HAE, I felt very relieved that I had answers – and treatment
- ACARE in action
- News from the HAEi Regional Patient Advocates
- News from Member Organizations Around the Globe
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Global Perspectives
December 2020
Among the topics in this issue of Global Perspectives you will find:
- The 2020 HAEi Virtual Regional Workshop South Eastern Europe
- Presentation of our new app – HAE Companion
- Still more ACARE Centers
- Exiting news from the HAEi Youngsters’ Community
- The HAEi Advocacy Academy – now live and available globally
- Patient story: Proper treatment would be a blessing for the children of Costa Rica
- Two decades of remarkable HAEi development
- News from the HAEi Regional Patient Advocates
- News from Member Organizations Around the Globe
Get your copy of the magazine and feel free to share it with anyone you think would find it useful.
Global Perspectives
September 2020
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- Global Network of Accredited Angioedema Care Centers Grows Rapidly
- HAEi Academy – Your First Step to Successful Advocacy
- José Egidio Fabiani in Memoriam
- New App Will be Your Loyal Companion
- News from Member Organizations Around the Globe
- Supplement section with summeries of the 17 presentations from the Scientific Track of the 2020 HAE Virtual Global Conference
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Global Perspectives
June 2020
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- Emergency Card now in 34 Languages
- The 2020 HAE Global Conference goes Virtual
- Great HAE Global Walk Despite Pandemic
- True Partnership can Bring the Best to Patient Care
- Updates from the HAEi Youngsters’ Community
- Patient Story: Rosa María’s Concern Turned into Active Involvement
- News from Member Organizations Around the Globe
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Global Perspectives
April 2020
Among the topics in this issue of Global Perspectives you will find:
- Important Information About COVID-19 and HAE
- Cancellation of the 2020 HAE Global Conference – information and FAQ
- News from the HAEi Regional Patient Advocates
- Global Walk: Walking Apart – but Still Together
- Patient Story of Noah Davis-Logan: No HAE Patient Deserves to be Unmedicated
- 2020 HAEi Regional Workshop Maghreb – North Africa
- 2020 HAEi Middle East and Gulf Region Workshop
- News from Member Organizations Around the Globe
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Global Perspectives
December 2019
Among the topics in this issue of Global Perspectives you will find:
- A new global network of specialized treatment centers becomes a reality
- News from the HAEi Regional Patient Advocates
- Getting ready for the 2020 HAE Global Conference
- 2019 HAEi Regional Workshop South Eastern Europe
- 2019 HAEi Regional Workshop Central Eastern Europe
- News from member organizations around the globe
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Global Perspectives
October 2019
Among the topics in this issue of Global Perspectives you will find:
- 2020 HAE Global Conference – “Creating the Path for Better Health”
- Highlights from the 2019 US HAEA National Patient Summit
- 2019 Global HAE youth advocacy workshop in Atlanta: Understand it, plan it and do it
- Emergency Card now in 28 languages
- Marco Cicardi in memoriam
- Fundraising in North Macedonia
- News from member organizations around the globe
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Global Perspectives
July 2019
Among the topics in this issue of Global Perspectives you will find:
- News from the HAEi Regional Patient Advocates
- Life-saving medication to South African HAE patients
- Another success on the road to Santiago
- 11th C1-INH Deficiency & Angioedema Workshop including summaries of presentations
- New record in raising awareness step by step
- News from around the world
- Still more countries on HAEi Connect
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Global Perspectives
April 2019
Among the topics in this issue of Global Perspectives you will find:
- HAEi Fulfills the General Assembly Mandate
- HAEi now has a Chief Regional Patient Advocate + new Regional Patient Advocates
- HAEi/AEDAF Camino Walk 2019
- HAEi brings hope to India
- Inspiring stories from HAEi Youngsters’ Community
- Dr. Moldovan in Memoriam
- Patient Story: Dejan Angeleski
- Still more countries have HAEi Connect
- News from around the globe
Get your copy of the magazine and feel free to share it with anyone you think would find it useful.
Global Perspectives
December 2018
Among the topics in this issue of Global Perspectives you will find:
- HAEi South Eastern Europe Workshop 2018
- HAEi Central Eastern Europe Conference and Workshop 2018
- HAEi/AEDAF Camino Walk 2019
- 2019 HAE Youngsters’ Advocacy Workshop
- 2020 HAE Global Conference
- News from our Regional Patient Advocates
- Still more countries have HAEi Connect
- News from around the globe
Get your copy of the magazine and feel free to share it with anyone you think would find it useful.
Global Perspectives
September 2018
Among the topics in this issue of Global Perspectives you will find:
- An article on the additions to our Regional Patient Advocates
- A patient story from Yujin Yamamoto (Japan)
- Four pages from our HAEi Youngsters
- An update regarding the HAE Emergency Card
- News from the national organizations
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Global Perspectives
July 2018
Some of the topics in this issue of the Global Perspectives are:
- Highlights from the 2018 HAE Global Conference in Vienna
- A website and a magazine is all in a day’s work – HAEi Youngsters
- What patients and family need to know about HAE
- Record-breaking HAE Global Walk 2018
- Working on a unified voice for HAE patients in South Korea
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Youngsters’ Voice
May 2018
Youngsters’ Voice is a magazine created by the HAEi Youngsters community to keep you up to date with all its activities. This first issue was created on a workshop during the 2018 HAE Global Conference in Vienna and some of the topics are:
- Welcome to the first ever edition of Youngsters’ Voice
- Vox Pop about HAE
- HAE Life Hacks
- Vienna Selfie Scavenger Hunt
- Being in a Relationship with HAE
- Cool Infographic about HAE
- Interviews about HAE (in Spanish)
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Global Perspectives
March 2018
Some of the headlines in this issue of Global Perspectives reads:
- Potentially 28,000 HAE patients in China
- Two decades with AEDAF in Spain
- Revision and update of WAO/EAACI Guidelines
- News from around the globe
- Join the Community for HEAi Youngsters
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Global Perspectives
December 2017
Some of the headlines in this issue of Global Perspectives reads:
- HAEi South Easterne Europe Workshop 2017
- HAEi Central and Eastern Europe Workshop 2017
- First HAE Doctors and Patients Meeting in South Africa
- HAE Scandinavia Conference 2017
- Pharming and HAEi partners with Inceptua for Global Access Program
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Global Perspectives
September 2017
Some of the headlines in this issue of Global Perspectives reads:
- A unique and deeply enriching experience: 2017 HAEi Youngster’s Summer Camp
- We are never going back to the dark days – from the US HAEA National Patient Summit 2017
- Welcome to the Brady Club International
- A patient story from Dana Shapiro (United States/United Kingdom)
- HAEi Global Access Program Update
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Global Perspectives
June 2017
Some of the headlines in this issue of Global Perspectives reads:
- More than 70 youngsters will meet in Germany at the 2017 HAEi Youngster’s Summer Camp
- New HAEi Regional Patient Advocate for Africa
- Thousands helped raise HAE awareness Step by Step
- Highlights from the 10th C1-INH Workshop in Budapest, Hungary
- Patient story from Patricia Karani (Kenya)
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Global Perspectives
March 2017
Some of the headlines in this issue of Global Perspectives reads:
- New HAEi Regional Patient Advocate for Latin America
- HAEi/AEDAF Camino Walk 2017
- The Hilfenhaus Award to Professor Farkas
- Patient story from Raquel Martins (Brazil)
- 2017 HAEi Youngsters’ Summer Camp
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Global Perspectives
December 2016
Some of the headlines in this issue of Global Perspectives reads:
- News from the Regional Patient Advocates
- 2016 HAEi Central and Eastern European Region Meeting
- Patient story from Viktar Lebedz (Belarus)
- Specially designed HAEi tourniquet
- A very successful conference: The 2016 HAE Global Conference in Madrid, Spain
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Global Perspectives #1 2020 out now
The first 2020 issue of the HAE International magazine Global Perspectives – your ultimate source of HAE information globally – is now out. This time you will, among many other items, find articles on [...]
Global Perspectives #4/2019 out now
With our very best holiday regards we send you the fourth 2019 issue of the HAE International magazine Global Perspectives – your ultimate source of HAE information globally. This time you will, among many [...]
Global Perspectives #3/2019 out now
The third 2019 issue of the HAE International magazine Global Perspectives is out now. This time you can among many other things read about: The 2020 HAE Global Conference – “Creating the Path for Better Health” Highlights from the [...]
“Global Perspectives” #2/2019 out now
Dear HAE friends, Welcome to the second 2019 issue of the HAEi magazine Global Perspectives. This time you will, among many other items, find information on: News from the HAEi Regional Patient Advocates Life-saving medication [...]
“Global Perspectives” April 2019
Download the HAEi Magazine “Global Perspectives”, April 2019 here: Global Perspectives – April 2019
“Global Perspectives” December 2018
Download the HAEi Magazine “Global Perspectives”, December 2018 here: Global Perspectives – December 2018
“Global Perspectives” September 2018
Download the HAEi Magazine “Global Perspectives”, September 2018 here: Global Perspectives – September 2018 Global Perspectives - September 2018 (one-pager)
“Global Perspectives” July 2018
Download the HAEi Magazine “Global Perspectives”, July 2018 here: Global Perspectives – July 2018
“Youngsters’ Voice” May 2018
Welcome to Youngsters’ Voice – the magazine created by the HAEi Youngsters community to keep you up to date with all its activities. Get the magazine here.
“Global Perspectives” March 2018
Download the HAEi Magazine “Global Perspectives”, March 2018 here: Global Perspectives – March 2018
“Global Perspectives” December 2017
Download "Global Perspectives" the HAEi Magazine - December 2017 here: Global Perspectives - December 2017
“Global Perspectives” September 2017
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“Global Perspectives” June 2017
Download "Global Perspectives" the HAEi Magazine - June 2017 here: Global Perspectives - June 2017
“Global Perspectives” March 2017
Download "Global Perspectives" the HAEi Magazine - March 2017 here: Global Perspectives - March 2017
HAEi Newsletter September 2016
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HAEi Newsletter December 2015
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HAEi Newsletter November 2015
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HAEi Newsletter October 2015
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HAE related topics that might interest you
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Advocacy Academy
Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
HAE Companion app
Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians
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