HAE GLOBAL CONFERENCES
The largest international gathering with a focus on HAE topics
Every second year HAEi welcomes HAE patients, caregivers, health care professionals, and industry representatives to the HAE Global Conference – the largest international gathering of its kind solely with a focus on HAE topics. At the conferences, the participants learn much more about HAE as they share experiences and knowledge in a friendly atmosphere conducted and driven by the patient community organized in HAEi.
The first HAE Global Conference took place in Copenhagen, Denmark in 2012, followed by Washington D.C., USA in 2014 and Madrid, Spain in 2016. Most recently the HAE Global Conference took place in Vienna, Austria in May 2018.
New in 2022: HAEi has chosen to change from the well-known single Global Conference format every two years, to one Global Leadership Workshop and three Regional Conferences to take place over a two-year period.
Although the perspective of HAEi is global, we recognize and celebrate the diversity among the regions of the world that we serve. That is why we will organize three HAEi Regional Conferences over the next two years.
The first HAEi Global Leadership Workshop occurred in Frankfurt am Main, Germany, from 6 to 9 October 2022 – and the first HAEi Regional Conference took place in Bangkok, Thailand from 17 to 19 March 2023.
Dates: 6-9 Oct 2022
Venue: Frankfurt, Germany
Theme: Together Again
Attendees: Approx. 500
2022 HAEi Global Leadership Workshop
Following the success of the five Global Conferences, just short of 500 Patient Advocacy Leaders of HAEi member organizations, HAE Physicians/Scientists, HAEi Youngsters Advisory Group, and industry sponsors representing 75+ countries joined the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany.
Highlights of the workshop:
>> Successful 2022 HAEi Global Leadership Workshop
>> Accelerating the Global HAE Movement
>> Member Organization Program at GLW
>> General Program at GLW
>> Scientific Session at GLW
>> Scientific Poster Session at GLW
>> Youngsters’ Advisory Group at GLW
>> Image Gallery from GLW
Diamond Sponsor:
BioCryst Pharmaceuticals Inc.
Takeda Pharmaceutical Company Ltd.
Gold Sponsors:
CSL Behring
Pharming Group NV
Basic Sponsor:
Pharvaris
KalVista Pharmaceuticals
Dates: 14-17 May 2020
Venue: Frankfurt, Germany
Theme: Creating The Path to Better Health
2020 HAE Virtual Global Conference
Due to the situation regarding COVID-19 (novel coronavirus) HAEi leadership decided on 18 March 2020 to cancel the 2020 HAE Global Conference scheduled to take place 14-17 May 2020 in Frankfurt, Germany.
While COVID-19 prevented us from meeting in person, the “can-do” spirit of the HAE global community has inspired transforming this widely anticipated bi-annual conference into an exciting virtual event.
Diamond Sponsor:
BioCryst
Takeda
Gold Sponsors:
CSL Behring
Pharming
Basic Sponsor:
Pharvaris
KalVista
Scientific Program Committee:
Prof. Marco Cicardi (Italy), Prof. Konrad Bork (Germany), Prof. Bruce Zuraw (USA), Prof. Anete S. Grumach (Brazil), Prof. Bruce Ritchie (Canada), Prof. Connie Katelaris (Australia), Prof. Henriette Farkas (Hungary), Dr. Hilary Longhurst (United Kingdom), Dr. Isao Ohsawa (Japan), Prof. Marc Riedl (USA), Prof. Markus Magerl (Germany), and Dr. Teresa Caballero (Spain).
Keynote speakers:
1: “Take Control: Don’t let HAE hold you back” – Mr. Y. Yamamoto
2: “Take Control of HAE with Real-World Data” – Prof. M. Cicardi
3: “Take Control of HAE – New Advances and Approaches” – Prof. A. Kaplan
4: “Take Control: Dealing with Public Authorities” – Minister of Health V. Filipce
5: “Take Control: The Science of Improving HAE Care” – Prof. B. Zuraw
6: “Take Control: The Science of Improving HAE Care” – Prof. K. Bork
7: “Take Control: The Science of Improving HAE Care” – Prof. M. Cicardi
8: “Take Control: Stay Motivated” – Mr. M. Anthony
9: “Take Control: Now and the future” – Prof. M. Riedl
10: “Take Control: Now and the future” – M. Magerl
Visit the highlight site for the 2018 HAE Global Conference here.
Diamond Sponsor:
CSL Behring
Shire
Gold Sponsors:
BioCryst Pharmaceuticals
Pharming Group
Basic Sponsor:
KalVista Pharmaceuticals
President of Honor:
Her Majesty Queen Letizia of Spain
Scientific Program Committee:
Prof. Marco Cicardi (Italy), Prof. Bruce Zuraw (USA), Prof. Konrad Bork (Germany), Prof. Markus Magerl (Germany), Prof. Marc Riedl (USA), Prof. Henriette Farkas (Hungary), Dr. Teresa Caballero (Spain), Dr. Hilary Longhurst (United Kingdom), Prof. Connie Katelaris (Australia), Prof. Anete Grumach (Brazil), Dr. Isao Osawa (Japan), and Dr. Sulaiman Al Gazlan (Saudi Arabia)
Keynote speakers:
1: “Improving HAE Diagnosis”, Prof. M. Cicardi
2. “Improving HAE Care”, Dr. T. Caballero
3: “Creative Advocacy for Expanding Access to Therapy”, Mr. A. J. Castaldo
4: “Experiences from Hemophilia and the Importance of Patient Advocacy”, Mr. M. Skinner
5: “Juggling with Genes for Cellular Modeling and Therapy of HAE”, Prof. J. Giehm Mikkelsen
Diamond Sponsor:
Shire
Gold Sponsors:
BioCryst Pharmaceuticals
CSL Behring
Silver Sponsor:
Pharming Group NV/Sobi
Basic Sponsor:
KalVista Pharmaceuticals
Scientific Program Committee:
Prof. Marco Cicardi (Italy), Prof. Bruce Zuraw (USA), Prof. Konrad Bork (Germany), Prof. Wolfhart Kreuz (Germany), Assoc. Prof. Marc Riedl (USA), Prof. Henriette Farkas (Hungary), Dr. Alejandro Malbrán (Argentina), Dr. Hilary Longhurst (United Kingdom), Dr. Andrea Zanichelli (Italy), and Dr. Mar Guilarte (Spain)
Keynote speakers:
1: “Because it’s Personal”, Mr. A. J. Castaldo
2: “HAE – A Scientific-Medical Perspective”, Dr. B. Zuraw
3: “HAE – A Historical Perspective”, Dr. M. Frank
4: “The Challenges Treating Children and Women with HAE”, Dr. H. Farkas
5: “HAE in the Future”, Dr. A. Banerji
Diamond Sponsors:
Shire
ViroPharma
Gold Sponsor:
CSL Behring
Silver Sponsor:
Dyax Corp.
Basic Sponsors:
BioCryst Pharmaceuticals
Salix Pharmaceuticals
Scientific Program Committee:
Prof. Marco Cicardi (Italy), Prof. Bruce Zuraw (USA), Prof. Konrad Bork (Germany), Prof. Connie Katelaris (Australia), Assoc. Prof. Marc Riedl (USA), Assoc. Professor Anette Bygum (Denmark), Dr. Teresa Caballero (Spain), and Dr. Anete S. Grumach (Brazil)
Keynote speakers:
1: “Taking care of patients from 1886 until 2012”, Prof. M. Cicardi
2: “HAE Global Advocacy: The key to better quality of life”, Mr. A. J. Castaldo
3: “Reimbursement of medication and handling regulatory authorities”, Mrs. B. Byskov Holm, EURORDIS
4: “The future of HAE patients. A physicians perspective”, Assoc. Prof. M. Riedl
Diamond Sponsors:
ViroPharma Incorporated
Shire Human Genetic Therapies
Gold Sponsors:
CSL Behring
Dyax/Sigma-Tau
Silver Sponsor:
Sobi –Swedish Orphan Biovitrum
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