The largest international gathering with a focus on HAE topics

Every second year HAEi welcomes HAE patients, caregivers, health care professionals, and industry representatives to the HAE Global Conference – the largest international gathering of its kind solely with a focus on HAE topics. At the conferences, the participants learn much more about HAE as they share experiences and knowledge in a friendly atmosphere conducted and driven by the patient community organized in HAEi.

The first HAE Global Conference took place in Copenhagen, Denmark in 2012, followed by Washington D.C., USA in 2014 and Madrid, Spain in 2016. Most recently the HAE Global Conference took place in Vienna, Austria in May 2018.

Dates: 14-17 May 2020
Venue: Frankfurt, Germany
Theme: Creating The Path to Better Health

2020 HAE Global Conference

Due to the situation regarding COVID-19 (novel coronavirus) HAEi leadership decided on 18 March 2020 to cancel the 2020 HAE Global Conference scheduled to take place 14-17 May 2020 in Frankfurt, Germany.

>> Read more about the cancellation and please be aware of some IMPORTANT information

Diamond Sponsor:

Gold Sponsors:
CSL Behring

Basic Sponsor:

Dates: 17-20 May 2018
Venue: Vienna, Austria
Theme: Take Control of HAE
Attendees: Approx. 735

Scientific Program Committee:
Prof. Marco Cicardi (Italy), Prof. Konrad Bork (Germany), Prof. Bruce Zuraw (USA), Prof. Anete S. Grumach (Brazil), Prof. Bruce Ritchie (Canada), Prof. Connie Katelaris (Australia), Prof. Henriette Farkas (Hungary), Dr. Hilary Longhurst (United Kingdom), Dr. Isao Ohsawa (Japan), Prof. Marc Riedl (USA), Prof. Markus Magerl (Germany), and Dr. Teresa Caballero (Spain).

Keynote speakers:
1: “Take Control: Don’t let HAE hold you back” – Mr. Y. Yamamoto
2: “Take Control of HAE with Real-World Data” – Prof. M. Cicardi
3: “Take Control of HAE – New Advances and Approaches” – Prof. A. Kaplan
4: “Take Control: Dealing with Public Authorities” – Minister of Health V. Filipce
5: “Take Control: The Science of Improving HAE Care” – Prof. B. Zuraw
6: “Take Control: The Science of Improving HAE Care” – Prof. K. Bork
7: “Take Control: The Science of Improving HAE Care” – Prof. M. Cicardi
8: “Take Control: Stay Motivated” – Mr. M. Anthony
9: “Take Control: Now and the future” – Prof. M. Riedl
10: “Take Control: Now and the future” – M. Magerl

Visit the highlight site for the 2018 HAE Global Conference here.

Diamond Sponsor:
CSL Behring

Gold Sponsors:
BioCryst Pharmaceuticals
Pharming Group

Basic Sponsor:
KalVista Pharmaceuticals


Dates: 19-22 May 2016
Venue: Madrid, Spain
Theme: Creative Advocacy for Expanding Access to Therapy
Attendees: Approx. 525

President of Honor:
Her Majesty Queen Letizia of Spain

Scientific Program Committee:
Prof. Marco Cicardi (Italy), Prof. Bruce Zuraw (USA), Prof. Konrad Bork (Germany), Prof. Markus Magerl (Germany), Prof. Marc Riedl (USA), Prof. Henriette Farkas (Hungary), Dr. Teresa Caballero (Spain), Dr. Hilary Longhurst (United Kingdom), Prof. Connie Katelaris (Australia), Prof. Anete Grumach (Brazil), Dr. Isao Osawa (Japan), and Dr. Sulaiman Al Gazlan (Saudi Arabia)

Keynote speakers:
1: “Improving HAE Diagnosis”, Prof. M. Cicardi
2. “Improving HAE Care”, Dr. T. Caballero
3: “Creative Advocacy for Expanding Access to Therapy”, Mr. A. J. Castaldo
4: “Experiences from Hemophilia and the Importance of Patient Advocacy”, Mr. M. Skinner
5: “Juggling with Genes for Cellular Modeling and Therapy of HAE”, Prof. J. Giehm Mikkelsen

Diamond Sponsor:

Gold Sponsors:
BioCryst Pharmaceuticals
CSL Behring

Silver Sponsor:
Pharming Group NV/Sobi

Basic Sponsor:
KalVista Pharmaceuticals


Dates: 15-18 May 2014
Venue: Washington D.C., USA
Theme: Setting New Standards
Attendees: Approx. 450

Scientific Program Committee:
Prof. Marco Cicardi (Italy), Prof. Bruce Zuraw (USA), Prof. Konrad Bork (Germany), Prof. Wolfhart Kreuz (Germany), Assoc. Prof. Marc Riedl (USA), Prof. Henriette Farkas (Hungary), Dr. Alejandro Malbrán (Argentina), Dr. Hilary Longhurst (United Kingdom), Dr. Andrea Zanichelli (Italy), and Dr. Mar Guilarte (Spain)

Keynote speakers:
1: “Because it’s Personal”, Mr. A. J. Castaldo
2: “HAE – A Scientific-Medical Perspective”, Dr. B. Zuraw
3: “HAE – A Historical Perspective”, Dr. M. Frank
4: “The Challenges Treating Children and Women with HAE”, Dr. H. Farkas
5: “HAE in the Future”, Dr. A. Banerji

Diamond Sponsors:

Gold Sponsor:
CSL Behring

Silver Sponsor:
Dyax Corp.

Basic Sponsors:
BioCryst Pharmaceuticals
Salix Pharmaceuticals


Dates: 17-20 May 2012
Venue: Copenhagen, Denmark
Theme: Advocacy and Awareness
Attendees: Approx. 350

Scientific Program Committee:
Prof. Marco Cicardi (Italy), Prof. Bruce Zuraw (USA), Prof. Konrad Bork (Germany), Prof. Connie Katelaris (Australia), Assoc. Prof. Marc Riedl (USA), Assoc. Professor Anette Bygum (Denmark), Dr. Teresa Caballero (Spain), and Dr. Anete S. Grumach (Brazil)

Keynote speakers:
1: “Taking care of patients from 1886 until 2012”, Prof. M. Cicardi
2: “HAE Global Advocacy: The key to better quality of life”, Mr. A. J. Castaldo
3: “Reimbursement of medication and handling regulatory authorities”, Mrs. B. Byskov Holm, EURORDIS
4: “The future of HAE patients. A physicians perspective”, Assoc. Prof. M. Riedl

Diamond Sponsors:
ViroPharma Incorporated
Shire Human Genetic Therapies

Gold Sponsors:
CSL Behring

Silver Sponsor:
Sobi –Swedish Orphan Biovitrum

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