Since the introduction of 16 May as the global HAE awareness day, HAEi has been organizing annual events to bring knowledge of this special day to people around the world.
In 2016 – in the weeks leading up to the HAE Global Conference in Madrid, Spain – HAEi introduced the HAE Global Walk and every year since then there has been a similar campaign for everyone interested in helping to spread HAE awareness.
The concept is simple: You can participate wherever you are. All you need to do is to walk any distance you like wherever you like – on your own or together with others – and then go to the campaign website at www.haeday.org and enter your walk. A small walk alone around your block, a weekend stroll with friends or an event with many participants – it’s all up to the one walking. Every step counts.
HAE Global Walk 2016
- Period: Late April to end May
- Steps: 12,510,628
- Kilometers: 9,624
- Miles: 5,980
- Participants: 1,193
- Countries: 34
Argentina, Australia, Austria, Belgium, Brazil, Canada, Cyprus, Czech Republic, Denmark, France, Germany, Greece, Honduras, Ireland, Italy, Kenya, Luxembourg, Macedonia, Malta, Mexico, Netherlands, New Zealand, Peru, Russia, Serbia, Spain, Sweden, Switzerland, Turkey, United Arab Emirates, United Kingdom, Uruguay, the United States of America, and Venezuela.
HAE Global Walk 2017
- Period: 1 April to end May
- Steps: 21,215,757
- Kilometers: 16,320
- Miles: 10,141
- Participants: 2,120
- Countries: 32
Argentina, Australia, Austria, Belarus, Brazil, Canada, Costa Rica, Czech Republic, Denmark, Finland, France, Germany, Greece, Hungary, Ireland, Japan, Kenya, Macedonia, Malta, Mexico, Netherlands, New Zealand, Norway, Peru, Puerto Rico, Slovakia, Spain, Sweden, Switzerland, United Arab Emirates, United Kingdom, and the United States of America.
HAE Global Walk 2018
- Period: 1 April to end May
- Steps: 54,609,008
- Kilometers: 42,007
- Miles: 26,102
- Participants: 4,262
- Countries: 37
Argentina, Australia, Austria, Belgium, Brazil, Bulgaria, Canada, Croatia, Cyprus, Denmark, Estonia, Finland, Germany, Hungary, Italy, Japan, Macedonia, Mexico, Morocco, Netherlands, Nicaragua, Norway, Peru, Poland, Serbia, Singapore, Slovakia, Slovenia, Spain, Sweden, Switzerland, Turkey, United Arab Emirates, United Kingdom, the United States of America, Uruguay, and Venezuela.
HAE related topics that might interest you
Global Access Program
Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
Regional Patient Advocates
Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized
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HAE Global Conference 2018
This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries