HAEi is committed to protecting your privacy, and that includes protecting any data you share with us. This policy explains what data we collect, what we do with your data and how we store your data. And finally what you can do if you have questions.

What data do we collect, and why?

Through the use of the pages on HAEi.org we may collect data from you. Sometimes the data we collect relates to you or identifies you. In this policy, data that relates to or identifies a natural person is defined as “personal data.” “Data” always includes personal data. Our goal is always to maintain the highest levels of privacy and security with your personal data, in keeping with the principles of the General Data Protection Regulation. We will only process your data when we consider it fair and lawful to do so.

We may collect the following data from you:

Information you provide by completing forms on our website – contact forms or opt-in for newsletter or sign up for events.

Records of your visits to the site, through cookies and otherwise (which records may include: traffic data; location information; logs; information about your computer or mobile device such as if applicable your IP address, operating system, mobile carrier, or device identifying information).

The data we collect is:

  • Name
  • Email
  • Address
  • Country
  • Category: (Patient/Care Giver, Physician, Nurse, Healt Care Professional, Pharma Company, Press/media/others

Sometimes the reason for collection will be obvious (such as when you give us your email address to allow us to contact you). When it is not, we will describe to you at the time of collection the purpose for collecting the data and if possible ask for your consent. To the extent possible, we anonymize data we collect from you.

We do not collect sensitive personal data.

Additionally, we do not intentionally collect personal data from anyone under the age of sixteen (16), and to the extent reasonably possible we take steps to verify that you are a legal adult when we collect data from you.

How do we use data we collect from you?

We use the data we collect from you to provide HAE related newsletters and responds to your interaction with contact points.

You can always unsubscribe from any email list by clicking the indicated link in the email.

Additionally, our website uses cookies to obtain your IP address, browser information, and information about the technology you use to interact with us by placing a piece of software into your browser. If you wish to change the way cookies work or remove them, you can do so by changing your browser’s preferences or settings. Doing so may impact the way the website appears or functions for you.

When applicable we analyze this information to improve our website, improve the products and services we provide, and to protect us and you from malicious web activity. We may share this information with third parties. Those third parties and their respective privacy policies are as follows:

Google Analytics (https://policies.google.com/privacy)

How long do we keep your data?

In general, we keep your data only as long as necessary to provide the service or product you requested.

You can always unsubscribe to the newsletter, and if needed you can ask us to destroy your data at any time.

Where is your data stored?

Our webserver is located in Germany (website) and our mailservices – MailChimp is located in The United States.

How do we ensure your data is secure?

We take a number of steps to ensure that data we collect is protected from unauthorized access, alteration, disclosure, or destruction, including the following:

  • We regularly review our data collection, storage, and processing practices, including physical and electronic security measures.
  • We restrict access to your personal data to only those employees, agents, and business partners who need access to it in order to deliver requested products and services.
  • All of our employees and business partners are subject to strict confidentiality and nondisclosure obligations, the violation of which may result in termination and/or liability.
  • All of our employees receive regular appropriate training, including training in information privacy suitable to their respective fields and disciplines.

Do we share your data?

We do not share your data with third party.

Sometimes we may be required to share your data for specific purposes. These purposes may include:

  • In order for us to comply with a legal obligation or to detect, prevent, or otherwise address fraud or crime
  • In order to detect or correct technical or security issues
  • In order to apply or enforce our Terms and Conditions, or to protect the rights, property, or safety of us, you, our customers, our business partners, others, or the public
  • In order to maintain continuity of service in the event that we sell or liquidate some or all of our business or assets
    Additionally, our website may contain links to our business partners or other third parties. Please understand that those websites have their own policies, and we do not accept any responsibility or liability for your use of those websites or any products or services available there.

Are you required to supply us with your personal data?

Sometimes we have to have your personal data in order to interact with you. Supplying some personal information is a prerequisite to sign up for an event, ask specific questions, opt-in for newsletter. If you do not provide the requested data in those instances, you will not be able provide the given service from us.

What rights do you have with respect to your personal data?

You have a right to know if we have any of your personal data and to have access to that data, and you have the right to have any incorrect personal data corrected. If you have given us consent to have or use your data, you have the right to withdraw that consent at any time.

You have the right to lodge a complaint with a supervisory authority. Which authority is appropriate varies depending on your jurisdiction. If you wish to lodge a complaint, we can assist you in determining where the complaint should be lodged.

You may contact us at any time, to exercise any of these rights. Understand that sometimes we will have to have your data in order to interact with you, and so exercising some or all of these rights might impact your ability to use our website or our services.

What if you have further questions?

If you have any additional questions about our privacy practices, please contact our data representative Jørn Schultz-Boysen at gro.ieah@noitcetorpatad