HAE Global Conference 20202020-09-29T18:06:46+02:00

2020 HAE VIRTUAL GLOBAL CONFERENCE

2020 HAE Virtual Global Conference now open!

While COVID-19 prevented us from meeting in person, the “can-do” spirit of the HAE global community has inspired transforming this widely anticipated bi-annual conference into an exciting virtual event.

Welcome to the 2020 HAE Virtual Global Conference, where you will find sessions that are educational, interesting, motivating, and fun.

The 2020 HAE Virtual Global Conference is dedicated to the memory of HAEi’s founder and beloved HAE physician/researcher Prof. Marco Cicardi. We honor the memory of this special person who spent his life conducting research and providing clinical care that has dramatically improved HAE patient’s quality of life.

Warm regards,
Your HAEi Team

2020 HAE Virtual Global Conference Welcome and Opening Message from Tony and Henrik

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HAEi

RPAs

Medical

Exhibits

Scientific

Youngsters

About HAE International

The videos below will introduce you to The HAEi Story, our Regional Patient Advocacy program, and the HAEi Global Access Program.

The HAEi Story

HAEi’s Regional Patient Advocates

HAEi Global Access Program

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HAEi

RPAs

Medical

Exhibits

Scientific

Youngsters

Regional Patient Advocates

Meet our Regional Patient Advocates (RPA), who form the backbone of HAE International. Chief RPA Fiona Wardman gives an overview of the program and each RPA introduces themselves and talks about what’s going on in their regions. Also, the RPAs reveal some interesting things about themselves as they play a fun game of “Never Have I Ever.”

Get to know your Regional Patient Advocate

Get to know the RPA for South America & Mexcico – Fernanda de Oliveira Martins

Get to know the RPA for Central America & Caribbean – Javier Santana

Get to know the RPA for Mediterranean & North Africa – Maria Ferron

Get to know the RPA for Central and Eastern Europe & Middle East – Michal Rutkowski

Get to know the RPA for South Eastern Europe – Natasa Angjeleska

Get to know the RPA for Sub-Sahara Africa – Patricia Karani

Get to know the RPA for Asia & Pacific – Fiona Wardman

Regional Patient Advocate group discussion

“Never have I ever” with the HAEi Regional Patient Advocates

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HAEi

RPAs

Medical

Exhibits

Scientific

Youngsters

Medical Presentations

Professor Marc Riedl from the Unites States and Professor Markus Magerl from Germany deliver their always popular presentations. Prof. Riedl covers “HAE symptom recognition, diagnosis (including HAE-normal C1NH), and current treatments,” and Prof. Magerl discusses “HAE treatment plans, Patient quality of life, and the future for HAE therapies and research.”

Also, Prof. Marcus Maurer presents the features and benefits, and answers questions about the exciting roll out of GA2LEN/HAEi Angioedema Centers of Reference and Excellence (ACARE).

Prof. Marc Riedl

Creating the path to better health “HAE Symptom recognition, diagnosis, and current treatments”

Prof. Markus Magerl

Creating the path to better health “Monitoring the HAE treatment plan, Patient Quality of Life, as well as Future Therapies and Research”

Prof. Marcus Maurer

Answering questions about the exciting roll out of GA2LEN/HAEi Angioedema Centers of Reference and Excellence (ACARE).

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HAEi

RPAs

Medical

Exhibits

Scientific

Youngsters

Exhibits

Join us in a virtual visit to the exhibit booths of our pharmaceutical company sponsors.

–––––  Diamond sponsors  –––––

Virtual Exhibit Visit – Diamond Sponsor BioCryst

Virtual Exhibit Visit – Diamond Sponsor Takeda

–––––  Gold sponsors  –––––

Virtual Exhibit Visit – Gold Sponsor CSL Behring

Virtual Exhibit Visit – Gold Sponsor Pharming

–––––  Basic sponsors  –––––

Virtual Exhibit Visit – Basic Sponsor KalVista

Virtual Exhibit Visit – Basic Sponsor Pharvaris

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HAEi

RPAs

Medical

Exhibits

Scientific

Youngsters

Scientific

Our Chief Specialist Projects & Research Debs Corcoran opens the Virtual Scientific Track together with Professor Bruce Zuraw from The United States and Professor Konrad Bork from Germany.

2020 HAE Virtual Global Conference Opening Scientific Track with Debs Corcoran, Prof. Konrad Bork and Prof. Bruce Zuraw

Abstract presentations

Below you will find abstract presentations from the Scientific Track under two topics:

1) Determining better pathways to diagnosis and management of HAE

2) Creating a path to normalisation of HAE patients’ lives.

You can also read about the abstracts in the lay summaries or the abstract book

>> Read all abstracts in abstract book

>> Read the lay summaries of all abstracts

–––––  Topic 1  –––––

Determining better pathways to diagnosis and management of HAE

Presentation by Dr. Ankur Jindal

Presentation by Dr. Ankur Jindal

Presentation by Prof. Henriette Farkas

Presentation by Natália Gabriel

Presentation by Irina Guryanova

Presentation by Irina Guryanova

Presentation by Alberto López Lera

Presentation by Dr. David Loli-Ausejo

Presentation by Dr. Anna Valerieva

Presentation by Dr. Danny Cohn

Presentation by Dr. Lilian Nass

–––––  Topic 2  –––––

Creating a path to normalisation of HAE patients’ lives

Presentation by Chrystal Lewis

Presentation by Prof. Vesna Grivcheva-Panovska

Presentation by Prof. Marcus Maurer

Presentation by Dr. Emel Aygören-Pürsün

Presentation by Ekaterina Shutkova

Presentation by Jacquie Badiou

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HAEi

RPAs

Medical

Exhibits

Scientific

Youngsters

Youngsters

Our Youngsters, the future of HAEi, share a video about their most recent accomplishments and projects. They also present their 2020 hae day :-) campaign, and their contributions to a digital poster project.

Youngsters’ hae day :-) campaign for Social Media with personal quotes

For the 2020 HAE Global Conference HAEi Youngsters were invited to participate in a Poster Project.

The idea was that the HAE youngsters – either by themselves or in groups of max 3 people – would work with their Member Organization or Regional Patient Advocate in creating a digital poster about HAE in their country/region. HAEi provided pre-designed templates to choose from to match the youngsters’ vision for design.

We are thrilled to present the posters created by the youngsters right here.

Argentina

Poster by
Nicolas Gabriel Ricci
Laureana Di Pietro

North Macedonia

Poster by 
Dejan Angjeleski
Ognen Jankovski
Sofija Popovska

Greece

Poster by
Eirini Elisavet Giannakidi

Brazil

Poster by
Pedro Araujo De Carvalho

Brazil

Poster by
Anna Bianchi
Giulia Bianchi
Isabella Bianchi

The United States

Poster by
Isabel Brunkan

Want to know more about the HAEi Youngsters’ acitivities? Visit their website :-)

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HAEi

RPAs

Medical

Exhibits

Scientific

Youngsters

We thank the sponsors of the 2020 HAE Global Conference

DIAMOND SPONSORS

GOLD SPONSORS

SILVER SPONSORS

BASIC SPONSORS

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language