Women with HAE

Medical science is finally beginning to appreciate the unique ways women experience health conditions. Whether it is the way women experience pain differently, through to genetic illnesses like HAE, it is vital to have tailored advice and knowledge for women. For that reason, and with thanks to the US Hereditary Angioedema Association (US HAEA), HAEi is delighted to introduce a brand-new guide called ‘Women with HAE’.

The guide focuses on the unique challenges faced by women with HAE, especially as studies indicate that women experience more severe symptoms than men.

‘Women With HAE’ covers three life stages: childhood, family planning and pregnancy, and menopause and aging:

• Women with HAE
• HAE and the female body
• Pediatrics through puberty: The female child and HAE
• FAQ: From a child’s or a teenager’s perspective
• FAQ: From a parent or adult female perspective
• Pregnancy and family planning with HAE
• FAQ: From a pregnant woman’s perspective
• Resources for family planning and pregnancy
• FAQ: Menopause and aging

The patient guide is in English, and the plan is to introduce more languages over time – see the list of translated versions below.

If you want to translate the ‘Women with HAE’ booklet into your own language, reach out to your Regional Patient Advocate, who can help you with a template for translation.

>> Download and read the guide ‘Women with HAE’ (pdf) – in English

>> Download and read the guide ‘Kobiety ze zdiagnozowanym HAE’ (pdf) – in Polish

HAEi thanks the US HAEA for their significant contribution to the content of the ‘Women with HAE’ guide.