Women with HAE
Medical science is finally beginning to appreciate the unique ways women experience health conditions. Whether it is the way women experience pain differently, through to genetic illnesses like HAE, it is vital to have tailored advice and knowledge for women. For that reason, and with thanks to the US Hereditary Angioedema Association (US HAEA), HAEi is delighted to introduce a brand-new guide called ‘Women with HAE’.
The guide focuses on the unique challenges faced by women with HAE, especially as studies indicate that women experience more severe symptoms than men.
‘Women With HAE’ covers three life stages: childhood, family planning and pregnancy, and menopause and aging:
- Women with HAE
- HAE and the female body
- Pediatrics through puberty: The female child and HAE
- FAQ: From a child’s or a teenager’s perspective
- FAQ: From a parent or adult female perspective
- Pregnancy and family planning with HAE
- FAQ: From a pregnant woman’s perspective
- Resources for family planning and pregnancy
- FAQ: Menopause and aging
The patient guide is in English, and the plan is to introduce more languages over time – see the list of translated versions below.
If you want to translate the ‘Women with HAE’ booklet into your own language, reach out to your Regional Patient Advocate, who can help you with a template for translation.
>> Download and read the guide ‘Women with HAE’ (pdf) – in English
>> Download and read the guide ‘(HAE) النساء المصابات بالوذمة الوعائية الوراثية’ – in Arabic
>> Download and read the guide ‘ԺԱՌԱՆԳԱԿԱՆ ԱՆԳԻՈԱՅՏՈՒՑՈՎ (ԺԱԱ) ԿԱՆԱՅՔ’ (pdf) – in Armenian
>> Download and read the guide ‘ŽENY S HAE’ – in Greek
>> Download and read the guide ‘Kobiety ze zdiagnozowanym HAE’ (pdf) – in Polish
>> Download and read the guide ‘Mulher com AEH’ (pdf) – in Portuguese
>> Download and read the guide ‘ŽENSKE S HAE’ (pdf) – in Slovenian
>> Download and read the guide ‘Mujeres con AEH’ (pdf) – in Spanish
HAEi thanks the US HAEA for their significant contribution to the content of the ‘Women with HAE’ guide.
HAE related topics that might interest you
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Advocacy Academy
Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
HAE Companion app
Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians
Stay tuned – sign up for our newsletter
BE THE FIRST TO KNOW ABOUT HAE NEWS, TREATMENTS, EVENTS AND RELATED TOPICS
