Join the HAEi page on Facebook
Get updated on HAE with the latest news and articles on medication, research and much more important information on HAE.

Join the HAEi Youngsters’ group on Facebook
Stay in touch with the HAEi Youngsters’ Community – join their group on Facebook.

Join the HAEi group on Facebook
Share your story, your questions or your concerns and get inspiration and support from fellow patients and others with interest in HAE.

Follow HAEi on X (Twitter)
Join our discussions about HAE topics. Use #HAEi, #hereditaryangioedema or #haeday when twitting.

Connect and stay tuned on LinkedIn
For more corporate news, follow HAEi on LinkedIn. Make sure to be the first to get HAE related news posted on our LinkedIn profile.

Follow us on Instagram
Get updates about HAE news and events on our Instagram page.

Follow the HAEi Youngsters’ Community on Instagram
Get updates from the HAEi Youngsters’ Community on their Instagram page.

“I have been a scout since my teens, and I have tried things like hiking, camping, cycling, exploring caves, kickboxing, and kungfu. Doing this I have never asked for special treatment and I have never acted as if I was in any way disabled or having a problem.”

Rashad Matraji, United Arab Emirates

“I’m a lot more optimistic than I was 40 years ago. I’ll be the first who will test the latest medicine at the age of 100!”

Arianna Kitzinger, Hungary

“Although HAE does have a big impact on my day-to-day activities, I am determined to not let it stop me doing the things I love and leading a full and active life.”

Rachel Annals, United Kingdom

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life