Social media2019-05-11T07:56:08+02:00

SOCIAL MEDIA

Join the HAEi page on Facebook
Get updated on HAE with the latest news and articles on medication, research and much more important information on HAE.

Join the HAEi group on Facebook
Share your story, your questions or your concerns and get inspiration and support from fellow patients and others with interest in HAE.

Follow HAEi on Twitter
Join our discussions about HAE topics. Use #HAEi, #hereditaryangioedema or #haeday when twitting.

Connect and stay tuned on LinkedIn
For more corporate news, follow HAEi on LinkedIn. Make sure to be the first to get HAE related news posted on our LinkedIn profile.

See our videos on YouTube
On the HAEi YouTube channel you will find a number of short videos on HAE.

“Although HAE does have a big impact on my day-to-day activities, I am determined to not let it stop me doing the things I love and leading a full and active life.”

Rachel Annals, United Kingdom

“I’m a lot more optimistic than I was 40 years ago. I’ll be the first who will test the latest medicine at the age of 100!”

Arianna Kitzinger, Hungary

“I have been a scout since my teens, and I have tried things like hiking, camping, cycling, exploring caves, kickboxing, and kungfu. Doing this I have never asked for special treatment and I have never acted as if I was in any way disabled or having a problem.”

Rashad Matraji, United Arab Emirates

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

Stay tuned – sign up for our newsletter

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language