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“Although HAE does have a big impact on my day-to-day activities, I am determined to not let it stop me doing the things I love and leading a full and active life.”
Rachel Annals, United Kingdom
“I have been a scout since my teens, and I have tried things like hiking, camping, cycling, exploring caves, kickboxing, and kungfu. Doing this I have never asked for special treatment and I have never acted as if I was in any way disabled or having a problem.”
Rashad Matraji, United Arab Emirates
“I’m a lot more optimistic than I was 40 years ago. I’ll be the first who will test the latest medicine at the age of 100!”
Arianna Kitzinger, Hungary
HAE related topics that might interest you
Global Access Program
Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
Regional Patient Advocates
Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized
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This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries
HAEi hosted websites
Hosting of your national website or help for you to create a new website – naturally all in your native language
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