SOCIAL MEDIA
“I have been a scout since my teens, and I have tried things like hiking, camping, cycling, exploring caves, kickboxing, and kungfu. Doing this I have never asked for special treatment and I have never acted as if I was in any way disabled or having a problem.”
“I’m a lot more optimistic than I was 40 years ago. I’ll be the first who will test the latest medicine at the age of 100!”
“Although HAE does have a big impact on my day-to-day activities, I am determined to not let it stop me doing the things I love and leading a full and active life.”
HAE related topics that might interest you
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Advocacy Academy
Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
HAE Companion app
Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians
Stay tuned – sign up for our newsletter
BE THE FIRST TO KNOW ABOUT HAE NEWS, TREATMENTS, EVENTS AND RELATED TOPICS
