HAEi Virtual Regional Workshops

Regional Workshops Going Virtual

HAEi organizes advocacy events dedicated to patients, caregivers, and physicians working in the areas of HAE awareness, diagnosis, treatment, and access and reimbursement of HAE medicine. Due to the coronavirus pandemic, our last 4 Regional Workshops were held virtually. We asked each Region’s Member Organizations for feedback after their Virtual Workshop and are delighted to report that our virtual workshops were a huge success even though we couldn’t meet in person!

Using the links below, you can explore the videos recorded by the advocacy leaders and experts in the 4 Virtual Regional Workshops.

Our Member Organizations feedback

96%

96% agreed or strongly agreed that their regional workshop provided specific ideas they could use in advocacy and provided information useful to the needs of their HAE community

96%

96% would watch and would recommend that their members watch Regional Workshop videos in the future

100%

All of the tracks were rated useful and Member Organizations found the videos from experts to be especially useful

2021 HAEi Virtual Regional Workshop Middle East, North Africa and Sub Sahara Africa

Launching date: 1 October 2021, 12.00 CET

Tracks: Welcome, HAEi, Member Organizations, Youngsters, Experts

All videos have been recorded in the native language of the speaker – English, French or Arabic – and are subtitled in these three languages

>> Visit and take part in the Virtual Workshop

2021 HAEi Virtual Regional Workshop South America & Mexico and Central America & Caribbean

Launching date: 25 March 2021, 14.00 CET

Tracks: Welcome, HAEi, Member Organizations, Youngsters, Experts

All videos have been recorded in the native language of the speaker – Spanish, Portuguese or English – and are subtitled in these three languages

>> Visit and take part in the Virtual Workshop

2020 HAEi Virtual Regional Workshop Central Eastern Europe & Benelux

Launching date: 12 December 2020, 12.00 CET

Tracks: Welcome, HAEi, Patients, Youth/children, Experts

All recordings have translation and subtitles in English and languages of the region – 11 in total: English, Armenian, Czech, Dutch, French, Georgian, Hungarian, Polish, Russian, Lithuanian, Slovak

>> Visit and take part in the Virtual Workshop

2020 HAEi Virtual Regional Workshop South Eastern Europe

Launching date: 13 November 2020, 12.00 CET

Tracks: Welcome, HAEi, Patients, Youth/children, Physicians, Experts

All recordings have translation and subtitles in English and languages of the region – 8 in total: English, Macedonian, Turkish, Serbian, Romanian, Greek, Bulgarian and Albanian

>> Visit and take part in the Virtual Workshop

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life