Welcome to the virtual workshop
In the videos below representatives from HAE International and our RPA, Michal Rutkowski welcome you to the workshop. We also invite you to view a video with highlights of last year’s workshop in Central Eastern Europe & Benelux.
Welcome message from HAEi’s Regional Patient Advocate Michal Rutkowski
Welcome messages from HAE International’s Chief RPA Fiona Wardman
Welcome messages from HAE International’s President & CEO Anthony J. Castaldo and Executive Vice President & COO Henrik Balle Boysen
Highlights of last year’s regional workshop in Warsaw, Poland
About HAE International
In these videos you can learn more about HAEi’s Decentralized Approach, how HAEi is Building the Foundation for a Better Future and how things are progressing with the new joint venture between HAEi and GA2LEN to establish the GA2LEN/HAEi Angioedema Centers of Reference and Excellence – or in short ACARE.
HAEi’s Decentralized Approach by Chief RPA Fiona Wardman
Building the Foundation for a Better Future by HAE International’s President & CEO Anthony J. Castaldo and Executive Vice President & COO Henrik Balle Boysen
HAEi Resources by RPA Michal Rutkowski
ACARE by HAE International’s President & CEO Anthony J. Castaldo and Prof. Dr. Marcus Maurer
In this track four leading experts give their presentations about the background of HAE, diagnosis, treatment recommendations, and pregnancy and children with HAE.
‘Background on HAE’ by Prof. Marc Riedl, MD, MS
‘Correct diagnosis approach (blood test and genetics)’ by Marcin Stobiecki, MD, PhD
‘Recommended HAE therapies: On-demand treatment & long term prophylaxis’ by prof. Markus Magerl, MD
‘Pregnant women and children with HAE’ by Henriette Farkas, MD, PhD, DSc
In these videos you can learn more about the landscape and the work being done by HAEi ‘s Member Organizations in the countries within the regions.
HAE Belarus: Interview with President Iryna Ausianik and Team Member Viktar Lebedz
HAE Czech Republic: Interview with Team Member Adam Kolar
HAE Georgia: Interview with Prof. Maia Gotua, MD, PhD
HAE Hungary: Interview with General Secretary Zoltan Maros
HAE Kazakhstan: Interview with Patient Organisation Coordinator Sergey Morozov
HAE Lithuania: Interview with Prof. Laura Malinauskiene, MD, PhD
HAE Netherlands: Interview with President Jan van Leeuwen
HAE Russia: Interview with President Elena Bezbozhnaya and Legal Advisor Ilia Ushankov
HAE Ukraine: Interview with President Olena Mykal
Enjoy the presentation of all the exiting activities of the HAEi’s Youngsters presented by Nanna Boysen, a member of the HAEi Youngsters’ Advisory Board.
HAEi Youngsters Nanna Boysen from Denmark presents the activities of the HAEi Youngsters’ Community
HAE related topics that might interest you
Global Access Program
Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
Regional Patient Advocates
Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized
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HAE Global Conference 2018
This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries