NEWS
Astria to Present at Upcoming WSAAI Annual Scientific Session
Astria Therapeutics to Present at Upcoming Western Society of Allergy, Asthma & Immunology Annual Scientific Session Astra Therapeutics has announced today announced that it will present quality of life results from the Phase 1b/2 [...]
Julie Kim will succeed Christophe Weber as CEO of Takeda in June 2026
Julie Kim will succeed Christophe Weber as CEO of Takeda in June 2026 Takeda announced that its Board of Directors made the decisions unanimously to appoint Julie Kim, currently President of Takeda’s US Business [...]
News from Serbia
Symposium on Rare Diseases: Advancing knowledge and treatment options From November 15 to 17, the Fourth Symposium on Rare Diseases took place in Divčibare, Serbia, organized by the Serbian Association for Preventive Pediatrics (UPPS). [...]
News from Czech Republic
HAE Junior marks its 5th anniversary with a special digital campaign HAE Junior patient organization announces the launch of a birthday digital campaign to celebrate 5 years since registration. Together, we want to remember [...]
News from Cuba
My greetings from Cuba with the desire to continue being an active part of the great HAEi family. 2024 has been a fruitful year for HAE Cuba. We are a young organization that wants [...]
News from Argentina
2024 was a challenging yet very productive year for our HAE community. Undoubtedly highlighted by two wonderful international events, the 2024 HAEi Regional Conference Americas and the 2024 HAEi Global Leadership Workshop and ACARE Global [...]
News from UK
As the year comes to a close, we are still extremely busy liaising with the NHS, medical professionals, and pharmaceutical companies to support our day-to-day work for HAE patients and their families. We have [...]
News from Brazil
Abranghe was present at several events during the year – see images below Participation in the LI Brazilian Congress of Allergy and Immunology in the city of Salvador-BA. Our stand promoted the work of [...]
News from Australia and New Zealand
A Year of Growth, Connections, and Inspiration: HAE Australasia's 2024 Highlights and Goals for 2025 It’s been a fantastic year for HAE Australasia, filled with exciting developments, new faces, and powerful connections that have [...]
News from Bangladesh
Bangladesh has been a member country since 2019. Angioedema Bangladesh is the official name of the member organization. The patient group now has 25 members. As our roadmap, we are focusing on educating the [...]
News from India
First in-person patients association meeting of HAEIPA at Hyderabad, India Hi, I want to send a write-up from India about patient association activities. After getting the HAE India Patients Association registered a few months [...]
News from Hungary
On November 30, 2024, the first face-to-face club meeting of the Hungarian Patient Organization after COVID-19 was held. The location was the clinic of the Semmelweis University of Medicine. There are 220 registered patients [...]
News from Indonesia
Dear HAE community, HAE Indonesia has made a few small strides in 2024 towards better awareness for HAE in Indonesia. To share our experience and also to learn about others’ experiences, I met up [...]
News from Canada
We concluded our Global Perspectives #3 Newsletter by mentioning our October Patient Information Update. We can now report that on Saturday, October 19th, Michelle Cooper (President), Kerstyn Lane (Regional Director), Daphne Dumbrille (COO), and [...]
News from Japan
First of all, 2024 marked the 10th anniversary of the HAEJ's establishment! It's hard to believe that it's already been 10 years since our launch. This year has been a significant one for HAEJ, [...]
News from Denmark, Norway, and Sweden
On 30 November, HAE Scandinavia held a meeting with patients and caregivers in Aalesund, Norway, with Norwegian members. The discussion focused on living with HAE across generations, the significant progress in HAE treatments, and [...]
News from Netherlands
It’s hard to believe that we’re already wrapping up 2024. Time seems to have flown by. So many great things have happened since January. We’d love to share a few highlights with you. At [...]
News from South Africa
HAE SA 2024 YEAR IN REVIEW Our organization has had a busy, productive year raising awareness for HAE!! In the run-up to Rare Disease Day 2024, we released a series of 6 patient video [...]
News from USA
A Milestone Year for the HAEA Community: 2024 Year in Review As the year draws close, we reflect on the collective success of our HAEA community in 2024. This year was marked by progress, [...]
News from Taiwan
This year, in addition to holding lectures in the North, Central, and, South, East Districts like last year and 2 patient meetings. Although not many patients participated in the event, we can see that [...]
News from Singapore
There were 2 key developments for HAE Singapore and HAE patients in Singapore. Firstly, a dedicated HAE Clinic was set up in the early part of 2024 at Tan Tock Seng Hospital. The clinic [...]
News from Switzerland
3 Highlights from 2024 1: Patient Meeting On Saturday, April 20, 2024, we held our HAE patient meeting at Zurich Airport These HAE experts will be happy to answer your questions in a panel [...]
News from Mexico
Highlights of 2024 On October 30, 2023, the Chamber of Deputies of Mexico, by decree, declared May 16 of each year “National Hereditary Angioedema Day”. For this reason, May 16, 2024, was officially celebrated [...]
Intellia announces first patient dosed in the HAELO Phase 3 study of NTLA-2002, an investigational treatment for HAE
Intellia Therapeutics announces first patient dosed in the HAELO Phase 3 study of NTLA-2002, an investigational in vivo CRISPR gene editing treatment for hereditary angioedema Intellia Therapeutics announced that the first patient has been [...]
KalVista announces orphan drug designation and nda submission for sebetralstat in Japan for HAE
KalVista announces orphan drug designation and nda submission for sebetralstat in Japan for hereditary angioedema KalVista Pharmaceuticals announced that Japan’s Ministry of Health, Labour and Welfare (MHLW) has granted sebetralstat Orphan Drug Designation. The [...]
Stay Tuned
Be the first to know what’s going on in the world of HAE
"*" indicates required fields
HAE related topics that might interest you
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Advocacy Academy
Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
HAE Companion app
Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians
Stay tuned – sign up for our newsletter
BE THE FIRST TO KNOW ABOUT HAE NEWS, TREATMENTS, EVENTS AND RELATED TOPICS