UK MHRA Approves First Oral, Once-daily Therapy

May 13, 2021|HAEi News|

The United Kingdom’s Medicines and Healthcare products Regulatory Agency (MHRA) has granted marketing authorization for oral, once-daily Orladeyo (berotralstat) for the routine prevention of recurrent HAE attacks in HAE patients 12 years and older. “HAE UK [...]

HAEGARDA is now available in all of Canada

May 11, 2021|HAEi News|

HAEGARDA (C1 Esterase Inhibitor Subcutaneous [Human]) from CSL Behring - a subcutaneous C1 esterase inhibitor (C1-INH) therapy indicated for routine prevention of HAE attacks in adolescent and adult patients - is now available in all of [...]

Positive results from Ionis’ HAE program

May 6, 2021|HAEi News|

Ionis Pharmaceuticals, Inc. reports its financial results for the first quarter of 2021 and recent business highlights. CEO Brett P. Monia, Ph.D., says: "In the first quarter, we delivered positive results from our IONIS-PKK-LRx program, demonstrating [...]

Regulatory Update for Clinical Trial

April 20, 2021|HAEi News|

The U.S. Food and Drug Administration (FDA) has notified KalVista Pharmaceuticals, Inc. in a letter that it has placed a clinical hold on the proposed Phase 2 clinical trial of KVD824. KVD824 is KalVista’s oral product [...]

News from Spain

April 6, 2021|Europe, Spain|

From President Sarah Smith, HAE Spain (AEDAF) Activities: We do not plan to hold any face-to-face events in 2021 due to the ongoing pandemic. We are involved in various activities, including a documentary for [...]

News from Serbia

April 6, 2021|Europe, Serbia|

From Ivana Golubović, HAE Serbia 2020 has been a challenging year for our HAE community. Delays in the supply of our medicines, limited access to hospital care, etc. However, it also gave me the [...]

News from France

April 6, 2021|Europe, France|

In February, HAE France (AMSAO) presented a video conference meeting with the adult and pediatric team from the angioedema reference center CREAK in Grenoble. The event was intended for children or adolescents and their [...]

News from Canada

April 6, 2021|Canada, North America|

We made it through 2020 and excited to welcome 2021! Despite dealing with COVID-19 and all that it throws at us, thankfully we have some great achievements to share.  Earlier we mentioned that we [...]

News from Hungary

April 6, 2021|Europe, Hungary|

HAE Hungary held the first-ever online event on 30 November 2020 with about 20 participants including patients, physicians, and representatives of the pharmaceutical companies Takeda and ExCEEd Orphan representing Pharming. It was a great [...]

News from USA

April 6, 2021|North America, United States of America|

From Digital & Social Media Manager Ianice Viel, US HAEA hae day :-) 2021: The US HAEA is excited to announce our plans for the celebration of hae day :-) 2021. We are thrilled [...]

News from Russia

April 6, 2021|Central Asia, Russia|

From HAE Russia Pandemic spreading affected the plans of HAE Russia. Many events had to be switched to online. However, even remotely, we actively helped patients with HAE to deal with legal issues, organizing [...]

News from Bulgaria

April 6, 2021|Bulgaria, Europe|

From Chairman Danail Dimov, HAE Bulgaria The next important goal HAE Bulgaria wants to achieve is to improve the access of HAE patients to plasma protein therapies and in particular to HAE prophylaxis. Our [...]

News from Kenya

April 6, 2021|Africa, Kenya|

In February, HAE Kenya President Patricia Karani appeared on NTV Kenya, the country’s number one urban station owned by East Africa’s largest media house the Nation Media Group. The program focused on plasma, critical [...]

News from the United Kingdom

April 6, 2021|Europe, United Kingdom|

From CEO Laura Szutowicz, HAE UK Groundhog Day! For those of you not familiar with the expression, the day is 2 February, when the groundhog is said to come out of its hole at [...]

ACARE in action

April 5, 2021|HAEi News|

The network of ACARE centers continues to grow despite the many challenges created by COVID-19.  ACARE is a joint venture with GA²LEN and HAEi that fulfills HAEi’s longstanding goal of establishing a worldwide network [...]

Emergency room posters help raise awareness

April 5, 2021|HAEi News|

HAEi friends in many countries cite the need for significant improvement in emergency room care for people with HAE. Because education is the key to better emergency care, HAEi has prepared a poster with [...]

Launch of third virtual regional workshop

April 5, 2021|HAEi News|

After the successful virtual regional workshops in South Eastern Europe and Central Eastern Europe and Benelux, HAEi is now focused on Latin America. “The Latin American workshop is the first one for this region [...]

HAEi establishes Regional Medical Advisory Panels

April 5, 2021|HAEi News|

The HAEi Regional Medical Advisory Panel initiative is the next step in a decentralized approach to serve the global HAE community. The objective of the Regional Medical Advisory Panels (RMAP) is to obtain the [...]

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