News from Asia Pacific

April 7, 2020|HAEi News, India, Singapore|

From Regional Patient Advocate Fiona Wardman I attended and presented at the Third Scientific Congress of APSID during February in Chandigarh, India. While there, I met with patients and the administrative team from HAE India. [...]

News from Sub-Sahara Africa

April 7, 2020|HAEi News, Kenya, Rwanda, Zimbabwe|

From Regional Patient Advocate Patricia Karani I am involved in an exciting HAE International pilot project in Rwanda with a dedicated doctor to locate patients with HAE who have been misdiagnosed. I have established contact [...]

Global Perspectives #1 2020 out now

April 6, 2020|HAEi News, Newsletters|

The first 2020 issue of the HAE International magazine Global Perspectives – your ultimate source of HAE information globally – is now out. This time you will, among many other items, find articles on [...]

Increased demand for Ruconest

April 4, 2020|HAEi News|

Sijmen de Vries, CEO and Chairman of  Pharming Group N.V. in the 2019 Annual Report: "During 2019, we have seen an increase both in patients who are badly affected by HAE and those with less [...]

Let’s join for 2020 HAE Global Walk

April 1, 2020|HAEi News|

Today is 1 April 2020 – and that marks the beginning of this year’s HAE Global Walk. Due to coronavirus COVID-19, the population in a large number of countries around the world experience harsh limitations [...]

Information about COVID-19 and angioedema

March 24, 2020|HAEi News|

Dear HAEi Friends, The health and well-being of our global community is HAEi’s top priority. With that in mind, we asked our medical experts to provide their best thinking regarding the COVID-19 virus health [...]

CANCELLATION: 2020 HAE Global Conference

March 18, 2020|HAEi News|

The health and well-being of everyone in the HAE community is of paramount importance to us! As communicated before, HAE International has been carefully monitoring the developing situation regarding COVID-19 (novel coronavirus). HAEi leadership has been meeting on a [...]

COVID-19 (novel coronavirus)

March 12, 2020|HAEi News|

The HAE International team continues to meet around the clock and carefully monitor the developing global situation regarding the COVID-19 (novel coronavirus), which now includes the declaration of a pandemic by the World Health Organization. [...]

COVID-19 (novel coronavirus)

March 7, 2020|HAEi News|

As mentioned in the previous communication of 27 February 2020, HAE International is carefully monitoring the developing global situation regarding COVID-19 (novel coronavirus) to the extent that it could affect our upcoming 2020 HAE Global Conference [...]

BioCryst on the way to oral HAE treatment

March 5, 2020|HAEi News|

Announcing the financial results for the full year 2019, BioCryst Pharmaceuticals, Inc. President and CEO Jon Stonehouse says that “2020 is off to a strong start, with NDAs accepted and approvals lined up later this year in [...]

BioMarin expects to begin HAE studies in 2020

February 29, 2020|HAEi News|

BioMarin Pharmaceutical Inc., a global biotechnology company that develops and commercializes therapies for people with serious and life-threatening rare diseases and medical conditions, has announced its financial results for 2019. From the Key Program Highlights: [...]

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