News2019-07-09T13:26:36+02:00

NEWS

News from Slovenia

October 12, 2019|Slovenia|

An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics [...]

News from North Macedonia

October 12, 2019|North Macedonia|

On 30 August 2019, an annual charity party with more than 200 attendees was organized in Skopje, North Macedonia. The party was hosted by Ms. Nora Buklevska and Mr. Petar Kajevski – two enthusiasts who strive to bring about [...]

News from El Salvador

October 12, 2019|El Salvador|

The website for the national group is now live, and the group wishes to use this for educational campaigns. A nurse in El Salvador is creating awareness of HAE by visiting allergy clinics and providing them with [...]

News from Guatemala

October 12, 2019|Guatemala|

HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the [...]

News from Panama

October 12, 2019|Panama|

The HAE patient group in Panama is continuing the efforts to advocate for the government to consider granting access to HAE treatments.

News from South Africa

October 11, 2019|South Africa|

From President Adrienne de Jongh We are in the process of registering a nonprofit company so that we can in future access funding and consolidate the organization. We have increased our register of patients to 90. In July [...]

News from the United Kingdom

October 11, 2019|United Kingdom|

From CEO Laura Szutowicz and Executive Officer Rachel Annals HAE UK has had a busy summer with some great events thanks to our amazing members. Huge thanks to Ann Harding, one of our Trustees, for organizing the Family [...]

News from Peru

October 11, 2019|Peru|

One more HAE Care Center has been added to the map of Peru: Hospital Nacional Guillermo Almenara. Please see https://haei.org/location/care-center-lima-peru.

News from Australia and New Zealand

October 11, 2019|Australia, New Zealand|

From CEO Fiona Wardman HAE Australasia has met with the Pharmaceutical Benefits Advisory Committee (PBAC) to provide consumer comments on the funding of one of the new prophylaxis therapies. The presentation to the committee and comments were well received [...]

News from Tunisia

October 11, 2019|Tunisia|

HAE International welcomes country no. 78 to the global HAE family: Tunisia. Please see https://haei.org/location/hae-tunisia.

News from Costa Rica

October 11, 2019|Costa Rica|

Costa Rica has also opened a website under the HAEi umbrella - please visit https://costarica.haei.org. An HAE knowledgeable hospital has been added to the map of Costa Rica - please see https://haei.org/location/hospital-san-jose-costa-rica.

News from Paraguay

October 11, 2019|Paraguay|

Mid September 2019 HAE International could welcome Paraguay as the 77th member country of the global HAE organization. National contact is Nathalia Portillo – see more at https://haei.org/location/hae-paraguay.

News from Argentina

October 11, 2019|Argentina|

Please have a look at Argentina on the HAEi map - more than 15 HAE knowledgeable physicians have been added: https://haei.org/hae-member-countries/argentina.

News from Slovenia

October 11, 2019|Slovenia|

The HAE International map has another big national update – this time seven HAE knowledgeable hospitals in Slovenia. Have a look at https://haei.org/haemember-countries/slovenia.

News from Canada

October 11, 2019|Canada|

From President Jacquie Badiou and Daphne Dumbrille from the HAE Canada office Summers are always too short and 2019 was no exception. July was particularly eventful for two HAE Canada Youth members, Paige and Makayla, who were fortunate to [...]

News from Spain

October 11, 2019|Spain|

From President Sarah Smith In Memoriam Professor Marco Cicardi: On Sunday 15 September, AEDAF attended the “Hereditary Angioedema” Lunch Seminar of the 17th European Meeting on Complement in Human Disease, held in Madrid 14-17 September, to which Professor Marco Cicardi [...]

News from Slovakia

October 11, 2019|Slovakia|

One more Slovakian HAE Care Center has been added to the HAE International map – please see https://haei.org/location/care-center-kosice-slovakia

News from Libya

October 11, 2019|Libya|

The first HAE knowledgeable physician in Tripoli, Libya has been added to the HAE International map – please see https://haei.org/location/physician-tripoli-libya. If you are interested in following HAE Libya you should have a look at the organization’s Facebook page [...]

News from Ukraine

October 11, 2019|Ukraine|

One more HAE knowledgeable hospital has been added to the HAE International map, this time in Lviv, Ukraine – please see https://haei.org/location/hospital-lvivukraine.

News from Finland

October 11, 2019|Finland|

Four HAE Care Centers have been added to the HAE International map – and there is a new President: Tiina Kortesmäki. See more at https://haei.org/hae-membercountries/finland.

News from Montenegro

October 11, 2019|Montenegro|

An HAE knowledgeable hospital in Montenegro has been added to the HAE International map – have a look at https://haei.org/location/hospital-podgoricamontenegro.

News from Kazakhstan

October 11, 2019|Kasakhstan|

An HAE knowledgeable physician in Astana, Kazakhstan has been added to the HAE International map. Further information can be found at https://haei.org/location/physician-astana-kazakhstan.

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