NEWS
News from Slovenia
An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics [...]
News from North Macedonia
On 30 August 2019, an annual charity party with more than 200 attendees was organized in Skopje, North Macedonia. The party was hosted by Ms. Nora Buklevska and Mr. Petar Kajevski – two enthusiasts who strive to bring about [...]
News from El Salvador
The website for the national group is now live, and the group wishes to use this for educational campaigns. A nurse in El Salvador is creating awareness of HAE by visiting allergy clinics and providing them with [...]
News from Guatemala
HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the [...]
News from Panama
The HAE patient group in Panama is continuing the efforts to advocate for the government to consider granting access to HAE treatments.
News from South Africa
From President Adrienne de Jongh We are in the process of registering a nonprofit company so that we can in future access funding and consolidate the organization. We have increased our register of patients to 90. In July [...]
News from Egypt
Ahmad Lofty is the new National contact in Egypt – please see haei.org/hae-member-countries/egypt.
News from the United Kingdom
From CEO Laura Szutowicz and Executive Officer Rachel Annals HAE UK has had a busy summer with some great events thanks to our amazing members. Huge thanks to Ann Harding, one of our Trustees, for organizing the Family [...]
News from Peru
One more HAE Care Center has been added to the map of Peru: Hospital Nacional Guillermo Almenara. Please see https://haei.org/location/care-center-lima-peru.
News from the United States of America
From Ianice Viel, Patient Advocate and Social Media Manager Nico’s Lunchbox Book: The US HAEA Engagement team continues to work hard to make sure our youngest patients receive support in a way that keeps them engaged and entertained. This year, the US [...]
News from Australia and New Zealand
From CEO Fiona Wardman HAE Australasia has met with the Pharmaceutical Benefits Advisory Committee (PBAC) to provide consumer comments on the funding of one of the new prophylaxis therapies. The presentation to the committee and comments were well received [...]
News from Tunisia
HAE International welcomes country no. 78 to the global HAE family: Tunisia. Please see https://haei.org/location/hae-tunisia.
News from Costa Rica
Costa Rica has also opened a website under the HAEi umbrella - please visit https://costarica.haei.org. An HAE knowledgeable hospital has been added to the map of Costa Rica - please see https://haei.org/location/hospital-san-jose-costa-rica.
News from Paraguay
Mid September 2019 HAE International could welcome Paraguay as the 77th member country of the global HAE organization. National contact is Nathalia Portillo – see more at https://haei.org/location/hae-paraguay.
News from Argentina
Please have a look at Argentina on the HAEi map - more than 15 HAE knowledgeable physicians have been added: https://haei.org/hae-member-countries/argentina.
News from Slovenia
The HAE International map has another big national update – this time seven HAE knowledgeable hospitals in Slovenia. Have a look at https://haei.org/haemember-countries/slovenia.
News from Canada
From President Jacquie Badiou and Daphne Dumbrille from the HAE Canada office Summers are always too short and 2019 was no exception. July was particularly eventful for two HAE Canada Youth members, Paige and Makayla, who were fortunate to [...]
News from Spain
From President Sarah Smith In Memoriam Professor Marco Cicardi: On Sunday 15 September, AEDAF attended the “Hereditary Angioedema” Lunch Seminar of the 17th European Meeting on Complement in Human Disease, held in Madrid 14-17 September, to which Professor Marco Cicardi [...]
News from the Czech Republic
The HAE International world map has been updated with four HAE knowledgeable hospitals in the Czech Republic – have a look at https://haei.org/hae-membercountries/czech-republic.
News from Slovakia
One more Slovakian HAE Care Center has been added to the HAE International map – please see https://haei.org/location/care-center-kosice-slovakia
News from Libya
The first HAE knowledgeable physician in Tripoli, Libya has been added to the HAE International map – please see https://haei.org/location/physician-tripoli-libya. If you are interested in following HAE Libya you should have a look at the organization’s Facebook page [...]
News from Ukraine
One more HAE knowledgeable hospital has been added to the HAE International map, this time in Lviv, Ukraine – please see https://haei.org/location/hospital-lvivukraine.
News from Finland
Four HAE Care Centers have been added to the HAE International map – and there is a new President: Tiina Kortesmäki. See more at https://haei.org/hae-membercountries/finland.
News from Montenegro
An HAE knowledgeable hospital in Montenegro has been added to the HAE International map – have a look at https://haei.org/location/hospital-podgoricamontenegro.
News from Kazakhstan
An HAE knowledgeable physician in Astana, Kazakhstan has been added to the HAE International map. Further information can be found at https://haei.org/location/physician-astana-kazakhstan.
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Upcoming events
Oct 18, 2019 - Oct 20, 2019
HAEi Regional Workshop Central Eastern Europe
Spain
Oct 29, 2019
HAE Spain (AEDAF): Patient Workshop in Zaragoza
Nov 2, 2019
HAE UK: 4th Scottish Patient Day
Nov 8, 2019 - Nov 10, 2019
HAE Scandinavia: 2019 Scandinavian Conference - Oslo
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