BioCryst Receives Positive CHMP Opinion for Orladeyo

February 26, 2021|HAEi News|

The Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) has adopted a positive opinion recommending the approval of Orladeyo (berotralstat) for routine prevention of recurrent attacks of HAE in adult and adolescent patients aged [...]

Welcome back

February 1, 2021|HAEi News|

12 months ago, Steen Bjerre left HAE International to pursue other opportunities. However, he has missed his many good HAE contacts, so by mutual agreement, he will return to the role of HAE International's [...]

Encouraging results of oral HAE treatment study

January 28, 2021|HAEi News|

From its Phase 1 multiple-ascending-dose study demonstrating PHA121’s pharmacokinetics and tolerability Pharvaris announces that PHA121 was well tolerated at all doses studied, with approximately dose-proportional exposure. “We are encouraged by these results to continue development [...]

News from China

December 28, 2020|China, East & Southeast Asia|

From HAE China Winner of seed fund: April 2020, the first public benefit innovation competition for rare diseases was officially launched. Through online courses, an offline entrepreneurship camp and project supervision, rare disease organizations [...]

News from Austria

December 28, 2020|Austria|

From President Adelheid Huemer, HAE Austria 2020 has given us a lot of new challenges, and no real face to face meetings are possible. Therefore, 27 November 2020 HAE Austria went virtual and hosted the [...]

News from Switzerland

December 28, 2020|Europe, Switzerland|

From HAE Switzerland Again, the coronavirus has its grip on Switzerland. By the end of October 2020, restrictions and measures against the virus have been reinforced due to increasing infection numbers. Newspapers and online [...]

News from the UK

December 28, 2020|Europe, United Kingdom|

From CEO Laura Szutowicz, HAE UK Much to my surprise, I am already writing another report for Global Perspectives. At the time of the last one, we in the UK had come out of [...]

News from USA

December 28, 2020|North America, United States of America|

From Patient Advocate/Social Media Manager Ianice Viel, US HAEA HAE Research: The US HAEA continues to sponsor, produce, and disseminate scientific information that leads to better care for people with HAE. Some of our [...]

News from South Korea

December 28, 2020|East & Southeast Asia, South Korea|

HAE Korea took a meaningful first step as a non-profit, voluntary organization on 7 November 2020 after a year of activities, starting with its first meeting of friends on 9 November 2019. We elected [...]

News from Russia

December 28, 2020|Central Asia, Russia, Uncategorized|

From Chairman Elena Bezbozhnaya, HAE Russia During the challenging time of the COVID-19 pandemic, HAE Russia keeps in touch with patients and supports its members through all available means. In the fall, we have [...]

News from Canada

December 28, 2020|Canada, North America|

From the HAE Canada Team We are kicking off this update with an exciting announcement: Canada now has a representative on the HAE International Youth Advisory Group. We would like to formally introduce Jacob [...]

Load More Posts

Stay Tuned

Be the first to know what’s going on in the world of HAE

Check out our latest newsletters

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

Stay tuned – sign up for our newsletter


Click here to sign up

HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language