News2019-02-26T19:47:44+02:00

NEWS

Phase 3 trial meets primary endpoint

May 21, 2019|HAEi News|

The randomized (n=121), double-blind, placebo-controlled, Phase 3 APeX-2 trial of once-daily, oral BCX7353 for the prevention of HAE attacks has achieved its primary endpoint for both dose levels (110 mg and 150 mg), with the [...]

Pharming celebrates hae day :-)

May 16, 2019|HAEi News|

On 16 May each year, HAE patient organisations from around the world, led by the HAEi, the international umbrella organisation for the world’s HAE patient groups, come together to support awareness of HAE. hae day [...]

BioCryst reports significant progress

May 8, 2019|HAEi News|

“In a year with many milestones across our multiple advancing programs of oral medicines for rare diseases, BioCryst Pharmaceuticals, Inc. has achieved significant progress in the first quarter and we look forward to reporting data [...]

News from Asia Pacific

April 7, 2019|HAEi News|

Fiona Wardman, Regional Patient Advocate for Asia Pacific TAIWAN Plans are being made for HAEi to meet with a Taiwanese doctor and his HAE patients in May 2019. This will be the first time a [...]

Seven in Ten!

April 7, 2019|HAEi News|

By William R. Lumry, M.D., Allergy Immunology Specialist, Clinical Professor of Internal Medicine, University of Texas Southwestern Medical School. Seven safe and effective treatments for treatment and prevention of HAE attacks have been approved and are [...]

HAEi brings hope to India

April 7, 2019|HAEi News, India, South Asia|

By Fiona Wardman, HAEi Chief Regional Patient Advocate Early March 2019 patients, their families, physicians, industry and other rare disease experts along with HAEi came together for the first HAE meeting in India. For [...]

News from Sub-Sahara Africa

April 7, 2019|Africa, HAEi News, Kenya, South Africa|

From Patricia Karani, Regional Patient Advocate, Sub-Sahara Africa SOUTH AFRICA The first patient meeting was held 14 March 2019 in Cape Town. In attendance were doctors and patients who learned more on HAE and how best [...]

Load More Posts

Stay Tuned

Be the first to know what’s going on in the world of HAE

Upcoming events


Jun 19, 2019 - Jun 20, 2019
Scientific and Practical International HAE Conference


Jul 25, 2019 - Jul 26, 2019
HAE Global Youngsters Advocacy Workshop


Jul 25, 2019 - Jul 28, 2019
US HAEA Summit

United States
Jul 28, 2019
HAE IN-MOTION 5K walk/run

>> View full event calendar

Check out our latest newsletters

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

Stay tuned – sign up for our newsletter

BE THE FIRST TO KNOW ABOUT HAE NEWS, TREATMENTS, EVENTS AND RELATED TOPICS

Click here to sign up

HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language