NEWS
Pharvaris in company-wide support of hae day :-) 2022
Pharvaris announces the company-wide support of hae day :-) 2022. Pharvaris has supported the HAE community by partaking in the hae day :-) Activities Challenge for the 30 days leading up to awareness day. Pharvaris [...]
Proposed name approved
KalVista Pharmaceuticals, Inc.'s proposed name “sebetralstat” has been approved by the World Health Organization’s International Nonproprietary Names (WHO-INN) Expert Committee and the American Medical Association’s United States Adopted Names (AMA-USAN) Council for the drug candidate formerly [...]
Astria expects initial results by year-end
Astria Therapeutics, Inc. reports financial results for the first quarter ended 31 March 2022 and provides corporate update. “We are looking forward to advancing STAR-0215 into the clinic this year with the Phase 1a trial, [...]
Pharvaris meets operational goals for PHVS416
Pharvaris presents its financial results for the first quarter ended 31 March 2022 and updates recent business highlights. “We met our operational goals for PHVS416 for the on-demand treatment of HAE attacks and have reached [...]
Intellia continues to advance in vivo candidate
At the Intellia Therapeutics, Inc. operational highlights and financial results for the first quarter ended 31 March 2022, President and CEO John Leonard, M.D., says: “We continue to advance our second in vivo candidate, NTLA-2002, which [...]
Strong patient demand for ORLADEYO
From the BioCryst Pharmaceuticals, Inc. financial results for the first quarter ended 31 March 2022: “We are now over a year into the ORLADEYO launch and are excited to see strong and continuing patient demand [...]
New international guideline for HAE management
Earlier this year, the European Journal of Allergy and Clinical Immunology published the 2021 revision and update of the international WAO/EAACI guideline for the management of HAE. The updated guideline reflects consensus among an [...]
News from Algeria
From Vice-President Salah Alioui, HAE Algeria HAE Algeria organized its first national HAE awareness day on 25 December 2021 at Lamaraz Hotel in Algiers. The day was under the patronage of the Minister of Health [...]
News from Spain
From President Sarah Smith, HAE Spain (AEDAF): General Assembly & Annual Meeting: The 24th General Assembly and Annual Meeting of AEDAF took place 26 March 2022 in La Paz Hospital in Madrid. After two [...]
News from Croatia
From President Michaela Sogoric, HAE Croatia In collaboration with psychologist Maja Batista, MD and clinical immunologist Višnja Prus, MD, PhD, HAE Croatia has designed a brochure for parents, children’s guardians and adolescents. The brochure [...]
News from Portugal
From HAE Portugal (ADAH) This past December 2021, ADAH held the second online event of its annual conference, under the theme of the advantages and challenges towards the autonomy process of patients with HAE. [...]
News from Australia and New Zealand
From HAE Australasia HAE Australasia has held two in-person patient and carers meetings in February. The first meeting was held in Sydney, Australia, on 5 February, the main venue with presenters in Sydney. Brisbane [...]
News from Canada
From HAE Canada Our first big piece of news to share is that the HAE Canada team has blossomed to eight Board of Director members. At the 2021 Annual General Meeting on 7 December, [...]
News from South Africa
From HAE South Africa On 11 January 2022 HAE South Africa embarked on a new social media campaign. As of 28 February, our Facebook reach was up by 955% compared to the previous period, [...]
News from Denmark, Norway and Sweden
From HAE Scandinavia We are pleased to inform you about new treatment options in Scandinavia. In Norway, ORLADEYO™ (capsule) was approved on 1 December 2021 for the preventive treatment of HAE in adults and [...]
News from Russia
During the fall and winter season, HAE Russia experienced many important events. We won a prestigious award, held several webinars for our members, and conducted spectacular art meetings for children diagnosed with HAE within [...]
News from USA
From Ianice Viel, HAE Advocate & Digital & Social Media Manager: hae day :-) 2022 Awareness Campaign: The achievements of the HAE community in recent years are something to be celebrated on a national [...]
News from Switzerland
From HAE Switzerland Unfortunately, due to the corona virus, the last two patient meetings could not take place. The Federal Council has now given the go-ahead for such events, and we are again planning [...]
News from Brazil
From HAE Brazil (Abranghe)We have produced some data from patients who sought out Abranghe for HAE registration and others for diagnostic guidance. The objective is to analyze data during the pandemic, from 2021 and 2020. [...]
News from the UK
From CEO Angela Metcalfe Well, it’s been a busy few months since I took over as the CEO of HAE UK! We have lots and lots of ideas going forward and a few exciting [...]
Héma-Québec has awarded a two-year tender for TAKHZYRO®
Héma-Québec has awarded a two-year tender for TAKHZYRO® (lanadelumab injection) as the sole option for prophylaxis subcutaneous treatment for type I/II HAE patients. The two-year term which began 1 April 2022, includes the option for [...]
TAKHZYRO® (lanadelumab-flyo) Prefilled Syringe Now Available for HAE Patients in the United States
TAKHZYRO® (lanadelumab-flyo) injection single-dose prefilled syringe is now available in the U.S. to prevent attacks of HAE in adult and pediatric patients 12 years of age and older. Approved by the U.S. Food and Drug Administration [...]
TAKHZYRO® (lanadelumab) Open Label Phase 3 Study Met its Objectives
The Phase 3 SHP643-301 study evaluating the safety profile and pharmacokinetics of TAKHZYRO® (lanadelumab) in patients 2 to <12 years of age is complete and has met its objectives. The safety profile was consistent with [...]
ACARE network continues to grow in numbers
Membership in the global network of Angioedema Centers of Reference and Excellence (ACARE) – a joint venture between the Global Allergy and Asthma European Network GA2LEN and HAEi – continues to expand. There are [...]
Successful HAEi Virtual Regional Workshops
During 2020 and 2021, HAEi held four Virtual Regional Workshops covering the following regions: South Eastern Europe Central Eastern Europe & Benelux South America & Mexico and Central America & the Caribbean The Middle [...]
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