NEWS

Update from HAEi’s Global Operations

May 24, 2024|HAEi News|

Update from HAEi’s Executive Vice President Global Operations and Chief Compliance Officer, Jørn Schultz-Boysen It feels like only moments since I last updated you in the second edition of the Global Perspectives magazine last [...]

Update from HAEi’s Global Advocacy

May 24, 2024|HAEi News|

Update from HAEi’s Executive Vice President Global Advocacy and Chief Diversity Officer, Fiona Wardman I am continually inspired by the dedication and effort shown by our community, from the tireless work of individual Member [...]

News from Sub Sahara Africa

May 19, 2024|Africa, Benin, Burkina Faso, Burundi, Cameroon, Chad, Comoros, Democratic Republic of the Congo, Eritrea, Eswatini, Ethiopia, Ghana, HAEi News, Ivory Coast, Kenya, Lesotho, Mozambique, Namibia, Nigeria, Rwanda, Sao Tome and Principe, Senegal, South Africa, Sudan, Swaziland, Tanzania, Togo, Uganda, Zambia, Zimbabwe|

From Regional Patient Advocate Patricia Karani The year has started very positively, with great motivation from doctors and patient leads in my region. I shared the new Women and HAE booklet with the Africa [...]

News from Central Eastern Europe and Middle East

May 19, 2024|Armenia, Armenia, Bahrain, Belarus, Czech Republic, Egypt, Estonia, Europe, Georgia, Georgia, HAEi News, Hungary, Iran, Iraq, Jordan, Kazakhstan, Kuwait, Latvia, Lebanon, Lithuania, Middle East, Oman, Poland, Qatar, Russia, Saudi Arabia, Slovakia, Syria, Ukraine, United Arab Emirates|

From Regional Patient Advocate Michal Rutkowski Hello HAEi Community! I am very excited to share the general overview of my Q1 2024 RPA activities and achievements with you. As always, it was a very [...]

BioCryst to present new data at 2024 meeting of the EAACI

May 14, 2024|HAEi News|

BioCryst to present new data at 2024 meeting of the European Academy of Allergy and Clinical Immunology BioCryst Pharmaceuticals Inc announced that new data on oral, once-daily Orladeyo (berotralstat) for the prophylactic treatment of [...]

Orladeyo (berotralstat) approved in Mexico

May 13, 2024|HAEi News|

Orladeyo (berotralstat) approved in Mexico Biocryst Pharmaceuticals Inc announced that the Federal Commission for Protection against Health Risks (COFEPRIS) in Mexico has granted approval for oral, once-daily Orladeyo for the prophylaxis of hereditary angioedema [...]

BioCryst presents new real-world evidence showing significant reductions in healthcare resource utilization among patients with HAE following initiation of Orladeyo (berotralstat)

May 9, 2024|HAEi News|

BioCryst presents new real-world evidence showing significant reductions in healthcare resource utilization among patients with HAE following initiation of Orladeyo (berotralstat) BioCryst Pharmaceuticals Inc announced new real-world evidence on the use of oral, once-daily [...]

Ionis reports Q1 2024 financial results

May 7, 2024|HAEi News|

Ionis reports first quarter 2024 financial results Ionis Pharmaceuticals Inc reported financial results for the first quarter ended March 31, 2024. Brett P Monia PhD, Chief Executive Officer of Ionis, said: "Ionis is off [...]

News from Mediterranean, North Africa, Benelux and British Isles

May 3, 2024|Africa, Algeria, Belgium, Europe, France, HAEi News, Ireland, Italy, Libya, Malta, Mauritania, Morocco, Portugal, Spain, The Netherlands, Tunisia, United Kingdom|

From Regional Patient Advocate Maria Ferron The year started with the incredible news that I had gained 3 new countries as part of my Regional Patient Advocate (RPA) responsibilities: the Netherlands, Belgium, and Luxemburg, [...]

News from Central America and Caribbean

May 3, 2024|Central America and Caribbean, Costa Rica, Cuba, Dominican Republic, El Salvador, Guatemala, HAEi News, Panama, Puerto Rico, South America, Trinidad|

From Regional Patient Advocate Javier Santana HAEi delivered the first 2024 HAEi Regional Conference Americas in Panama City, Panama, where hundreds of patients, caregivers, doctors, and pharmaceutical representatives met to talk about advances of [...]

News from Asia Pacific and South Africa

May 3, 2024|Afghanistan, Australia, Australia/Oceania, Bangladesh, East & Southeast Asia, HAEi News, India, Japan, Nepal, New Zealand, Pakistan, South Africa, South Asia, South Korea|

From Regional Patient Advocate Fiona Wardman During the last few months, I have been working closely with South Africa and India. They are working towards impactful patient meetings aimed at bolstering support and awareness [...]

KalVista highlights strategic plans for coming fiscal year

May 1, 2024|HAEi News|

KalVista Pharmaceuticals highlights strategic plans for coming fiscal year KalVista Pharmaceuticals today announced its strategic plans for fiscal year 2025, beginning 1 May 2024, including for sebetralstat, the Company’s investigational novel, oral plasma kallikrein [...]

Youngsters Track: The Future is Bright

April 29, 2024|HAEi News|

The Youngsters Track in Americas: The Future is Bright Following the keynote presentation, the unique HAEi Youngsters’ Community is split from the main patient and caregiver track. 90 registered young people and caregivers [...]

Scientific Track

April 29, 2024|HAEi News|

Scientific Session, Saturday Running concurrently with the Patient Track, the Scientific Track of the 2024 HAEi Regional Conference Americas was the hub for the latest data and discussion on the diagnosis and treatment [...]

Expert Panel Q&A

April 29, 2024|HAEi News|

Expert Panel Q&A Prof. Marc Riedl was joined onstage by fellow Scientific Committee Co-Chairs Dr. Olga Barrera, Prof. Anete Grumach, and Americas keynote speaker, Prof. Bruce Zuraw. Fellow keynote speaker and HAEi’s Chief [...]

Latest Developments in HAE Science and Therapies

April 29, 2024|HAEi News|

Latest Developments in HAE Science and Therapies Tony Castaldo introduced Prof. Marc Riedl, a world-class physician with amazing skills in patient care, to the audience. Prof. Riedl began his talk by addressing the [...]

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Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life