New facility for Ruconest production

November 19, 2020|HAEi News|

Pharming Group N.V. will be building a new facility to expand the company’s downstream processing capacity for its lead product, Ruconest (recombinant C1 esterase inhibitor (rhC1INH). The downstream processing facility will include the purification, filtration [...]

Final results from the Phase 3 HELP Study

November 13, 2020|HAEi News|

Takeda Pharmaceutical Company Limited announces the final results from the Phase 3 HELP Study Open-label Extension (OLE) showing that Takhzyro (lanadelumab-flyo) helped prevent and reduce the frequency of HAE attacks long term in patients 12 years [...]

Advance in the Ionis’ HAE program

November 5, 2020|HAEi News|

In its financial results for the third quarter of 2020 Ionis Pharmaceuticals, Inc. reports the advance in the IONIS-PKK-LRx program: Proof-of-concept data from the PKK development program in patients with HAE were reported in the [...]

Early Access to BioCryst’s Berotralstat in UK

October 30, 2020|HAEi News|

The United Kingdom’s Medicines and Healthcare products Regulatory Agency (MHRA) has granted oral, once-daily berotralstat from BioCryst Pharmaceuticals, Inc. a positive scientific opinion through the Early Access to Medicines Scheme (EAMS). Under the EAMS, HAE [...]

Operational highlights from Pharming

October 29, 2020|HAEi News|

At the presentation of the financial report for the nine months and third quarter ended 30 September 2020 Pharming Group N.V. CEO Sijmen de Vries says: “We are pleased to announce continued growth, demonstrating consistent progress, [...]

Update on KalVista’s Oral HAE Franchise

October 16, 2020|HAEi News|

KalVista Pharmaceuticals, Inc. provides an update on its franchise of oral therapies for treatment of HAE. “We have completed enrollment of our Phase 2 trial for our oral on-demand HAE treatment, KVD900, and remain on track [...]

New App from HAEi will be Your Loyal Companion

October 9, 2020|HAEi News|

HAEi has developed HAE Companion an exciting new App that provides an easy way to access and store the popular HAE International emergency card that is currently a paper document. This App will become [...]

José Egidio Fabiani in memoriam

October 9, 2020|HAEi News|

Dr. José Egidio Fabiani, who distinguished himself within HAE in his native Argentina as well as in Latin America, passed away earlier this year. In a eulogy Alejandra Menendez, President of HAE Argentina, writes: [...]

News from Caribbean and Central America

October 9, 2020|HAEi News|

From Regional Patient Advocate Javier Santana Like many countries around the world, the Central American and Caribbean region has also been affected by the COVID-19 pandemic. This has allowed many governments to enact lockdown [...]

News from Sub-Sahara Africa

October 5, 2020|Africa, HAEi News, Libya, South Africa, Sudan|

From Regional Patient Advocate Patricia Karani HAE International was able to make collaborations with the Sudanese Society of Clinical Immunology and Allergy (SSCI&A) to conduct the first doctor training seminar on HAE amongst health [...]

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