KalVista on track with clinical trial

November 14, 2019|HAEi News|

KalVista Pharmaceuticals, Inc. expects to complete enrollment for the KVD900 Phase 2 clinical trial before year-end 2019 and to provide data in 2020. “We are pleased with the rate of enrollment of our Phase 2 [...]

BioCryst positioned for a transformational 2020

November 7, 2019|HAEi News|

Announcing the financial results for the third quarter ended 30 September 2019 BioCryst Pharmaceuticals, Inc., President and CEO Jon Stonehouse says: “BioCryst is positioned for a transformational 2020, with the potential approval and launch of BCX7353 in [...]

BioCryst partners with Torii in Japan

November 5, 2019|HAEi News|

BioCryst Pharmaceuticals, Inc. has licensed commercialization rights in Japan to Torii Pharmaceutical, Co. for BCX7353, an oral, once-daily treatment for the prevention of HAE attacks. “We are excited to partner with Torii to accelerate access [...]

News from Estonia

October 25, 2019|Estonia, Europe|

We are happy to inform you that HAE International has been joined by country no. 80. A warm welcome to Estonia, represented by national contact Kristal Kaljula.

News from Slovenia

October 12, 2019|Slovenia|

An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics [...]

News from North Macedonia

October 12, 2019|North Macedonia|

On 30 August 2019, an annual charity party with more than 200 attendees was organized in Skopje, North Macedonia. The party was hosted by Ms. Nora Buklevska and Mr. Petar Kajevski – two enthusiasts who strive to bring about [...]

News from El Salvador

October 12, 2019|El Salvador|

The website for the national group is now live, and the group wishes to use this for educational campaigns. A nurse in El Salvador is creating awareness of HAE by visiting allergy clinics and providing them with [...]

News from Guatemala

October 12, 2019|Guatemala|

HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the [...]

News from Panama

October 12, 2019|Panama|

The HAE patient group in Panama is continuing the efforts to advocate for the government to consider granting access to HAE treatments.

News from South Africa

October 11, 2019|South Africa|

From President Adrienne de Jongh We are in the process of registering a nonprofit company so that we can in future access funding and consolidate the organization. We have increased our register of patients to 90. In July [...]

News from the United Kingdom

October 11, 2019|United Kingdom|

From CEO Laura Szutowicz and Executive Officer Rachel Annals HAE UK has had a busy summer with some great events thanks to our amazing members. Huge thanks to Ann Harding, one of our Trustees, for organizing the Family [...]

News from Peru

October 11, 2019|Peru|

One more HAE Care Center has been added to the map of Peru: Hospital Nacional Guillermo Almenara. Please see

News from Australia and New Zealand

October 11, 2019|Australia, New Zealand|

From CEO Fiona Wardman HAE Australasia has met with the Pharmaceutical Benefits Advisory Committee (PBAC) to provide consumer comments on the funding of one of the new prophylaxis therapies. The presentation to the committee and comments were well received [...]

News from Tunisia

October 11, 2019|Tunisia|

HAE International welcomes country no. 78 to the global HAE family: Tunisia. Please see

News from Costa Rica

October 11, 2019|Costa Rica|

Costa Rica has also opened a website under the HAEi umbrella - please visit An HAE knowledgeable hospital has been added to the map of Costa Rica - please see

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