NEWS
KalVista expect Phase 2 clinical trial data in 2020
“We recently received Fast Track designation for KVD900, illustrating the high level of unmet need in the HAE community for efficacious and safe, orally-delivered therapies,” said Andrew Crockett, CEO of KalVista Pharmaceuticals, Inc. says in an [...]
Positive recommendation from Canadian Drug Expert Committee
The Canadian Agency for Drugs and Technologies in Health (CADTH) Canadian Drug Expert Committee (CDEC) has issued a positive recommendation that TAKHZYRO® (lanadelumab injection) be reimbursed by public drug plans for routine prevention of HAE [...]
KalVista on track with clinical trial
KalVista Pharmaceuticals, Inc. expects to complete enrollment for the KVD900 Phase 2 clinical trial before year-end 2019 and to provide data in 2020. “We are pleased with the rate of enrollment of our Phase 2 [...]
News from South Korea
The 83rd member of the HAE International family is South Korea. The patient organization HAE Korea has just been established – and we have three HAE knowledgeable physicians and two HAE knowledgeable hospitals on the [...]
Efficacy and Safety of Takhzyro Injection During Extended Study Treatment Period
Takeda Pharmaceutical Company Limited announces new data that further investigate the long-term safety and efficacy of TAKHZYRO® (lanadelumab-flyo) injection in patients with HAE 12 years of age and older studied in the ongoing Phase 3 [...]
48-week results from Biocryst’s APeX-S and APeX-2 trials
BioCryst Pharmaceuticals, Inc. announces the 48-week results from its APeX-S and APeX-2 trials and comprehensive market research which support the significant commercial opportunity for oral, once daily BCX7353 in HAE. “The 48-week clinical trial data [...]
BioCryst positioned for a transformational 2020
Announcing the financial results for the third quarter ended 30 September 2019 BioCryst Pharmaceuticals, Inc., President and CEO Jon Stonehouse says: “BioCryst is positioned for a transformational 2020, with the potential approval and launch of BCX7353 in [...]
News from Georgia
Today HAE International welcomes member number 82: Georgia. The HAE patients of Georgia are represented by David Ramazashvili.
BioCryst partners with Torii in Japan
BioCryst Pharmaceuticals, Inc. has licensed commercialization rights in Japan to Torii Pharmaceutical, Co. for BCX7353, an oral, once-daily treatment for the prevention of HAE attacks. “We are excited to partner with Torii to accelerate access [...]
News from Lithuania
HAE Lithuania has signed up as the 81st member organization of HAE International. Laura Malinauskiene is the national contact for Lithuania.
News from Estonia
We are happy to inform you that HAE International has been joined by country no. 80. A warm welcome to Estonia, represented by national contact Kristal Kaljula.
News from Armenia
HAE International is happy to inform you that country no. 79 - Armenia - has just been added to our global map. The national contact in Armenia is Artashes Harutyunyan.
News from Slovenia
An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics [...]
News from North Macedonia
On 30 August 2019, an annual charity party with more than 200 attendees was organized in Skopje, North Macedonia. The party was hosted by Ms. Nora Buklevska and Mr. Petar Kajevski – two enthusiasts who strive to bring about [...]
News from El Salvador
The website for the national group is now live, and the group wishes to use this for educational campaigns. A nurse in El Salvador is creating awareness of HAE by visiting allergy clinics and providing them with [...]
News from Guatemala
HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the [...]
News from Panama
The HAE patient group in Panama is continuing the efforts to advocate for the government to consider granting access to HAE treatments.
News from South Africa
From President Adrienne de Jongh We are in the process of registering a nonprofit company so that we can in future access funding and consolidate the organization. We have increased our register of patients to 90. In July [...]
News from Egypt
Ahmad Lofty is the new National contact in Egypt – please see haei.org/hae-member-countries/egypt.
News from the United Kingdom
From CEO Laura Szutowicz and Executive Officer Rachel Annals HAE UK has had a busy summer with some great events thanks to our amazing members. Huge thanks to Ann Harding, one of our Trustees, for organizing the Family [...]
News from Peru
One more HAE Care Center has been added to the map of Peru: Hospital Nacional Guillermo Almenara. Please see https://haei.org/location/care-center-lima-peru.
News from the United States of America
From Ianice Viel, Patient Advocate and Social Media Manager Nico’s Lunchbox Book: The US HAEA Engagement team continues to work hard to make sure our youngest patients receive support in a way that keeps them engaged and entertained. This year, the US [...]
News from Australia and New Zealand
From CEO Fiona Wardman HAE Australasia has met with the Pharmaceutical Benefits Advisory Committee (PBAC) to provide consumer comments on the funding of one of the new prophylaxis therapies. The presentation to the committee and comments were well received [...]
News from Tunisia
HAE International welcomes country no. 78 to the global HAE family: Tunisia. Please see https://haei.org/location/hae-tunisia.
News from Costa Rica
Costa Rica has also opened a website under the HAEi umbrella - please visit https://costarica.haei.org. An HAE knowledgeable hospital has been added to the map of Costa Rica - please see https://haei.org/location/hospital-san-jose-costa-rica.
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May 13, 2020 - May 14, 2020
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