NEWS

News from Serbia

January 24, 2025|Serbia|

Symposium on Rare Diseases: Advancing knowledge and treatment options From November 15 to 17, the Fourth Symposium on Rare Diseases took place in Divčibare, Serbia, organized by the Serbian Association for Preventive Pediatrics (UPPS). [...]

News from Czech Republic

January 24, 2025|Czech Republic, Europe|

HAE Junior marks its 5th anniversary with a special digital campaign HAE Junior patient organization announces the launch of a birthday digital campaign to celebrate 5 years since registration. Together, we want to remember [...]

News from Cuba

January 24, 2025|Central America and Caribbean, Cuba|

My greetings from Cuba with the desire to continue being an active part of the great HAEi family. 2024 has been a fruitful year for HAE Cuba. We are a young organization that wants [...]

News from Argentina

January 24, 2025|Argentina, South America|

2024 was a challenging yet very productive year for our HAE community. Undoubtedly highlighted by two wonderful international events, the 2024 HAEi Regional Conference Americas and the 2024 HAEi Global Leadership Workshop and ACARE Global [...]

News from UK

January 24, 2025|Europe, United Kingdom|

As the year comes to a close, we are still extremely busy liaising with the NHS, medical professionals, and pharmaceutical companies to support our day-to-day work for HAE patients and their families. We have [...]

News from Brazil

January 24, 2025|Brazil, South America|

Abranghe was present at several events during the year – see images below Participation in the LI Brazilian Congress of Allergy and Immunology in the city of Salvador-BA. Our stand promoted the work of [...]

News from Bangladesh

January 24, 2025|Bangladesh|

Bangladesh has been a member country since 2019. Angioedema Bangladesh is the official name of the member organization. The patient group now has 25 members. As our roadmap, we are focusing on educating the [...]

News from India

January 24, 2025|India|

First in-person patients association meeting of HAEIPA at Hyderabad, India Hi, I want to send a write-up from India about patient association activities. After getting the HAE India Patients Association registered a few months [...]

News from Hungary

January 24, 2025|Europe, Hungary|

On November 30, 2024, the first face-to-face club meeting of the Hungarian Patient Organization after COVID-19 was held. The location was the clinic of the Semmelweis University of Medicine. There are 220 registered patients [...]

News from Indonesia

January 24, 2025|Indonesia|

Dear HAE community, HAE Indonesia has made a few small strides in 2024 towards better awareness for HAE in Indonesia. To share our experience and also to learn about others’ experiences, I met up [...]

News from Canada

January 24, 2025|Canada, North America|

We concluded our Global Perspectives #3 Newsletter by mentioning our October Patient Information Update. We can now report that on Saturday, October 19th, Michelle Cooper (President), Kerstyn Lane (Regional Director), Daphne Dumbrille (COO), and [...]

News from Japan

January 24, 2025|East & Southeast Asia, Japan|

First of all, 2024 marked the 10th anniversary of the HAEJ's establishment! It's hard to believe that it's already been 10 years since our launch. This year has been a significant one for HAEJ, [...]

News from Denmark, Norway, and Sweden

January 24, 2025|Denmark, Europe, Norway, Sweden|

On 30 November, HAE Scandinavia held a meeting with patients and caregivers in Aalesund, Norway, with Norwegian members. The discussion focused on living with HAE across generations, the significant progress in HAE treatments, and [...]

News from Netherlands

January 24, 2025|Europe, The Netherlands|

It’s hard to believe that we’re already wrapping up 2024. Time seems to have flown by. So many great things have happened since January. We’d love to share a few highlights with you. At [...]

News from South Africa

January 24, 2025|Africa, South Africa|

HAE SA 2024 YEAR IN REVIEW Our organization has had a busy, productive year raising awareness for HAE!! In the run-up to Rare Disease Day 2024, we released a series of 6 patient video [...]

News from USA

January 24, 2025|North America, United States of America|

A Milestone Year for the HAEA Community: 2024 Year in Review As the year draws close, we reflect on the collective success of our HAEA community in 2024. This year was marked by progress, [...]

News from Taiwan

January 24, 2025|Taiwan|

This year, in addition to holding lectures in the North, Central, and, South, East Districts like last year and 2 patient meetings. Although not many patients participated in the event, we can see that [...]

News from Singapore

January 24, 2025|East & Southeast Asia, Singapore|

There were 2 key developments for HAE Singapore and HAE patients in Singapore. Firstly, a dedicated HAE Clinic was set up in the early part of 2024 at Tan Tock Seng Hospital. The clinic [...]

News from Switzerland

January 24, 2025|Europe, Switzerland|

3 Highlights from 2024 1: Patient Meeting On Saturday, April 20, 2024, we held our HAE patient meeting at Zurich Airport These HAE experts will be happy to answer your questions in a panel [...]

News from Mexico

January 24, 2025|Mexico|

Highlights of 2024 On October 30, 2023, the Chamber of Deputies of Mexico, by decree, declared May 16 of each year “National Hereditary Angioedema Day”. For this reason, May 16, 2024, was officially celebrated [...]

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