Proposed name approved

May 17, 2022|HAEi News|

KalVista Pharmaceuticals, Inc.'s proposed name “sebetralstat” has been approved by the World Health Organization’s International Nonproprietary Names (WHO-INN) Expert Committee and the American Medical Association’s United States Adopted Names (AMA-USAN) Council for the drug candidate formerly [...]

Strong patient demand for ORLADEYO

May 6, 2022|HAEi News|

From the BioCryst Pharmaceuticals, Inc. financial results for the first quarter ended 31 March 2022: “We are now over a year into the ORLADEYO launch and are excited to see strong and continuing patient demand [...]

New international guideline for HAE management

May 3, 2022|HAEi News|

Earlier this year, the European Journal of Allergy and Clinical Immunology published the 2021 revision and update of the international WAO/EAACI guideline for the management of HAE.  The updated guideline reflects consensus among an [...]

News from Algeria

May 3, 2022|Algeria|

From Vice-President Salah Alioui, HAE Algeria HAE Algeria organized its first national HAE awareness day on 25 December 2021 at Lamaraz Hotel in Algiers. The day was under the patronage of the Minister of Health [...]

News from Spain

May 3, 2022|Europe, Spain|

From President Sarah Smith, HAE Spain (AEDAF): General Assembly & Annual Meeting: The 24th General Assembly and Annual Meeting of AEDAF took place 26 March 2022 in La Paz Hospital in Madrid. After two [...]

News from Croatia

May 3, 2022|Croatia, Europe|

From President Michaela Sogoric, HAE Croatia In collaboration with psychologist Maja Batista, MD and clinical immunologist Višnja Prus, MD, PhD, HAE Croatia has designed a brochure for parents, children’s guardians and adolescents. The brochure [...]

News from Portugal

May 3, 2022|Europe, Portugal|

From HAE Portugal (ADAH) This past December 2021, ADAH held the second online event of its annual conference, under the theme of the advantages and challenges towards the autonomy process of patients with HAE. [...]

News from Canada

May 3, 2022|Canada, North America|

From HAE Canada Our first big piece of news to share is that the HAE Canada team has blossomed to eight Board of Director members. At the 2021 Annual General Meeting on 7 December, [...]

News from South Africa

May 3, 2022|Africa, South Africa|

From HAE South Africa On 11 January 2022 HAE South Africa embarked on a new social media campaign. As of 28 February, our Facebook reach was up by 955% compared to the previous period, [...]

News from Denmark, Norway and Sweden

May 3, 2022|Denmark, Europe, Norway, Sweden|

From HAE Scandinavia We are pleased to inform you about new treatment options in Scandinavia. In Norway, ORLADEYO™ (capsule) was approved on 1 December 2021 for the preventive treatment of HAE in adults and [...]

News from Russia

May 3, 2022|Central Asia, Europe, Russia, Russia|

During the fall and winter season, HAE Russia experienced many important events. We won a prestigious award, held several webinars for our members, and conducted spectacular art meetings for children diagnosed with HAE within [...]

News from USA

May 3, 2022|North America, United States of America|

From Ianice Viel, HAE Advocate & Digital & Social Media Manager: hae day :-) 2022 Awareness Campaign: The achievements of the HAE community in recent years are something to be celebrated on a national [...]

News from Switzerland

May 3, 2022|Europe, Switzerland|

From HAE Switzerland Unfortunately, due to the corona virus, the last two patient meetings could not take place. The Federal Council has now given the go-ahead for such events, and we are again planning [...]

News from Brazil

May 3, 2022|Brazil, South America|

From HAE Brazil (Abranghe)We have produced some data from patients who sought out Abranghe for HAE registration and others for diagnostic guidance. The objective is to analyze data during the pandemic, from 2021 and 2020. [...]

News from the UK

May 3, 2022|Europe, United Kingdom|

From CEO Angela Metcalfe Well, it’s been a busy few months since I took over as the CEO of HAE UK! We have lots and lots of ideas going forward and a few exciting [...]

ACARE network continues to grow in numbers

April 13, 2022|HAEi News|

Membership in the global network of Angioedema Centers of Reference and Excellence (ACARE) – a joint venture between the Global Allergy and Asthma European Network GA2LEN and HAEi – continues to expand. There are [...]

Successful HAEi Virtual Regional Workshops

April 13, 2022|HAEi News|

During 2020 and 2021, HAEi held four Virtual Regional Workshops covering the following regions: South Eastern Europe Central Eastern Europe & Benelux South America & Mexico and Central America & the Caribbean The Middle [...]

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