News2019-02-26T19:47:44+00:00

NEWS

Pharming celebrates hae day :-)

May 16, 2019|HAEi News|

On 16 May each year, HAE patient organisations from around the world, led by the HAEi, the international umbrella organisation for the world’s HAE patient groups, come together to support awareness of HAE. hae day [...]

BioCryst reports significant progress

May 8, 2019|HAEi News|

“In a year with many milestones across our multiple advancing programs of oral medicines for rare diseases, BioCryst Pharmaceuticals, Inc. has achieved significant progress in the first quarter and we look forward to reporting data [...]

News from South Eastern Europe

April 7, 2019|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Europe, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

From Natasa Angjeleska, regional patient advocate, South Eastern Europe SERBIA In February 2019 Natasa participated in the annual patient meeting of HAE Serbia delivering a presentation entitled ”The incredible power of advocacy”. The program also included addresses [...]

News from Asia Pacific

April 7, 2019|HAEi News|

From Fiona Wardman, Regional Patient Advocate, Asia Pacific TAIWAN Plans are being made for HAEi to meet with a Taiwanese doctor and his HAE patients in May 2019. This will be the first time a meeting [...]

Seven in Ten!

April 7, 2019|HAEi News|

By William R. Lumry, M.D., Allergy Immunology Specialist, Clinical Professor of Internal Medicine, University of Texas Southwestern Medical School. Seven safe and effective treatments for treatment and prevention of HAE attacks have been approved and are [...]

HAEi brings hope to India

April 7, 2019|HAEi News, India, South Asia|

By Fiona Wardman, HAEi Chief Regional Patient Advocate Early March 2019 patients, their families, physicians, industry and other rare disease experts along with HAEi came together for the first HAE meeting in India. For [...]

News from Sub-Sahara Africa

April 7, 2019|Africa, HAEi News, Kenya, South Africa|

From Patricia Karani, Regional Patient Advocate, Sub-Sahara Africa SOUTH AFRICA The first patient meeting was held 14 March 2019 in Cape Town. In attendance were doctors and patients who learned more on HAE and how best [...]

Takeda Completes Acquisition of Shire

January 10, 2019|HAEi News|

Takeda Pharmaceutical Company Limited has completed its acquisition of Shire plc, becoming a global, values-based, R&D-driven biopharmaceutical leader headquartered in Japan. Takeda now has an attractive, expanded geographic footprint and leading position in Japan and [...]

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Apr 1, 2019 - May 31, 2019
HAE Global Walk 2019


May 23, 2019 - May 26, 2019
11th C1-INH Deficiency Workshop

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Jun 15, 2019
HAE IN-MOTION 5K walk/run


Jun 19, 2019 - Jun 20, 2019
Scientific and Practical International HAE Conference

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