NEWS
Astria to present at upcoming Bradykinin Symposium
Astria to present at upcoming Bradykinin Symposium Astra Therapeutics announced that it will present two posters at the upcoming Bradykinin Symposium in Berlin, Germany on 6 September 2024: Chris Morabito, M.D., Chief Medical Officer [...]
KalVista announces six abstracts accepted for presentation at the 2024 Bradykinin Symposium
KalVista Pharmaceuticals announces six abstracts accepted for presentation at the 2024 Bradykinin Symposium KalVista Pharmaceuticals today announced the acceptance of multiple abstracts at the 2024 Bradykinin Symposium taking place in Berlin, Germany on 5-6 [...]
Pharvaris reports Q2 2024 financial results and provides business update
Pharvaris reports second quarter 2024 financial results and provides business update Pharvaris announced their financial results for the second quarter ended 30 June 2024, and provided a business update. Berndt Modig, Chief Executive Officer [...]
KalVista Announces Validation of MAA by the EMA for Sebetralstat for HAE
KalVista Announces Validation of Marketing Authorization Application by the European Medicines Agency for Sebetralstat for Hereditary Angioedema KalVista Pharmaceuticals announced that the European Medicines Agency (EMA) has validated the submission of a Marketing Authorization [...]
Astria chooses Ypsomed’s YpsoMate as injection device for STAR-0215 for treatment of HAE
Astria Therapeutics chooses Ypsomed’s YpsoMate as the injection device for STAR-0215 for the treatment of hereditary angioedema Astra Therapeutics announced that it has chosen Ypsomed as its partner for the development of an autoinjector [...]
Astria reports Q2 financial results and provides a corporate update
Astria Therapeutics reports second quarter 2024 financial results and provides a corporate update Astra Therapeutics reported financial results for the second quarter ended 30 June 2024, and provided a corporate update. Jill C. Milne, [...]
News from Mexico
From Sandra Agustina Nieto-Martinez, HAE Mexico (AMAEH) On November 23, 2023, the Commission for Attention to Vulnerable Groups, chaired by Representative Gabriela Sodi and held in collaboration with the Mexican Association of Hereditary Angioedema [...]
News from USA
From Jess Myers, US HAEA hae day :-) Recap This year’s celebration of hae day :-) was especially memorable as we commemorated the 25th anniversary of the US HAEA. Participants of the 2024 hae [...]
News from Ukraine
From Natalia Formaniuk, HAE Ukraine This year, we started preparing for HAE Awareness Month in advance and actively participated in the #active4HAE activity challenge on the haeday.org website. This initiative helps to spread the [...]
News from the UK
From Rachel Annals, HAE UK We have had an extremely busy few months at HAE UK, with lots of projects in the pipeline and liaison with new patients. We are excited to announce our [...]
News from Türkiye
Collaborative Efforts and Advocacy At the start of this year, HAE Türkiye established a significant collaboration with another NGO focused on health policies. This partnership resulted in the publication of two position letters aimed [...]
News from Switzerland
This year, we once again held an HAE patient meeting On Saturday, 20 April 2024, from 8:45 AM to 5:00 PM at Zurich Airport, these HAE experts were available for a panel discussion to [...]
News from Spain
From Sarah Smith, HAE Spain, AEDAF hae day :-) 2024 AEDAF took part in the hae day :-) 2024 global activity campaign, #active4HAE, with their activity “Sharing my favorite place in favor of the [...]
News from Serbia
From Sofija Popovic, HAE Serbia In anticipation of hae day :-) 2024, HAE Serbia organized a hike on the mountain Avala, aiming to raise awareness of hereditary angioedema. The event brought together a diverse [...]
News from Russia
On May 11, 2024, the Interregional Public Organization “Society of Patients with Hereditary Angioedema” (IPO “OPNAO”) held a webinar for parents of children with HAE. Patients with HAE from different regions of the country [...]
News from Panama
As part of their hae day :-) celebration, the group of patients from Panama, along with caregivers and family members, visited several health centers to educate healthcare professionals about HAE. Dr. Olga Melcina Barrera [...]
News from Pakistan
On the occasion of hae day :-), a remarkable gathering of medical professionals and patients was arranged by HAE Pakistan at Kabir Restaurant in Peshawar. Miss Khatera Naimi represented HAE Afghanistan to raise awareness [...]
News from South Korea
From Soojin Min, HAE Korea I hope this letter finds you well. Congratulations on the 2024 hae day :-) event on its remarkable achievement in Korea. I am pleased to inform you that the [...]
News from Italy
3rd Congress of ITACA co-joined with the AAEE assembly On March 16, 2024, at the Visconti Palace Hotel in Milan, where the 3rd Congress is taking place at the same time as the National [...]
Intellia announces Q2 2024 financial results and highlights recent company progress
Intellia announces second quarter 2024 financial results and highlights recent company progress Intellia reported operational highlights and financial results for the second quarter ended 30 June 2024. Intellia President and Chief Executive Officer John [...]
News from Iran
Conference on “Challenges and Solutions in the Lives of Patients with Hereditary Angioedema” (On the occasion of hae day :-)) The Immunodeficiency Patient’s Advocacy Association (IDPA), in partnership with the Immunology, Asthma, and Allergy [...]
News from Georgia
We regularly communicate with HAE patients and recently identified three new cases (we have a total of 26 diagnosed HAE patients). Our interactions encompass both offline and online meetings with individual patients, groups, and [...]
News from El Salvador
Raquel Fuentes, patient lead from El Salvador, worked with the media to raise awareness about HAE as part of their activities for hae day :-). Raquel, together with Dr. Ochoa, visited radio and television [...]
News from Croatia
From HAE Croatia Dear HAE community! We are sending you a short but very eventful report on the work of the HAE Croatia association. The year started with a lot of activities. In cooperation [...]
News from Czech Republic
From Camelia C. Isaic, HAE Junior z.s. HAE Junior Educational Camp 2024, under the auspices of the Czech First Lady, highlighted the importance of siblings. As part of the fifth educational camp, our Czech [...]
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