NEWS
Digital Health Innovation Challenge in Canada
Takeda Canada Inc. launches the Takeda Canada Innovation Challenge, an initiative that aims to discover new and breakthrough digital technologies and artificial intelligence (AI) solutions that support enhanced patient care. Takeda Canada is looking for innovative solutions [...]
News from USA
From Digital & Social Media Manager Ianice Viel, US HAEA 2021 has continued to be an incredibly productive year for the US HAEA despite the ongoing pandemic-related challenges. As shown in the examples that [...]
News from Japan
From President Beverley Yamamoto, HAE Japan The non-profit organization Discovery Consortium has been established in Japan to try and lift the diagnosis rate for HAE up to the kind of levels seen in North [...]
News from Croatia
From Mihaela Šogorić, President of HAE Croatia HAE Croatia organized a gathering during the weekend 2-3 October 2021 in Tuheljske Toplice. It was the first such encounter in Croatia. The gathering began with the [...]
News from Brazil
Short but sweet from HAE Brazil (ABRANGHE) Subcutaneous Berinert has been approved in Brazil for prophylactic treatment. It has been available for medical prescription to patients since 1 November 2021. >> Read more about [...]
News from the UK
From Executive Officer Rachel Annals, HAE UK HAE UK have been working on and supporting a number of projects over the past few months: Our recently launched nurses’ program, developed in conjunction with our [...]
News from Australia and New Zealand
From CEO Fiona Wardman, HAE Australasia: Patients in Australia are thankful for our Health Minister’s decision to sign off on the recommendation to fund Takhzyro (lanadelumab). As of 1 December 2021, more patients have [...]
News from Turkey
From President Gökben Yurdakul, HAE Turkey We are so happy to be here and share our accomplishments with you. During the COVID-19 pandemic, we have held a number of online meetings with our patients and [...]
News from South Africa
From HAE South Africa HAE South Africa have received our approval as a non-profit company which means we are now able to actively raise funds for our organization. We have recruited two new members [...]
News from Canada
From President Jacquie Badiou and COO Daphne Dumbrille, HAE Canada This fall HAE Canada hit the ground running. Our first task of the season was to present our poster titled, “Hereditary angioedema in Canada: [...]
News from Spain
From President Sarah Smith, HAE Spain (AEDAF) 23rd AEDAF General Assembly: Because of our decision to avoid in-person events during all of 2021 and in keeping with the Association’s Statutes, AEDAF held its 23rd [...]
News from Russia
From HAE Russia We bring good news for juvenile HAE patients and their parents as children with HAE will soon begin receiving advanced pathogenetic medications from the Circle of Good Foundation. The Circle of [...]
News from Denmark, Norway and Sweden
HAE Scandinavia has appointed the Board for the next two years: Chairman Henrik Balle Boysen (Denmark), Vice Chairman Jørn Schultz-Boysen (Denmark), Treasurer Karina Langsager (Denmark), Secretary Erik Hovgaard Hansen (Denmark), Karen Jespersen-Hansen [...]
Orladeyo see strong patient demand
“Following 12 months of a successful launch through a global pandemic, we have a clear picture of the continued commercial trajectory for Orladeyo based on a very attractive product profile, leading to strong patient demand [...]
Intellia Highlights Priorities and Anticipated Milestones
Intellia Therapeutics, Inc. outlines its expected HAE milestones and strategic priorities for 2022: “Unequivocally, 2021 was a landmark year for Intellia. We demonstrated that our proprietary CRISPR-based platform and LNP technology can turn revolutionary science [...]
HAEi Advocacy Academy: A Training Resource Designed Around the Needs Identified by our Regional Advisory Groups
By Fiona Wardman, HAEi Chief Regional Patient Advocate HAEi Advocacy Academy is the premier online learning platform for the HAE Community that supports people living with HAE in their everyday life and offers training [...]
Finally together again for HAE Scandinavia’s 2021 Scandinavian Conference and 20th anniversary
No matter where people with HAE gather in large groups – for example, at national or international meetings and conferences – there is joy of getting together with HAE friends old and new. This [...]
News from Nordics & DACH
From Regional Patient Advocate Jørn Schultz-Boysen The Regional Medical Advisory Panel (RMAP) is still taking form for the region. While some doctors have already agreed to participate, some countries are still in dialogue. The [...]
News from South Eastern Europe
From Regional Patient Advocate Natasa Angjeleska In October, I was focused on stirring up the countries’ interest in HAEi resources. I invited patient representatives to a member organization online meeting for my region, where [...]
News from Central America and Caribbean
From Regional Patient Advocate Javier Santana Thanks to the cooperation with the consulting doctors of the patient groups in the Central American region, new doctors from Honduras and Nicaragua have been contacted. In both [...]
News from South America and Mexico
From Regional Patient Advocate Fernanda De Oliveira Martins I keep encouraging leaders from the member organizations in my region to follow the HAEi Advocacy Academy exclusive courses – lately, I have been sending them [...]
News from Mediterranean, North Africa and British Isles
From Regional Patient Advocate Maria Ferron I have been advising all the member organizations in my region about the new Advocacy Academy courses developed by HAEi. This is an excellent opportunity for national organizations [...]
News from Central Eastern Europe, Benelux and Middle East
From Regional Patient Advocate Michal Rutkowski Despite the difficult global pandemic situation, I hope you are keeping safe, healthy and have been already vaccinated. Firstly, happy birthday to HAE Belarus and HAE Kazakhstan, who [...]
News from Asia Pacific
From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only [...]
HAEi-Sponsored Research Focuses on Data to Support Advocacy for Modern Therapy and Improved Quality of Life
By Anthony J. Castaldo, HAEi President & CEO Access to modern HAE medicines is the key to improving our community’s quality of life. HAEi’s experience working with member organizations shows that having robust and [...]
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Oct 1, 2021 - Feb 1, 2022
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