HAEi News

Broad Response to COVID-19 and Advancements Across Strategic Scientific Platforms

2020-10-23T15:41:03+01:00October 23, 2020|HAEi News|

In its annual R&D briefing to investors CSL Limited demonstrates how the company is advancing a novel research portfolio across four strategic scientific platforms (Plasma Fractionation, Recombinant Technology, Cell and Gene Therapy, Adjuvanted Cell and Egg-based Vaccines) across six therapeutic areas (Immunology, Hematology, Respiratory, Cardiovascular and Metabolic, Transplant, Influenza Vaccines) and two businesses (CSL Behring [...]

Berotralstat significantly reduced HAE attack rates

2020-10-22T13:51:10+01:00October 22, 2020|HAEi News|

The Journal of Allergy and Clinical Immunology (JACI) publishes data from the first 24 weeks of the APeX-2 trial of oral, once-daily berotralstat in patients with HAE. APeX-2 was a Phase 3, double-blind, placebo-controlled, parallel-group trial that evaluated the efficacy and safety of oral, once-daily berotralstat versus placebo over 24-weeks in 121 HAE patients ages 12 [...]

Antisense medicine being evaluated in clinical study of COVID-19 patients

2020-10-19T10:18:36+01:00October 18, 2020|HAEi News|

IONIS-PKK-LRx from Ionis Pharmaceuticals, Inc. is being evaluated in an investigator-initiated Phase 2 clinical study to determine its effectiveness in reducing the severity of respiratory complications in patients with COVID-19. The trial coordinators are Fernando G. Zampieri, M.D., Ph.D., and Alexandre Biasi Cavalcanti, M.D., Hospital do Coracao (HCor Research Institute), Sao Paulo, Brazil. The study [...]

Update on KalVista’s Oral HAE Franchise

2020-10-16T10:40:22+01:00October 16, 2020|HAEi News|

KalVista Pharmaceuticals, Inc. provides an update on its franchise of oral therapies for treatment of HAE. “We have completed enrollment of our Phase 2 trial for our oral on-demand HAE treatment, KVD900, and remain on track to deliver data before the end of this year. We are also pleased to announce data from KVD824, our oral [...]

Global Network of Accredited Angioedema Care Centers Grows Rapidly

2020-10-09T10:12:21+01:00October 9, 2020|HAEi News|

Ten months ago, HAE International and the non-profit organization of leading clinical and research facilities in the field of allergy and asthma GA2LEN established GA2LEN/HAEi Angioedema Centers of Reference and Excellence – or in short ACARE. “The joint venture with GA2LEN fulfills our longstanding goal of establishing a worldwide network of accredited angioedema care [...]

HAEi Advocacy Academy is Your First Step to Successful Advocacy

2020-10-09T10:12:21+01:00October 9, 2020|HAEi News|

HAE International remains dedicated to finding innovative ways to serve the HAE community and are happy to announce the new initiative HAEi Advocacy Academy. “HAEi Advocacy Academy – a free online advocacy training platform that will be rolled out within the next few weeks – includes a variety of tutorials and other materials that [...]

José Egidio Fabiani in memoriam

2020-10-09T10:12:21+01:00October 9, 2020|HAEi News|

Dr. José Egidio Fabiani, who distinguished himself within HAE in his native Argentina as well as in Latin America, passed away earlier this year. In a eulogy Alejandra Menendez, President of HAE Argentina, writes: “Dr. José Egidio Fabiani was the initial engine for the development of the study and treatment of HAE in Argentina. [...]

New App from HAEi will be Your Loyal Companion

2020-10-09T10:12:21+01:00October 9, 2020|HAEi News|

HAEi has developed HAE Companion an exciting new App that provides an easy way to access and store the popular HAE International emergency card that is currently a paper document. This App will become available on both Apple’s App Store and Google Play for the Android platform. “One of the key elements for the [...]

News from Caribbean and Central America

2020-10-09T10:12:21+01:00October 9, 2020|HAEi News|

From Regional Patient Advocate Javier Santana Like many countries around the world, the Central American and Caribbean region has also been affected by the COVID-19 pandemic. This has allowed many governments to enact lockdown and establish new regulations to avoid contagion. We have not received information on HAE patients in the region who have [...]

News from Nordics & DACH

2020-10-05T11:54:26+01:00October 5, 2020|Austria, Denmark, Europe, Finland, Germany, Greenland, HAEi News, Iceland, Norway, Sweden, Switzerland, The Faroe Islands|

From Regional Patient Advocate Jørn Schultz-Boysen My name is Jørn Schultz-Boysen, and I am extremely happy to be appointed as the Regional Patient Advocate for the Nordics (covering Denmark, the Faroe Islands, Finland, Greenland, Iceland, Norway, and Sweden) as well as Austria, Germany, and Switzerland (also referred to as DACH). I look very much [...]