HAEi News

The Youngsters Track in Americas: The Future is Bright Following the keynote presentation, the unique HAEi Youngsters’ Community is split from the main patient and caregiver track. 90 registered young people and caregivers from 20 countries across the Americas region joined together for networking, education, and fun! The team in Panama consisted of [...]

Scientific Session, Saturday Running concurrently with the Patient Track, the Scientific Track of the 2024 HAEi Regional Conference Americas was the hub for the latest data and discussion on the diagnosis and treatment of HAE. Three physicians from across the Americas region chaired the Scientific Track: Prof. Anete Grumach from Brazil, Dr. Olga [...]

Expert Panel Q&A Prof. Marc Riedl was joined onstage by fellow Scientific Committee Co-Chairs Dr. Olga Barrera, Prof. Anete Grumach, and Americas keynote speaker, Prof. Bruce Zuraw. Fellow keynote speaker and HAEi’s Chief Medical Advisor, Prof. Marcus Maurer, facilitated the session. We present a few of the questions asked. I’m not sure if [...]

Latest Developments in HAE Science and Therapies Tony Castaldo introduced Prof. Marc Riedl, a world-class physician with amazing skills in patient care, to the audience. Prof. Riedl began his talk by addressing the conference theme of ‘Take Action.’ He told the audience that everyone does things every day to make their lives easier. [...]

HAE in women and pregnancy, Prof. Anete Grumach Prof. Grumach spoke first. She told the audience that most studies and registries show that women are more severely affected by HAE. Studies indicate between 56-75% of cases in registries around the world are women. The main reason for this is estrogen production, which is, [...]

Patient Voices – In Our Own Words The audience then heard from three courageous women intent on telling their personal stories to inspire and educate their peers. All three gave powerful speeches that resonated with all in the audience, who showed their appreciation with prolonged applause for every speaker. Taira Corrales Gonzalez , [...]

HAE in the Americas – MO Panel Discussion Javier and Fernanda brought representatives of all the Member Organizations to the stage for the Americas MO panel discussion. For many representatives, this was their first time speaking at a conference, and we truly appreciate everyone’s contributions. Here we report a summary of the questions [...]

Raising HAE Awareness in the AmericasJavier and Fernanda, two of the RPAs for the Americas region, opened the second day. Together, they told the assembled patients and caregivers about the importance of raising awareness of HAE and shared some effective ways to do so.Why is raising awareness important? It increases enthusiasm and support, stimulates [...]

Take Action and You Will Succeed With an enthusiastic introduction from Tony Castaldo, Prof. Marcus Maurer’s passion for HAE and patients was clear as he began his keynote lecture. Prof. Maurer told the audience that bringing them a message of hope gave him great joy. He believes that “together, as a community of [...]

HAE: 10 Things Patients Need to Know Taking on the challenge of following powerful, personal stories was world-renowned Prof. Bruce Zuraw. Introduced by Tony Castaldo as an ‘accomplished physician and researcher who always keeps the voice of our community in mind,’ Prof. Zuraw took to the stage. Prof. Zuraw talks about the 10 [...]