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News from South America and Mexico

2024-07-11T12:12:16+02:00July 11, 2024|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins These past months, I’ve been pushing key initiatives for HAEi, raising awareness, supporting patient groups, and advocating for improved access to HAE treatment. Here’s a breakdown of my main contributions in the past few months: HAEi has developed a great tool to support Member Organizations (MO) [...]

News from South America and Mexico

2024-05-03T09:10:41+02:00May 3, 2024|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins The 2024 HAEi Regional Conference Americas in Panama was amazing. It was a powerful source of inspiration for HAE patients, caregivers, and everyone involved with HAE. The conference equipped Member Organizations (MO) with knowledge, fostered collaboration, and empowered the MOs to continue their work and make [...]

News from Venezuela

2024-01-29T12:58:16+01:00January 29, 2024|Venezuela|

From Wilfredo Bocaranda, President, HAE Venezuela HAE Venezuela held meetings with the Authorities of the Military Hospital with Doctors Guillermo Boggiano, Rommy Boggiano, and their medical team to analyze the case of patients in Venezuela and offer an alternative treatment. The request for treatment is managed by the High Cost unit of Social Security [...]

News from Central America and Caribbean

2023-11-10T12:12:48+01:00November 10, 2023|Argentina, Bolivia, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Honduras, Nicaragua, Panama, Paraguay, Peru, Puerto Rico, South America, Trinidad, Uruguay, Venezuela, Virgin Islands|

From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]

News from South America and Mexico

2023-11-10T12:09:39+01:00November 10, 2023|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]

News from South America and Mexico

2022-12-27T13:46:39+01:00December 27, 2022|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]

News from South America and Mexico

2021-10-06T09:43:37+02:00October 6, 2021|Argentina, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, North America, Paraguay, Peru, South America, Uruguay, Venezuela|

I have been in contact with Lisa Facciolla from HAEA regarding the Brady Club. I’ve reached out to the member organizations in my region asking who are interested in receiving the kids’ material in Spanish. These countries have demonstrated interest: Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, Peru, Uruguay, and Venezuela. I am coordinating [...]

10 year achievements – Venezuela

2021-10-11T13:28:22+02:00July 15, 2021|10 year achievements, Regions, South America, Venezuela|

This input is dated May 2021 >> View content in Español In brief Name for organization: HAE Venezuela 4 members at 1 Jan 2021 Name of approved HAE treatments: Danazol Cyklokapron Fresh Plasma Fun/interesting facts Something funny always comes out of good or bad things and we [...]

2021 HAEi virtual regional workshop South America & Mexico, Central America & Caribbean

2021-07-05T15:16:59+02:00July 5, 2021|Argentina, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Mexico, North America, Panama, Paraguay, Peru, Puerto Rico, South America, Uruguay, Venezuela|

The biannual HAE Global Conference has been an excellent opportunity for people with HAE to meet, exchange experiences, and learn from each other over the years.  Following the 2018 HAE Global Conference in Vienna, Austria, organizing a workshop for fellow Latin American patients was a must. Originally the plan was to hold the first-ever [...]

News from South America and Mexico

2021-07-05T14:49:26+02:00July 5, 2021|Argentina, Brazil, Chile, Colombia, HAEi News, Mexico, North America, Paraguay, Peru, South America, Uruguay, Venezuela|

First of all: We are moving towards adding Bolivia to the HAEi world map as Dr. Ariel Ramiréz has been registered as an HAE knowledgeable physician. You can find his contact information on haei.org. Furthermore, I am in contact with a woman who has both a brother, a sister and a mother with HAE [...]

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