Chile

News from South America and Mexico

2024-07-11T12:12:16+02:00July 11, 2024|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins These past months, I’ve been pushing key initiatives for HAEi, raising awareness, supporting patient groups, and advocating for improved access to HAE treatment. Here’s a breakdown of my main contributions in the past few months: HAEi has developed a great tool to support Member Organizations (MO) [...]

News from South America and Mexico

2024-05-03T09:10:41+02:00May 3, 2024|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins The 2024 HAEi Regional Conference Americas in Panama was amazing. It was a powerful source of inspiration for HAE patients, caregivers, and everyone involved with HAE. The conference equipped Member Organizations (MO) with knowledge, fostered collaboration, and empowered the MOs to continue their work and make [...]

News from Chile

2024-01-17T12:17:56+01:00January 17, 2024|Chile, South America|

From HAE Chile This year, HAE Chile has progressed in several areas: The organization has contributed with a child’s story to the Brady Club book. The organization launched “Aeh Ayuda” in 2023 – a telephone system where calls for HAE emergencies are received 24 hours a day, seven days a week, and where patients [...]

News from Central America and Caribbean

2023-11-10T12:12:48+01:00November 10, 2023|Argentina, Bolivia, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Honduras, Nicaragua, Panama, Paraguay, Peru, Puerto Rico, South America, Trinidad, Uruguay, Venezuela, Virgin Islands|

From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]

News from South America and Mexico

2023-11-10T12:09:39+01:00November 10, 2023|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]

News from South America and Mexico

2023-06-16T09:44:42+02:00June 19, 2023|Chile, HAEi News, Mexico, South America|

From Regional Patient Advocate Fernanda De Oliveira Martins First of all, I would like to welcome José Ignacio Contreras Silva as the leader of the new Member Organization in Chile. In Spanish, the name is Corporación Angioedema Hereditario Chile – globally known as HAE Chile. The new group is getting to know the HAEi [...]

News from South America and Mexico

2022-12-27T13:46:39+01:00December 27, 2022|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]

News from Central America and Caribbean

2022-07-07T09:49:26+02:00July 6, 2022|Central America and Caribbean, Chile, Costa Rica, Dominican Republic, HAEi News, South America|

From Regional Patient Advocate Javier Santana In April, a follow-up was given to the survey that HAEi designed for my region in Spanish. The survey will help gather important information on the current situation related to HAE. All group leaders from the countries of the region participated in the survey. Chile held a virtual [...]

News from South America and Mexico

2021-12-30T11:02:03+01:00December 30, 2021|Brazil, Chile, HAEi News, Mexico, North America, Peru, South America|

From Regional Patient Advocate Fernanda De Oliveira Martins I keep encouraging leaders from the member organizations in my region to follow the HAEi Advocacy Academy exclusive courses – lately, I have been sending them information on course updates. I have supported Carla María Goachet Boulanger, President of HAE Peru, with some points regarding the [...]

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