Colombia

News from South America and Mexico

2024-05-03T09:10:41+02:00May 3, 2024|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins The 2024 HAEi Regional Conference Americas in Panama was amazing. It was a powerful source of inspiration for HAE patients, caregivers, and everyone involved with HAE. The conference equipped Member Organizations (MO) with knowledge, fostered collaboration, and empowered the MOs to continue their work and make [...]

News from Central America and Caribbean

2023-11-10T12:12:48+01:00November 10, 2023|Argentina, Bolivia, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Honduras, Nicaragua, Panama, Paraguay, Peru, Puerto Rico, South America, Trinidad, Uruguay, Venezuela, Virgin Islands|

From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]

News from South America and Mexico

2023-11-10T12:09:39+01:00November 10, 2023|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]

News from Colombia

2023-01-20T13:18:29+01:00January 20, 2023|Colombia, South America|

“Mi vida con AEH” (“My life with HAE”) is a new podcast from HAE Colombia which seeks to create awareness through the stories and experiences of the members. The aim is to motivate, help and support others through their first-hand experiences.  >> Listen to the podcast on Spotify https://open.spotify.com/show/50za3BWFyLBzPSrJ3ihQCy?si=0--bHhMDQYumcFMaMlxhrw&utm_source=copy-link&nd=1

News from South America and Mexico

2022-12-27T13:46:39+01:00December 27, 2022|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]

News from South America and Mexico

2021-10-06T09:43:37+02:00October 6, 2021|Argentina, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, North America, Paraguay, Peru, South America, Uruguay, Venezuela|

I have been in contact with Lisa Facciolla from HAEA regarding the Brady Club. I’ve reached out to the member organizations in my region asking who are interested in receiving the kids’ material in Spanish. These countries have demonstrated interest: Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, Peru, Uruguay, and Venezuela. I am coordinating [...]

2021 HAEi virtual regional workshop South America & Mexico, Central America & Caribbean

2021-07-05T15:16:59+02:00July 5, 2021|Argentina, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Mexico, North America, Panama, Paraguay, Peru, Puerto Rico, South America, Uruguay, Venezuela|

The biannual HAE Global Conference has been an excellent opportunity for people with HAE to meet, exchange experiences, and learn from each other over the years.  Following the 2018 HAE Global Conference in Vienna, Austria, organizing a workshop for fellow Latin American patients was a must. Originally the plan was to hold the first-ever [...]

News from South America and Mexico

2021-07-05T14:49:26+02:00July 5, 2021|Argentina, Brazil, Chile, Colombia, HAEi News, Mexico, North America, Paraguay, Peru, South America, Uruguay, Venezuela|

First of all: We are moving towards adding Bolivia to the HAEi world map as Dr. Ariel Ramiréz has been registered as an HAE knowledgeable physician. You can find his contact information on haei.org. Furthermore, I am in contact with a woman who has both a brother, a sister and a mother with HAE [...]

News from South America and Mexico

2021-04-05T19:48:08+02:00April 5, 2021|Colombia, HAEi News, Mexico, North America, Peru, South America|

Over the past few months, I have been working with the member organizations in my region and informing them about new resources like the Emergency Room Poster and the new HAE TrackR app.  There has been a lot of work and communications on collecting information for the hae day :-) 10th anniversary campaign.   [...]

News from South America & Mexico

2020-12-21T12:49:50+01:00December 21, 2020|Argentina, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, North America, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda de Oliveira Martins I organized a conference call for member organization leaders on 10 September 2020. Present were representatives from Argentina, Brazil, Chile, Ecuador, Mexico, Peru, Uruguay, and Venezuela. I have requested updated information on the number of patients, medication status etc., and at this point, I have received [...]

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