I participated in an interview with Dr. Olga Barrera in Panama for a national newspaper to highlight HAE patients’ situation in the country. In Puerto Rico, I have had several communications with Dr. Rafael Zaragoza, representatives of pharmaceutical companies, lawmakers, and legislative advisers about the reconsideration of the law that would give HAE patients [...]
From Regional Patient Advocate Javier Santana During the month of December, we are hosting another webinar in Spanish with Dr. Rafael Zaragoza on HAE and COVID-19 in order to update the HAE community from the region on the latest medical information. We expect this event will be well attended. We are also excited that [...]
From Regional Patient Advocate Javier Santana During the past months, many patients in the Latin American region have been pending all the information related to the global pandemic coronavirus COVID-19. During the month of March, a virtual conference was held in Spanish so that Spanish-speaking patients who wanted to clarify doubts about coronavirus and [...]
HAE DOMINICAN REPUBLIC Dominican Republic · Central America and Caribbean On this page we have pulled together presently available information relevant for HAE patients and caregivers in Dominican Republic. HAE online in Dominican Republic Visit our [...]
From Regional Patient Advocate Javier Santana: I am continuing to provide support to the member organizations and HAE patients in Guatemala, Panama, El Salvador, and the Dominican Republic through HAE international programs and services, and by helping to identify and refer more HAE patients.
From Regional Patient Advocate Javier Santana I have held discussions with a pharma company from Costa Rica who wishes to introduce a generic HAE treatment to Costa Rica, Guatemala, and Peru. The company is currently engaged in discussions with doctors in these countries. A European citizen will be temporarily relocating to El Salvador to participate [...]
From Regional Patient Advocate Javier Santana: December 2019: A success during the last few months includes contacting Dr. Patricia Latour, an Allergist and Epidemiologist from the Dominican Republic. Dr. Latour is president of the Latin American Society of Allergy, Asthma and Immunology. According to information provided by Dr. Latour, the Dominican Republic has identified 22 patients in clinics around the country. Dr. Latour [...]
From Regional Patient Advocate Javier Santana: Together with a doctor from Puerto Rico, I am planning on visiting doctors in the Dominican Republic to identify HAE patients and help in the diagnosis and treatment process.