From Regional Patient Advocate Fernanda De Oliveira Martins
First of all, I would like to welcome José Ignacio Contreras Silva as the leader of the new Member Organization in Chile. In Spanish, the name is Corporación Angioedema Hereditario Chile – globally known as HAE Chile. The new group is getting to know the HAEi tools and resources and will soon be able to implement a website as well as other support tools such as the Emergency Card. For more information, please visit the country page for Chile.
The Member Organizations in my region have been busy with events and activities in celebration of the global Rare Disease Day. Together, we are helping to raise awareness of HAE. Congratulations to all the Member Organizations in the region!
We are very proud to have eight participants from South America and Mexico among the 20 total young people participating in the LEAP program. They are the future of the HAE advocacy work, and we very much congratulate them for this achievement.
Furthermore, I would like to mention that the region has been represented at patient meetings of pharma companies such as Takeda and Pharvaris.
