The HAEi team works hard to provide our community with programs, services, and activities that help member organizations achieve their advocacy goals. We now have a global advocacy network of member organizations in 96 countries and expect that number to grow significantly in the coming years. Recognizing the need to keep pace with rapidly evolving opportunities and challenges facing people with HAE, HAEi’s Board of Directors approved organizational changes with an eye toward the future. These changes will be implemented on 1 July 2023.

Tony Castaldo, who has led HAEi since the organization’s inception in 2004, will continue serving as Chief Executive Officer and has also been appointed Chairman of the Board. He will continue leading the entire HAEi enterprise and work with the new executive team to establish HAEi’s long- and short-term strategic and operational direction and plans.

Henrik Balle Boysen has been appointed as HAEi’s President. Currently serving as Executive Vice President and Chief Operating Officer, Henrik has been the driving force behind our remarkable growth and the architect of the technology-based platforms and apps. His efforts are the reason that HAEi has the distinction of being considered one of the world’s leading rare disease global umbrella organizations. As President, Henrik will be responsible for strategic and operational planning and guiding the leadership team’s implementation of HAEi’s programs, services, and activities. In addition, Henrik has been elected to the Board of Directors.

Fiona Wardman, our Chief Regional Patient Advocate (CRPA) and RPA for Asia Pacific, moves up to become Executive Vice President Global Advocacy and Chief Diversity Officer. In her capacity as CRPA, Fiona has provided effective leadership that helped our highly talented Regional Patient Advocates achieve the goals set out for the various HAEi regions. She has led a very successful effort to establish new member organizations in the Asia Pacific Region. Her new role expands her responsibilities to include leading and overseeing all of HAEi’s advocacy activities.

Jørn Schultz-Boysen has been selected to serve as Executive Vice President Global Operations and Chief Compliance Officer. Jørn currently serves as HAEi’s Executive Project Manager and RPA for Nordics, Germany, Austria, Switzerland, and Israel. He has a deep business background, having served in executive positions at various companies with international operations. Jørn will take over the day-to-day operational, managerial, and financial responsibilities formerly handled by Henrik. He will also continue serving as an RPA.

Michal Rutkowski has been appointed as Director, Regional Patient Advocate Program. Michal moves up from his position as RPA for Central Eastern Europe, Benelux, and The Middle East. His many successes include helping existing member organizations expand their capabilities and nurturing the formation of many patient groups throughout the huge region that he serves. He will continue as the RPA for the region he currently handles.