From Wilfredo Bocaranda, President, HAE Venezuela
HAE Venezuela held meetings with the Authorities of the Military Hospital with Doctors Guillermo Boggiano, Rommy Boggiano, and their medical team to analyze the case of patients in Venezuela and offer an alternative treatment. The request for treatment is managed by the High Cost unit of Social Security in Venezuela and is currently in process.
We also held working meetings with the Institute of Immunology of the Central University of Venezuela to organize the procedures to begin testing Genetic Therapy studies in the experimental phase. The Bocaranda Family will be one of those selected to begin this process, and as far as possible, other families will be incorporated into the procedure.
HAE Venezuela also communicated via email to request information and follow up on the oral treatment found on the HAE treatment market. The organization has hopes for access to treatments for the Venezuelan population, who currently do not have any treatment, and even the option of fresh plasma is unattainable due to the existing hospital crises, considering that the largest population has very low resources.
