HAE SPAIN
Asociación Española de Angioedema Familiar (AEDAF)

  ·  Spain  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Spain.

HAE online in Spain

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10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Spain’s achievements and hopes for the future

News and events

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– Language: All

Mar 17, 2023 - Mar 19, 2023 at All Day

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– Language: All

May 4, 2023 - May 7, 2023 at All Day

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– Language: All

Sep 1, 2023 - Sep 3, 2023 at All Day

Local contacts

Sarah L. Smith Foltz
President

gro.fadea-amedeoigna@rid

Maria Ferron
Regional Patient Advocate Mediterranean, North Africa and British Isles

gro.ieah@norref.m

HAE in Spain

Available medication in Spain:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • Danazol
  • Tranexamic Acid

HAE Places in Spain

  • Hospital - Valladolid, Spain

    Hospital Rio Hortega (Hospital)
  • Hospital - Galdakao, Spain

    Hospital Galdakao y Usansolo de Galdakao (Vizcaya) (Hospital)
  • Hospital - Zaragoza, Spain

    Hospital Clínico Universitario “Lozano Blesa” (Hospital)
  • Hospital - Pamplona, Spain

    Complejo Hospitalario de Navarra (Hospital)
  • Hospital - Leganés, Spain

    Hospital Universitario Severo Ochoa (Hospital)
  • Hospital - Barcelona, Spain

    Hospital Universitario de Bellvitge (Hospital)
  • Hospital - Alicante, Spain

    Hospital Marina Baixa (Hospital)
  • Hospital - Sevilla, Spain

    Hospital Universitario Virgen de la Macarena (Hospital)
  • Hospital - Logroño, Spain

    Hospital de San Pedro (Hospital)
  • Hospital - Jaén, Spain

    Complejo Hospitalario de Jaén (Hospital)
  • Hospital - Bilbao (Vizcaya), Spain

    Hospital de Basurto (Hospital)
  • Hospital - Vigo (Pontevedra), Spain

    Complejo Hospitalario de Vigo (Hospital)
  • Hospital - Palma de Mallorca (Baleares), Spain

    Hospital Universitario Son Duerta (Hospital)
  • Hospital - Valencia, Spain

    Hospital Universitario La Fe (Hospital)
  • Hospital - Madrid, Spain

    Hospital Universitario Gregorio Maranon (Hospital)
  • Hospital - Talavera de la Reina (Toledo), Spain

    Hospital Nuestra Senora del Prado (Hospital)
  • Hospital - Malaga, Spain

    Hospital Regional Universitario Carlos Haya (Hospital)
  • Hospital - Sevilla, Spain

    Hospital Universitario Virgen del Rocio (Hospital)
  • Hospital - Madrid, Spain

    Hospital Universitario La Paz (Hospital)
  • HAE Spain

    Asociación Española de Angioedema Familiar - AEDAF (Member Organization)
  • ACARE Center - Barcelona, Spain

    Hospital del Mar. IMIM. Universitat Autonoma y Pompeu Fabra (ACARE Center)
  • ACARE Center - Barcelona, Spain

    Hospital Vall d'Hebron (ACARE Center)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life