HAEA Puerto Rico

  ·  Puerto Rico  ·  Central America and Caribbean

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Puerto Rico.

HAE online in Puerto Rico

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10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Puerto Rico’s achievements and hopes for the future

News and events

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– Language: All
Sheraton Frankfurt Airport Hotel and Conference Center
Frankfurt Germany Germany

Oct 6, 2022 - Oct 9, 2022 at All Day

Local contacts

Ianice Viel‭
National contact


Javier Santana
Regional Patient Advocate – Central America and the Carribean


More about Javier

HAE in Puerto Rico

Available medication in Puerto Rico:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • Kalbitor

HAE Places in Puerto Rico

  • Hospital - Humacao, Puerto Rico

    Hospital Ryder (Hospital)
  • Physician - Humacao, Puerto Rico

    Cristina Ramos Romey, MD (Physician)
  • Physician - San Juan, Puerto Rico

    Rafael Zaragoza, MD (Physician)
  • HAE Puerto Rico

    HAEA Puerto Rico (HAE Puerto Rico) (Member Organization)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language