Association des Malades Souffrant d’Angio-œdèmes

  ·  France  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in France.

HAE online in France

Visit our website

10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about France’s achievements and hopes for the future

News and events

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– Language: All
Sheraton Frankfurt Airport Hotel and Conference Center
Frankfurt Germany Germany

Oct 6, 2022 - Oct 9, 2022 at All Day

Local contacts

Maria Ferron
Regional Patient Advocate Mediterranean, North Africa and British Isles


HAE in France

Available medication in France:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • Cetor
  • Orladeyo

HAE Places in France

  • Physicians - France

    Physicians - France (Physician)
  • ACARE Center - Paris, France

    Hôpital Tenon (ACARE Center)
  • Hospital - Angers, France

    CHU Angers (Hospital)
  • Hospital - Nice, France

    Hôpital L'Archet (Hospital)
  • ACARE Center - Montpellier, France

    Montpellier University Hospital (ACARE Center)
  • Hospital - Marseille, France

    Hôpital de la Conception (Hospital)
  • Hospital - Lille, France

    Hôpital Claude Huriez (Hospital)
  • Hospital - Paris, France

    Hôpital Saint Antoine (Hôpitaux Universitaires de l’Est Parisien) AP-HP (Hospital)
  • Hospital - Lyon, France

    Hôpital Edouard Herriot (Hospital)
  • Hospital - Lyon, France

    Hospices Civils de Lyon, Hôpital Edouard Herriot (Hospital)
  • ACARE Center - Grenoble, France

    CREAK - National French Reference Center for Angioedema (ACARE Center)
  • HAE France

    Association Francaise des Malades Soufrant d'Angio-ædèmes - AMSAO (HAE France) (Member Organization)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language