HAE TURKEY
Herediter Anjiyoödem Hastaları Dayanışma ve Yardımlaşma Derneği (HAÖDER)

  ·  Turkey  ·  Middle East  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Turkey.

HAE online in Turkey

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Understanding HAE

In 2023, HAEi launched a new comprehensive brochure with a full description of HAEi and HAE matters – and it’s been translated into Turkish.

>> Download and read the guide ‘Heredİter Anjİyoödem’İ Anlamak’ (pdf) – in Turkish

10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Turkey’s achievements and hopes for the future

News and events

The latest news from HAEi

Click here to see a list of all HAEi news

HAE events

Click here to see a list of all HAEi events

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HAE Patient Workshop; HAE Saudi Arabia
– Language: Arabic
King Faisal Specialist Hospital & Research Centre
Riyadh 11564 Saudi Arabia

May 11, 2024 at 10:00 am - 4:30 pm

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hae day :-) 2024
– Language: All

May 16, 2024 at All Day

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En tur i Regnbuen med HAE Scandinavia
– Language: Danish
ARoS
Aarhus Denmark

May 17, 2024 at 6:00 pm - 9:00 pm

Local contacts

Ersan Sevinç
International Communication Manager

moc.liamg@eyikrutredoah

Gökben Yurdakul

Gökben Yurdakul
President

moc.liamtoh@lukadruynebkog

Natasa Angjeleska
Regional Patient Advocate – South Eastern Europe

gro.ieah@akselejgna.n

More about Natasa

HAE in Turkey

Available medication in Turkey:

  • Berinert
  • Firazyr
  • Cinryze
  • Icatibant
  • Danazol

HAE Places in Turkey

  • HAE Turkey

    HAÖ Hasta Yardımlaşma ve Dayanışma Derneği (Member Organization)

  • Hospital - Konya, Turkey

    Necmettin Erbakan University, Division of Immunology and Allergy (Hospital)

  • Hospital - Ankara, Turkey

    Hacettepe University Hospital, Division of Immunologic and Allergic Diseases (Hospital)

  • Hospital - Sanliurfa, Turkey

    Harran University Hospital, Division of Pediatric Allergy & Immunology (Hospital)

  • Hospital - Gaziantep, Turkey

    Gaziantep University Medical Faculty, Department of Pediatric Allergy and Immunology (Hospital)

  • Hospital - Adana, Turkey

    Cukurova University Faculty of Medicine, Division of Pediatric Allergy and Immulogy (Hospital)

  • Hospital - Ankara, Turkey

    GATA Clinic of Allergy (Hospital)

  • Hospital - Izmir, Turkey

    Ege University Faculty of Medicine, Division of Allergy & Immunology (Hospital)

  • Physician - Gaziantep, Turkey

    Ozlem Keskin, MD, Professor (Physician)

  • Physician - Ankara, Turkey

    Dr. Gül Karakaya (Physician)

  • Physician - Izmir, Turkey

    Dr. Okan Gullbahar (Physician)

  • Physician - Izmir, Turkey

    Dr. Emine Nihal Mete Gökmen (Physician)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life