HAE Vereinigung e.V.

  ·  Germany  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Germany.

HAE online in Germany

Visit us on Facebook

Visit our website

10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Germany’s achievements and hopes for the future

News and events

*, *
– Language: All

Oct 3, 2024 - Oct 6, 2024 at All Day

*, *
– Language: All

Oct 4, 2024 - Oct 5, 2024 at All Day

*, *
– Language:

Dec 12, 2024 at 12:00 am

Local contacts

Lucia Schauf

Jørn Schultz-Boysen

Regional Patient Advocate – Nordics & Germany, Austria and Switzerland (DACH)


HAE in Germany

Available medication in Germany:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • Orladeyo

HAE Places in Germany

  • Hospital - Mörfelden-Walldorf, Germany

    Hämophilie-Zentrum Rhein Main (HZRM) (Hospital)
  • Hospital - Frankfurt, Germany

    Klinikum der Johann-Wolfgang-Goethe-Universität (Hospital)
  • Hospital - Munich, Germany

    HNO-Klinik Klinikum rechts der Isar (Hospital)
  • HAE Germany

    HAE Vereinigung e.V. (HAE Germany) (Member Organization)
  • Physician - Ottobrunn, Germany

    Prof. Dr. med. Murat Bas (Physician)
  • Hospital - Hannover, Germany

    Medizinische Hochschule Hannover, Klinik für Dermatologie, Allergologie und Venerologie (Hospital)
  • Physician - Leipzig, Germany

    Klinikum St. Georg für Kinder- und Jugendmedizin (Physician)
  • Physician - Münster, Germany

    Prof. Dr. med. Randolf Brehler (Physician)
  • Physician - Braunschweig, Germany

    Dr. med. Eberl (Physician)
  • Physician - Lübeck, Germany

    PD Dr. med. Andreas Recke (Physician)
  • Physician - Düsseldorf, Germany

    Uniklinik Düsseldorf (Physician)
  • Physician - Kiel, Germany

    Prof. Dr. med. Guido Heine (Physician)
  • Physician - Krefeld, Germany

    Dr. med. Nina Dominas (Physician)
  • Physician - Munich, Germany

    Prof. Dr. med. Karin Kurnik (Physician)
  • Physician - Munich, Germany

    PD Dr. med. Patrick Möhnle (Physician)
  • ACARE Center - Berlin, Germany

    Charité - Universitätsmedizin Berlin (ACARE Center)
  • ACARE Center - Buxtehude, Germany

    Elbeklinikum Buxtehude (ACARE Center)
  • ACARE Center - Kayseri, Türkiye

    Erciyes University School of Medicine (ACARE Center)
  • ACARE Center - Ulm, Germany

    Ulm University Medical Center (ACARE Center)
  • ACARE Center - Leipzig, Germany

    Universität Leipzig (ACARE Center)
  • ACARE Center - Mainz, Germany

    Universitätsmedizin der Johannes Gutenberg-Universität Mainz (ACARE Center)
  • ACARE Center - Göttingen, Germany

    Universitätsmedizin Göttingen (ACARE Center)
  • ACARE Center - Dresden, Germany

    University Hospital Carl Gustav Carus, Technical University Dresden (ACARE Center)
  • ACARE Center - Erlangen, Germany

    University of Erlangen (ACARE Center)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

Stay tuned – sign up for our newsletter


HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life