HAE Vereinigung e.V.

  ·  Germany  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Germany.

HAE online in Germany

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10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Germany’s achievements and hopes for the future

News and events

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– Language: All
Sheraton Frankfurt Airport Hotel and Conference Center
Frankfurt Germany Germany

Oct 6, 2022 - Oct 9, 2022 at All Day

Local contacts

Lucia Schauf

Jørn Schultz-Boysen

Regional Patient Advocate – Nordics & Germany, Austria and Switzerland (DACH)


HAE in Germany

Available medication in Germany:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • Orladeyo

HAE Places in Germany

  • ACARE Center - Erlangen, Germany

    Universitätsklinikum Erlangen (ACARE Center)
  • ACARE Center - Göttingen, Germany

    Universitätsmedizin Götting (ACARE Center)
  • Hospital - Mörfelden-Walldorf, Germany

    Hämophilie-Zentrum Rhein Main (HZRM) (Hospital)
  • ACARE Center - Buxtehude, Germany

    Elbeklinikum Buxtehude, Klinik für Dermatologie (ACARE Center)
  • ACARE Center - Dresden, Germany

    Universitiy Hospital Carl Gustav Carus - Klinik und Poliklinik für Dermatologie (ACARE Center)
  • ACARE Center - Leipzig, Germany

    Klinik für Dermatologie (ACARE Center)
  • ACARE Center - Berlin, Germany

    Charité - Universitätsmedizin Berlin, Klinik für Dermatologie, Venerologie und Allergologie (ACARE Center)
  • Hospital - Frankfurt, Germany

    Klinikum der Johann-Wolfgang-Goethe-Universität (Hospital)
  • ACARE Center - Mainz, Germany

    Hautklinik und Poliklinik Universitätsmedizin der Johannes Gutenberg-Universität Mainz (ACARE Center)
  • ACARE Center - Ulm, Germany

    Universitätsklinik und Hochshculambulanz für Hals-Nasen-Ohren-Heilkunde (ACARE Center)
  • Hospital - Munich, Germany

    HNO-Klinik Klinikum rechts der Isar (Hospital)
  • HAE Germany

    HAE Vereinigung e.V. (HAE Germany) (Member Organization)
  • Physician - Ottobrunn, Germany

    Prof. Dr. med. Murat Bas (Physician)
  • Hospital - Hannover, Germany

    Medizinische Hochschule Hannover, Klinik für Dermatologie, Allergologie und Venerologie (Hospital)
  • Physician - Leipzig, Germany

    Klinikum St. Georg für Kinder- und Jugendmedizin (Physician)
  • Physician - Münster, Germany

    Prof. Dr. med. Randolf Brehler (Physician)
  • Physician - Braunschweig, Germany

    Dr. med. Eberl (Physician)
  • Physician - Lübeck, Germany

    PD Dr. med. Andreas Recke (Physician)
  • Physician - Düsseldorf, Germany

    Uniklinik Düsseldorf (Physician)
  • Physician - Kiel, Germany

    Prof. Dr. med. Guido Heine (Physician)
  • Physician - Krefeld, Germany

    Dr. med. Nina Dominas (Physician)
  • Physician - Munich, Germany

    Prof. Dr. med. Karin Kurnik (Physician)
  • Physician - Munich, Germany

    PD Dr. med. Patrick Möhnle (Physician)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Access Program

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Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language