Social media

Social media 2017-05-31T19:25:08+00:00

Naturally you will find HAEi on the most common social media.

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Join the HAEi community on Facebook
Share your story, your questions or your concerns and get inspiration and support from fellow patients and others with interest in HAE. Check us out on Facebook here.

Follow HAEi on Twitter
Follow on Twitter and join our discussions about HAE topics. Use #HAEi, #hereditaryangioedema or #haeday when twitting. Check us out on Twitter here.

Connect and stay tuned on LinkedIn
For more corporate news, follow HAEi on LinkedIn. Make sure to be the first to get HAE related news posted on our LinkedIn profile. Check us out on LinkedIn here.

Support us by posting your smile
Each 16 May the global hae day :-) raises awareness of HAE among the general public, health authorities, and the medical community. Send your smile here.

See our videos on YouTube
On the HAEi YouTube channel you will find a number of short videos on HAE. Check them out here.

A picture is worth a thousand words
Check out the HAEi Flickr account for pictures from the 2014 HAE Global Conference here.

“Although HAE does have a big impact on my day-to-day activities, I am determined to not let it stop me doing the things I love and leading a full and active life.”
Rachel Annals, United Kingdom
“I’m a lot more optimistic than I was 40 years ago. I’ll be the first who will test the latest medicine at the age of 100!”
Arianna Kitzinger, Hungary
“I have been a scout since my teens, and I have tried things like hiking, camping, cycling, exploring caves, kickboxing, and kungfu. Doing this I have never asked for special treatment and I have never acted as if I was in any way disabled or having a problem.”
Rashad Matraji, United Arab Emirates