Meet our Regional Patient Advocates

Meet our Regional Patient Advocates 2017-06-26T18:36:45+00:00

The HAEi Regional Patient Advocates are proud to be part of the HAEi family.
We constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized.

The colors on the world map indicate the individual focus of the five HAEi Regional Patient Advocates.

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Regional advocates

Regional Patient Advocates

Javier Santana - Patient Advocate

Javier Santana

Latin America

With over 15 years of experience, Javier specializes in creative communications strategies. His expertise ranges from political campaigns to pharmaceutical marketing, large scale product and event launches. He has directed strategies for website platform designs and social media integration, as well as launching mobile apps and directing production teams. He designs and manages content for the Puerto Rico Hereditary Angioedema Association Facebook page and helps coordinate patient conferences and events.

Maria Ferron

Mediterranean

In the spring of 2016, Maria joined the organization as HAEi Regional Patient Advocate representing the Mediterranean countries. Maria is a HAE patient herself as are her father and both her sisters. She is Spanish but she has been living in Malta since 2013 and presently she works for Mediterranean Bank Plc.

Natasa Angjeleska

South East Europe / Balkans

Natasa is the dedicated mother of a boy with HAE. Her professional background is in educational sciences so she believes that if you educate people you can achieve a lot. Her focus is on raising public awareness for HAE and educating patients and medical staff for HAE in the South Eastern European countries, thus making a difference in the quality of life.

Michal Rutkowski

Central and Eastern Europe 

Co-founder and President of the HAE Poland Michal has been involved in HAE advocacy in his home country since 2005. He became Vice President of HAEi in 2011 and he was appointed HAEi Regional Patient Advocate for Central and Eastern Europe in 2016. Michal was diagnosed with HAE at the age of 17. He is an architect and project manager, living with his wife and daughter in Krakow, Poland.

Rashad Matraji

Gulf Region and Middle East

Rashad was born and raised in Tripoli, Lebanon where he studied engineering. In 2007 he moved to Dubai, United Arab Emirates, and is currently working as Regional HSE Manager within the Al Futtaim Group. Rashad has been involved in HAE advocacy in his region since 2011, today as a HAEi Regional Patient Advocate for the Gulf Region and the Middle East. Rashad, who was diagnosed in 2009 but has experienced symptoms since he was less than a year old, lives with his wife and daughter in Dubai, United Arab Emirates.
Phone: +971 56 5 828 828

Patricia Karani

Sub-Sahara Africa

Patricia was born in Nairobi, Kenya where she is currently residing. She holds a university degree in Sociology and Economics as well as a higher advanced diploma in Human Resource Management and she has a decade of experience in the HR field. Today she is working in the food and hospitality industry. Patricia, who was diagnosed when she was about 18 or 19 years old, is the founder of HAE Kenya.