From RPA Javier Santana
The situation regarding HAE medications continues to develop drop by drop. After a meeting held last year between the group of patients, rare disease patient associations from Costa Rica, the Minister of Health, the Medical Directors of the country’s main hospital, Government representatives, and myself, the entry of Berinert and icatibant was authorized for patients with HAE. Due to the meeting, the Government finally gave one of the medicines to a patient who was hospitalized for many weeks after an HAE attack. Until that point, medical specialists had refused to give her medicines for HAE attacks despite the request of specialist doctors from Costa Rica, physicians from other countries, international patient groups, and the HAEi Board of Directors. However, despite the entry and purchase of medicines for HAE patients being authorized, the problem continues as entry is not allowed for the number of patients with HAE attacks in the country.
HAE Costa Rica has decided to create a larger group of leaders and professionals to achieve greater results. Jairo Gonzalez has taken over as President, while Jesus Gonzalez is new Vice President. >> Please see the contact information here
